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daisi24
05-11-2005, 07:49 AM
I am so depressed and frusturated right now. I feel like my dr does not even listen or really care about me because she doesnt give me options. I am in pain all the time and I cant stop going to the bathroom now I cant sleep either from getting up so much. My dr wants me to lose weight but Im in too much pain to exercise and have no energy. I am also in this horrible retail job that is killing me I am on my feet all the time and by the end of the night I am limping home. The job doensnt pay enough to support me either so I am constantly worried about bills, money, ect. I have been trying to find a more IC friendly job (in an office) but no luck yet. I feel really lonely and am trying to get used to being divorced I even tried dating but it did not work out because I was "sick" and they dont like that. I have pretty much lost all my real time friends and family so I feel really alone right now and hopeless. I am angry too at not feeling good even when I do the IC diet and take care of myself other ways. Sorry for dumping all this I just really needed someone to talk too. I dont go to therapy until next week. thanks for listening

tara

Regina06
05-11-2005, 07:57 AM
Tara

I wish I lived near you so I could help you out.

Beleive me I know what you mean by doctors. I can give you some advice. Have you ever been to a pain managment doctor? I go to one and she has helpe me a lot. My pain is not 100 percent gone but definitely a lot better.

Also, can you get any disability from work? Do they have that policy there?

Also, dixiefireball has some advice about low income ideas like meds and stuff. There is a section on this board for that

If you ever nee to talk or anything please feel free.

hugs

Katrina
05-11-2005, 08:50 AM
:grouphug::grouphug: YOU ARE NOT ALONE!!!!!! I am so sorry your doctor and job are treating you so badly. Maybe you need to replace them both. Regina had some good advise for you. Also the Angels that work at home board has a lot of ways to make money at home ideas.
We are always here for you...you are never alone!! :kiss::kiss:

http://www.ic-network.com/lowincome/
http://www.ic-network.com/forum/showthread.php?t=9858 this link has a list of work at home ideas



http://www.ic-network.com/forum/sho...90935#post90935 Newbie kit from the oldies to the newbies
http://www.ic-network.com/forum/showthread.php?t=7562 this link is a pain managment post.
The second page has 4 attachments...the last one is a list of ideas for IC pain.....take a look if pain is problem for you.

SharonA
05-11-2005, 10:10 AM
:grouphug: and :kissing: Tara. Like Katrina said...You are not alone. There are a bunch of us here. :)

tigger_gal
05-11-2005, 10:35 AM
Tara,
I love your name ... your not alone we all get down and out.. especially when we feel so alone... you are not tho you have all of us to vent to and support you. :kissing: :grouphug: .....
Brat

Sarojini
05-11-2005, 10:49 AM
Poor thing :kissing: :grouphug: Remember, you are never alone; we are here for you!

I know it's difficult when you're sick. I had to quit a job in August due to my IC and the stress of that job (and an awful, awful boss) made my symptoms so much worse. After I quit, I lost touch with EVERYONE I worked with because either they didn't like me in the first place, or more likely, they did not want to deal with someone "sick."

My husband is here and tries his best, but even he cannot totally understand as he has never felt the pain of IC, and he has never known what it is like to need the bathroom desperately even if I've just gone...

IC can be isolating, but please know that we are all here for you... we are here for help and just to listen if you like. :grouphug:

Ginny
05-12-2005, 08:22 AM
I'm so sorry you are going through so much right now. Would you consider antidepressents? Not just for pain of IC but for depression. I am sure there are many of us on them here.

I hope you find that office job real soon. I looked at your state but realized I was too far away to help.

friendlyfu
05-26-2005, 02:57 AM
i feel depressed to. my doctor is the same. r u sticking to the diet thing? i try and when i do i know a big diffrence.i dont work right noe. im trying to find something that will fit into my situation. i did apply for disability and was denied as they said there is work for people like me. just hang in there and kkep your chin up.

mayray518
05-28-2005, 09:34 AM
I know exactly how you feel. I went through the same thing. I lost my job and was bedridden. Now I have been in remission for 7 years and gotten my life back but keep trying. The fact that you are still working is amazing. Have you tried for SSI disability? Something will eventually help you.

emilyrose197377
05-28-2005, 10:16 AM
I am sorry you are going through this and you are not alone. I know how rough it is when your dr's do not believe you.

daisi24
05-28-2005, 02:50 PM
hi everyone, I just wanted to say that you guys are so great :grouphug: and made me feel pretty good when I saw this :) Since then, I have a new dr that is very good at treating IC although now i am freaking about at home dmso instillations :( I talked to a different boss at work and now they are more understanding and let me go to the restroom whenever needed and take breaks if I have to. I am on cymbalta still and that helps with panic but my depression is still a problem. I think its because dealing with all this alone now that I am divorced while learning to live alone causes me to be sad. Then also I am in group therapy its not for IC but its very intense and the last meeting I cried all night and did not sleep :( Its hard because I cannot get into my regular therapist as readily as I need so it makes going to group difficult because it brings up ALOT to deal with on my own :( Then I keep thinking school is around the corner so that stresses me too. I think when I see my therapist I am going to ask for some additional help and maybe increase my meds because as it is I cry alot at home and its not getting any better. I know stress is bad for IC so I am trying to get this dialed down so we will see what happened. Thanks for making me not feel so alone!

take care,
tara

JMichele
05-28-2005, 06:34 PM
Tara,
While reading your post I was thinking "me too". I really feel for you...the stress about a job that doesn't financially support you and that you aren't happy at/and physically is challenging, can make things even more stressful. Add a Dr. who doesn't listen or I should say really doesn't understand, and a recent divorce, on top of dealing with IC and everything that goes with that is too much for a person to handle. I just wanted you to know you are in my thoughts and I wish you the best of luck. I hope you can find a treatment plan that works for you. It's so frustrating, isn't it? I am also glad you are seeing a therapist and considering anti-depressents. If you ever want to just vent or anything feel free to PM me. Although I don't really talk to anyone on the boards much, it would probably help us with dealing with this. Even the supportive people in our lives don't fully understand. No one does unless they are going through it. Anyways, again, good luck and I hope to maybe talk with you soon.
~Jodi

PenguinK
05-30-2005, 11:27 AM
Tara, I just posted about depression. It's nice to know we're not alone in this. :grouphug:
good luck
KK :angel:

Debgail
05-30-2005, 03:40 PM
(((((Tara)))) I am so sorry to hear you are having a hard time...but you came to the right place for support. We all understand ic and mostly, were women who have many life experiences to share and relate to. So I am happy you are at the icn...we all really do care here.

If I can help in anyway or you want to talk feel free to im me.
Take care and hang in there, things will get better.
Love, Debbie

ICNDonna
05-31-2005, 02:15 AM
I know it's very difficult for you right now. Dealing with a divorce is not an easy thing, and adding a job you don't like and the pain of IC --- it's understandable that you're having a difficult time emotionally right now.

Just remember that you are a strong person and you will get through this --- and there will be better days ahead.

Sending warm hugs,
Donna