tired...want to give up sometimes

[mallenajolie]

so tired of this sometimes i have had enough :rolleyes:

[SharonA]

:kissing: :kissing: :kissing: I know this condition can be very frustrating and you can become impatient with yourself, but don't let it get the best of you. You deserve to find help and you will, in time. Take it one minute at a time...one day at a time. :kissing: :kissing: :kissing:

[JMichele]

Mellanajolie, I agree with you. It just plain sucks.

[TexasHoney]

:grouphug: I know how you feel. It's tough somtimes but don't let it defeat you. I hope you feel better soon

Hang In There
TexasHoney

[Debgail]

(((((((Mallenajollie))))))) I am with ya girlfriend...I know how you feel...I have been in bed for 3 days with a horrible flare. I always get depressed when I have a flare.....reality hits and we know what were faced with. ....sigh...But I always say things will get better and they always do. Living with ic ,I agree is a day to day thing. We have to take it day to day or it can get overwhelming. I have found when I am at the bottom of the barrel,what helps me is first to take care of myself and pay attention to what I am feeling like( lately just staying down and taking meds). I also find doing something else for someone else...weather its an animal or a family member or neighbor or just posting here for a newbie makes me feel so much better for awhile. Takes me away from my pain and troubles..if only for awhile.

My heart is heavy for you...i know believe me i know how depressing ic can be. The thing is...I too have been learning to have a life with ic and not MAKE ic my life. It is so hard...but come to the boards often. We all are here for each other and if I can help in anyway feel free to im me ok! Hugs and love, Debbie

[twiggy]

Was in your boat last week too. Initially, I thought diet wasn't an issue. However, now that I have modified mine, I see it was/is definitely an issue. It doesn't help when my specialist only sees me once every two months. Progess is slow and I just want to get better fast. Hang in there! You will get there. Sometimes it just takes a long time though!

[Babs RN]

I know how you feel. Was supposed to leave for Las Vegas this morning to visit the in laws for Mother's Day and could barely get up. Since I have to drive 175 miles I had to call and postpone. Absoutely frustrating, but I feel so rotten that I don't feel safe driving. I am usually so good at tolerating and pushing through the pain I can't believe it has overwhelmed me. I'm sure tomorrow will be a better day.

Hugs,
Barb

[LynnPaulet]

I am new to this chat room but not new to IC. I haven't had a falre up since 1/2002 and consider myslef very lucky. Elmiron hs been the "Wonder Drug" for me! I have had a flare up for almost 1 week now and trying to deal with it. I'm just wondering how long falre ups usually last? And I know everyone is different. Also, I noticed that some people feel relief from Pyridium. Is that a prescription drug? if not, where can I get it??

[ICAmy]

I am so sorry you feel so rotten. I really feel for you and am feeling the same way. I just wish I would wake up one day and this whole thing would be over. But then the last time I went into remission(10 years ago) I ended up with IBS and felt queasy 24/7 for 5 years. Even with the pain I'd rather deal with this. I really hope you find something that helps you feel better soon. Have yourself a good cry about the whole situation and then find something that inspires you. Maybe try to get into a good book or rent a movie you've been wanting to rent. Or just stay online and keep chatting with people who know exactly how you feel -- that and a pain med always make me feel better. PM me if you want. I wouldn't mind chatting!

Amy

[LynnPaulet]

When I get a flare, I only experience frequency, no pain. For those of you that use Pyridium, does this help with frequency? If not, does anybody else have success with any other drugs?

[sydney42]

Arrgh, I hate this disease! It is so helpful to find my feelings reflected here. My partner just drove away, having had enough with my anger. I lost it in the grocery store having become frustrated with the dismal selection of sawdust-tasting lunch options I was purchasing. I'm in pain anyway, despite having stuck with the diet the last several days. Was it the one olive I ate when out at a bar last night? Arghghghghgh! Partner's back, better try to get myself together.

[massagedoula]

You can buy pyriduim over the counter as "uristat" or "azo-standard"

[sleepyangel30]

Never Give Up

The geat Russian writer, Solzhenitsyn, tells the bravest story I've ever heard to encourage us not to give up. In the Russian prison where he was, no one was allowed to speak. There was nothing to read, and no encourage of any kind to sustain life. He said the strain and repression from this atmosphere had set in so badly that he thought. "I will never get out of here. "So he considered taking his own life. He knew that he tried to escape he would be shot, but he thought. "At least, that will be the end of that" His faith would not allow him to do that, though. When day came, he was taken out early in the morning to work and when a break in the work day came, he sat under a tree. He even placed his hand behind him, up against the tree he leaned against, ready to push off and run. Just then a shodow came across the grass and a fellow prisoner sat down beside him. They could speak no words, but he looked into the eyes of the new man who had recently come as a prisoner and saw something he had never seen in any face in prison before-a message of love and concern. As their eyes locked in silence, they started communicatiting in their souls and the prisoner took a step foward and drew a cross on the ground with a stick. Solzhenitsyn said new hope surged within him at the moment. Jesus does love me. He is in command. It is not hopeless! Three days later he was released from that prison. At his release he learned that many people had been praying for him. He knew with powerful certainty that God is sovereign and there is still hope. We mustn't give up! We might be the one to communicate hope in someone els, maybe by gesture, maybe without words. We must love and pray and hold one another up.

copywritten by Mary C. Crowley.

[songbird7]

I know how you feel. 12 years with this disease shows me that even at the most frustrating times, they are not permanent and there is some relief. I think relief is different for everyone. I can't add much to what people have said except to be here for everyone. Speaking from only my experience and not being a doctor I can say that when everything seemed to fail, homeopathic medicine given and monitered by a good homeopathic practitioner has really helps; as has prayer. I include everyone in prayer with this chronic disease and others. Just when things seem the most hopeless, things change. Every moment without IC symptoms is a blessing. A few days ago I had a long lasting flare that felt like labor pains in both the bladder and low back. Painful to both lie down and sit. Yesterday was better. We are here for each other .
Warmly,