Can't pee after cysto/hydro

[vtorrey]

Has anyone ever not been able to pee after having the cysto/hydro?
I had my first cysto/hydro last Monday and I still have a cathetor in.
I am suspose to take it out tomorrow and see if I can pee. I tried to
take it out on Friday but couldn't pee and had to have it put back in.
If so..how long did it take to reverse itself? My Urologist said she
has never seen this before but would be shocked if it didn't reverse itself.
I did have general anesthia. Any input would be greatly appreciated.
Thanks, Vicky

[Portia17]

Vicky

When I had my hydro-cysto under anesthesia done he left the catheter in for 24 hours. Then a nurse came an took it out and I had not problems urinating.

I would really call the urologist and let him see what is going on

[~*~Christine~*~]

I wasn't even aware that they leave the catheter in after the surgery because I've had a hydro/cysto done twice by two different uros and neither did that. Is there a purpose or does it vary from patient to patient?
I can only guess that leaving a catheter in could cause problem with controling your bladder muscles and therefore when it is taken out you can't get yourself to pee.....?
I also heard taking a warm bath helps with this problem

[KeeKee]

I experienced something similar. After my cysto/hydro I was in horrible pain. I couldn't even stand up straight for days. And it felt like I had to urinate so badly, but I couldn't. They didn't leave the catheter in, but had me stay at the hospital until I could urinate. After about 6 hours, I still couldn't go and they said they would probably have to put the cath back in. I really didn't want that and the anxiety made me not be able to go even more. Finally, after about another 1 1/2 hours I was able to go, just a tiny bit, but enough for them to send me home. For about 3 days after that, I could barely go. It felt like I had to really go all the time, but I could only get a tiny amount out. Each day that passed I was able to get a little more out until I finally returned to normal about a week later. I was so scared something had permanently damaged my bladder, but no, everything was fine. It just took me longer to recover than most. I wish someone had told me that I would return back to my normal pre-cysto/hydro state...that would have alleviated so much of my anxiety.

[Portia17]

christine

I was told by the uro that they leave in it (for me 24 hours) to relax the bladder muscles

[ICNDonna]

I always have a catheter overnight after a hydrodistention. After my first hydro, I couldn't urinate and had to be cathed again --- as I recall (it was thirty years ago), I had a foley catheter for several days before I could urinate easily again.

Donna

[vtorrey]

Thanks so much to everyone for your posts. I take out the cathetor in just a few
hours and pray that I can go! I'll keep you posted. Thanks so much, Vicky

[Sarojini]

Let us know -- when I had my c/h, I did not have a catheter after the procedure, and after an hour I was able to urinate fine on my own, but I guess I was lucky! I hope you're able to urinate on your own when you take that out!

[Angie]

I've had lots of cystodistensions, always have a catheter in afterwards . I can hardly ever pee after the catheter comes out and it has to go back in. I have been sent home with it in a couple of times, and when I take it out after a few days, I can go.
I hope things go ok!

Love angie

[vtorrey]

Angie, I took my cathetor out about an hour and half ago. I have gone pee twice..
not alot but some. It hurts to pee from the cath being in. What did you mean that
after a few days of taking the cath out you can go? What did you do in the meantime? Thanks for your reply...these message boards are a god send. Vicky

[Angie]

Vicky - sorry, I just meant that when I take the catheter out a few days after the cysto I can pee .
Glad you can pee OK now and I hope the soreness quickly passes.

Love Angie

[vtorrey]

Angie, Okay thanks..now I understand what you meant!!! I have been peeing non
stop since I took the cath out. I am just so grateful to be able to go pee!!! How
long have you had IC? I just was diagnosed last week although I suspect that I
have had it for 3-4 years now. I go to the urologist on Thursday to get the results
of my bladder biopsy and to talk about meds. I have been reading up on all the
different meds...there are sooo many of them. I just have to make sure that I
get a med that doesn't relax the bladder at all since I have had trouble with two
different meds that made me not pee and had to have catheters put in! They had
put me on Detrol before my diagnosis and after three pills I couldn't pee! Peridium
did the same thing to me. Did you ever have any similar trouble?
Do you know how you put under your name that you are from the U.K...when I
signed up I don't remember if there was a spot for that as mine doesn't say. Any
idea how to do that? I like how some people even have pictures ect...I wonder
how they do that?! I am from New Hampshire in the United States! Sorry for all
the questions...I guess I got carried away. Thanks, Vicky

[Annie2]

Vicky,

Glad to hear things are starting to improve for you! I'd just like to belatedly say :welcome: to the ICN! This site is full of very useful information and caring, supportive people.

From the reading you have been doing, I assume you have already found the Patient Handbook on this website. It is very helpful to read it. Knowledge is power and I would recommend you read as much as you can about IC, meds and treatments available so you will be informed and can discuss with your doctor which meds and/or treatments might be best for you. Don't try to take it all in at once, however, as it can be too overwhelming that way. There is a book many of us also highly recommend. It is The Interstitial Cystitis Survival Guide by Robert Moldwin, MD. It is available here in the ICN Shop, through Amazon and other Internet retailers and also is available in some bookstores.

Have you started the IC Diet yet? Many of us find that is the greatest self-help tool we have. There is a copy of the diet in the ICN Patient Handbook. If you haven't done so already, I would encourage you to begin it immediately. Many of us have found following the diet very carefully helps tremendously in reducing our symptoms and pain. Do give yourself some time on the diet before deciding if it works for you or not. It can take a few weeks of carefully following it before your bladder calms down and you begin to see the benefits.

If you would like your home state or location to appear under your user name, after you are signed in, look at the blue bar near the top of the screen. Click where it says User CP. Then click on Edit Profile and you can type in your location on the location space. If you would like to add an avatar (picture), click on the Edit Avatar space and you can select from a variety of avatars the one you would like to use. Unfortunately, we are not able to add our own personal pictures anymore.

So you are from New Hampshire? What part of the state? That is my hubby's home state (Lakes Region). We just retired the beginning of January and are planning on moving back to New Hampshire within the next year. We plan on living in New Hampshire during the summers and fall seasons and spending the winters in a warmer climate. If you care to chat about NH, you can send me a PM. I know some grocery stores in the Lakes Region and the Mount Washington Valley that carry some IC-friendly products and would be glad to share that info with you. If you are in southern NH, there is a Trader Joe's not far away across the MA line that would be good, too. Since I will be living in NH, I am going to be looking for a good IC-knowledgeable urologist there. If you have found a good one, I would appreciate your sending me a PM and letting me know who it is!

:grouphug: to you and hope you continue to feel much better!

Annie

[vtorrey]

Annie, Hi! It was so nice to read your post! I am from Plaistow, NH...just right over
the Mass border! We usually vacation in the Lakes Region every year with the kids!!!
What a small world it is!
I do have the IC Survival Guide and the cookbook I just got. I knew I had IC even
before the doctor did since once I found this webiste and started reading it was
like reading about my whole life! I have been doing the IC diet for over a month
now and it seems to really be helping!
Thanks for all that info on how to edit my profile!
I am so new to this website I have to learn to find myself around. If I wanted to
send you a PM how would I do that?
I would be interested to know what things they sell at Trader Joe's and where there
is one around here?
Thanks so much, Vicky

[Annie2]

Vicky,

A small world, indeed!!! :)

There are 2 ways to send a private message. The first is simply to click on my user name. You will get a drop down menu and just click on send a private message which will take you to your private message outbox where you can type the message and send it. The second way, and the way to access & read any PMs you have received - Once you have signed in to the message boards, go back to that blue bar near the top of the screen. On the right hand side it should say " Welcome, Vtorrey". Just below that are the words Private Messages. If you click on it, it will take you right to your private message mailbox and you can read any received messages or send messages (just need to know the screen name of the person you want to send to...I am Annie2 ). I am going to send you a private message so you can go look for it.

There are several Trader Joe's in Mass. Go to traderjoes.com and click on the picture where it says locations. Then click on Mass. and it will give you the whole list, addresses of stores and maps. There could be another one easier for you to get to but the one I was talking about is just south of the Mass/NH line off 3 and it's address is:
Tyngsborough (#507)
440 Middlesex Road
Tyngsborough, MA 01879
(978) 649-2726
In the TJ Maxx Plaza across from the Pleasant Lane Mall

Trader Joe's is a favorite store for many of us. They carry lots of IC-friendly foods. We had a thread going some time ago about the favorite things people get at TJ's. I think it was on the Diet and IC board so you might want to search through some of the old posts there to find it. If I see it, I will send you a link. I'll also send you a private message with some of my TJ favorites. I have a TJ's about 15 minutes from me and shop there regularly. I am going to miss that convenience when we move back to NH! I can still get to the TJ's in MA, but will have to plan my trips and carry a cooler to take home all my goodies. There won't be any more quick runs to TJs to pick up any last-minute or forgotten items. Oh well, my hubby will be back home again in his beloved NH and will be so happy so any inconveniences, other than finding a really good uro :help: , will be worthwhile.

Happy to hear the diet is already helping you. The diet is the pits, but it works for most of us.

Glad you found this site! Personally, I am so grateful to have this resource and support. We are all here to help one another and, though we are sorry you have IC, are glad to have you with us!

:grouphug:

Annie

[PamIvanicki]

Vickey - Trader Joes is wonderful. I get all my food there since my diagnosis with IC. Their breads and meats are great - no preservatives and I just love the Terra Sweet Potato chips. Unfortunately, I'm from California, so I can't help you with finding one in your area. But the place is great. Lots of alternatives for foods.

Pam