susayates
04-19-2005, 12:54 AM
Hi there
Greetings from England. I am currently in the middle of a really bad flare which began about 2 weeks ago and does not seem to be dying down. As a member of both the US ICN and the UK COB (Cystitis and Overactive Bladder Foundation) for a while, I wanted to pick your brains (as we say here in the UK).
The main problem seems to be frequency and pressure (as my bladder refills) together with inflammation (that lovely cystitis belly that we all get). I am currently taking 20 mg of Oxybutinin at night and 15mg during the day together with 50mg of ami at night but the frequency is driving me nuts.
Any ideas as to how I can cope and reduce the frequency? Are there new medicines I could try instead of the ami and the oxybutinin. I eat a very bland diet anyway (having been a cystitis sufferer all my life) and read up all the literature available. I have dropped a sample into the hospital for analysis but suspect it will come back negative as 99% of them do.
Any suggestions gratefully received.
Susan
ps I have been to see a Urologist over the last year who has upped my meds but commented "you had a cystocopy in 1997, your bladder won't have changed since then so we won't perform another one". I have had the usual ultrasound and flow study which have all come back as normal so no blockages. They just don't seem to know what to do with me
Greetings from England. I am currently in the middle of a really bad flare which began about 2 weeks ago and does not seem to be dying down. As a member of both the US ICN and the UK COB (Cystitis and Overactive Bladder Foundation) for a while, I wanted to pick your brains (as we say here in the UK).
The main problem seems to be frequency and pressure (as my bladder refills) together with inflammation (that lovely cystitis belly that we all get). I am currently taking 20 mg of Oxybutinin at night and 15mg during the day together with 50mg of ami at night but the frequency is driving me nuts.
Any ideas as to how I can cope and reduce the frequency? Are there new medicines I could try instead of the ami and the oxybutinin. I eat a very bland diet anyway (having been a cystitis sufferer all my life) and read up all the literature available. I have dropped a sample into the hospital for analysis but suspect it will come back negative as 99% of them do.
Any suggestions gratefully received.
Susan
ps I have been to see a Urologist over the last year who has upped my meds but commented "you had a cystocopy in 1997, your bladder won't have changed since then so we won't perform another one". I have had the usual ultrasound and flow study which have all come back as normal so no blockages. They just don't seem to know what to do with me