View Full Version : southern Jersey, anyone??
05-03-2005, 12:51 PM
I live in south Jersey- Camden County- and am dying to find a close support group. Is there one around me that I'm missing?? If anyone knows of a support group in this area Please contact me.
05-31-2005, 07:01 AM
hi sicklerville i m in glassboro, i am new to these boards... but not new to ic i have had it for about 15 years...diagnosed 10 years ago...
i don't know about any close by support groups... wondering who your urologist is i have had the same urologist for the past 10 years in phila but i am going to start to look for someone new.... would you mind if i asked you who you see.....
also have you been to any pain management clinics? thanks many many thanks hey maybe we coudl start a support group in our area....
05-31-2005, 12:10 PM
I am working on starting one in northern Ny state...a bit of a haul for you, but if you're "ever in the neighborhood...." check out Lowville Ny in Lewis County!
06-01-2005, 03:06 AM
I'm in Central Jersey. No support groups around here.
IC for 23 years.
06-01-2005, 08:19 AM
I think all of us should plan a big old support group convention somewhere here in the Northeast....seems there is a REAL lack of support groups for us...at least in the REAL North....LOL . (There would have to be plenty of bathrooms!!) I have put the word out ALL over the place (including here) but nobody lives nearby apparently. sigh.......
06-03-2005, 01:45 PM
As Ginny may know, I had been looking for fellow ICers in the Northeastern part of the US for years!! First I was up in Massachusetts, although origionally from Central NJ, and now down in Philadelphia. Although I have never been to a support group, I do beleive there is one here in Philadelphia associated with a certain urologist and her group.
Let me know if you are interested in more info...
06-05-2005, 07:33 AM
Please let me know if you have information on a Philadelphia area support group. I am trying to get my urogynecologist to start one at his office in Turnersville, NJ. I will definatly post if it is successful.
If I could show a great need for this, he may be swayed into doing it.
If you are in the area and are interrested, let me know and I will relay the info on to him and his staff.
07-02-2009, 09:16 AM
I am starting a IC Support Group for the Philadelphia/South Jersey area. Please email me at email@example.com if you are interested in helping start the group or attending the meetings once they are confirmed. Thank you!
07-21-2009, 02:07 PM
I'm also in Central Jersey, so I'm no help to you, I'm really sorry ):
Good luck finding a support group ! :D
08-08-2009, 02:16 PM
I live in southern Ocean County with is the southern part of central jersey - but would be willing to go to a support group within a 45 minute drive. I also just found on that my urgyno is moving her practice from Monmouth County - which is only about 40 minutes from where I live to Turnersville - which according to mapquest is 88 miles from my house - i'm so upset!!!!! She is alone in her practice now and she is joining a group - so there isn't even anyone to fall back on around here. Anyone have any urgyno's that specialize in people like us???? I'm even willing to go to Burlington County - or northern Atlantic County - any suggestions anyone???
My dr said I'm a rare case and she suggested I take a trip to NY to the Center for Vulvovaginal Disorders - however that's really far and they don't take insurance for the first visit - its 1300.00 to walk in the door - if anyone has any info about the Center - please share that also.... Thanks guys.....
For the support group - my email is firstname.lastname@example.org I look forward to meeting others like myself!!!!
08-09-2009, 05:26 AM
lulu128: in reference to your support group .. i live in south jersey about 25 miles from philly. where would you guys be meeting. i would be interested, if it was not too far. really can't travel too far.
but would love to hear from you about it. private message me.. i sent you an email too..
08-10-2009, 05:50 PM
Its nice to see you back in the area. I was in the Philadelphia support group with you when it was meeting at Warminster Hospital. Unfortunately there have not been any new groups that have started since you left.
Last month I drove over 2 hours to the New Brunswick group that meets every other month. It is very well run, but a long way to drive. I live in Chester County, PA.
I am definitely interested in forming a new group. I would think there would be a lot of interest somewhere around the Philadelphia region. I think a group sponsored by a Dr. would be more successful. I am interested in Hopekeepers as well, as I am a member of Rest Ministries.
Thank you for looking into this,
08-11-2009, 05:25 AM
hi all: what is hopekeepers support group?
08-11-2009, 06:09 AM
South Jersey, Camden County, here too. I would definitely be interested in attending a support group. :)
08-11-2009, 10:58 AM
Same here, also live in Chester Country PA and would love to join a support group close to Philadelphia!!
Please keep me in the loop!
08-13-2009, 10:36 AM
Wolfaleena~ More info. can be found on Hopekeepers support groups on the Rest Ministries website. It is a Christian based support website for those with chronic illnesses. www.restministries.org
HopeKeepers support groups are support groups/Bible studies designed to meet the emotional and spiritual needs of the person who lives with chronic illness or pain, through a Christian environment.
Through the support group/Bible study setting you will have the opportunity to grow spiritually, while surrounded by others who share similar circumstances, unrevealed answers, and even joys, while living with a chronic illness or physical pain.
Rest Ministries also sponsors an Invisible Illness week with a multitude of podcasts, articles, etc. It is the week of Sept. 14th - 20th. You can get more info. at
I am eternally grateful for the ICN and Rest Ministries. Now if only I could find a local IC Support Group, I would be all set!
05-08-2010, 03:26 PM
There is a support group in Central New Jersey.
Here are the details
New Brunswick - IC Support Group of Central New Jersey
Contact: Michelle Brill
Phone: 732-390-0422 or Email brillo4aaol.com
Will meet every two months, 7-8:30PM in the CARES Building at St. Peter's University Hospital, 254 Easton Avenue, New Brunswick, NJ 08901
Health Center for Women: 3rd Floor Conference Room. Call or email for dates!
Let me know if you need more info
05-13-2010, 06:43 AM
I am in glassboro, nj 08028 (gloucester cty)
there is a support group that meets in Voorhees, NJ (camden cty)
every other month on a sat. afternoons
i have never been able to attend it.. but the woman who runs it is very nice and would love to have more attendees.....
anyone in Gloucester county near glassboro with IC? i live in glassboro, NJ
and have had ic for 20 years Ughhh!!
07-19-2010, 10:02 AM
I live in the Freehold/Manalapan area and am interested in a support group too! Does anyone know of any. My IC dr. is in Philly and I travel in to see her so I might consider a Phildadelphia group too.
07-19-2010, 04:30 PM
Do you see dr whitmore in pa.
I do and have been for 16 yrs now..
I live in s. jersey.
there is a support group in voorhees, nj ....
07-20-2010, 04:46 AM
Yes, I have been a patient of Dr. Whitmore's sinnce 2001. I am going there tomorrow to see Jennifer. She is great. I'll probably get some trigger point injections. The muscles are pretty sore from being in spasm! Between IC and PFD I donn't know what's what!
I think the Voorhes group would be too far for me.
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