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View Full Version : Went to first PFD Therapy. Questions!



DanaW
04-14-2005, 05:38 PM
I had my first PFD treatment last Friday. I had to insert a tampon like contraption and she hooked it up to a computer. Apparently, even when I think I am relaxed my muscles are not. I should be at a 0-1 and mine kept peaking at 4-5. (it never goes down past the 4-5) -4 Then, she had me tighten that muscle and try to hold it. She said it took me 4 tries to tighten it up enough but, I could not keep it up there. It fell pretty fast. Then, she had me do some deep breathing and relaxation. At first she wanted me to practice tightening and then holding a few times, then, relaxing for 20 minutes each day. (at home) But, then, I asked her if that would cause a flare if I did that right off the bat. So, she said to just do the relaxing 20 min. a day for 3 weeks. I felt better about that. I was really sore for a few days just from that first session. I am going to ask her next time how many IC people she has seen. It isn't that I don't trust her, it is just that I have pain 24/7 and she may not have anyone like me. Just people with frequency, urgency and some flares.....How often do other people go to their therapy??? I won't be going but, every 3 weeks and then, only for about 4 sessions...?

Dana W.

massagedoula
04-14-2005, 05:59 PM
Oh, my physical therapy is the BEST thing (other than heat...) that I have done. I go every week, and I used to go twice a week! The thing she did to you is called BIOFEEDBACK. If the physical therapist has an intravaginal biofeedback device, then chances are that she sees a lot of people in our situation. The one I go to is a women's pelvic pain specialist, and I know from her that it is a growing field.

My biofeedback didn't show anything. I was at a 2, and the line was flat.......

However, what she does do for me is intravaginal trigger point therapy. It is like a deep massage through the vaginal walls. It hurts, but like a good hurt, like when you have someone give you a really hard massage. The best thing about it is that it totally STOPPED my burning. I had a lot of trigger points in the muscles that surround the urethra, and once she worked on them for about a period of 6 weeks...I have never had burning again. The physical therapy does not help the frequency, but I feel that it is really doing something very beneficial for me, and also acts as a preventaitive for future PFD from chronic pelvic pain that could develop more seriously.

PS..I also had pain 24/7...now I still have it but it is less. I don't think it was less from PT by itself, but as one factor, maybe. But anyway, my point is that my PT had a good handful of people with 24/7 pain. Your should ask her, I don't think she would be offended.

DanaW
04-14-2005, 06:10 PM
Thanks for your feedback. I did ask her if she does the therapy on the inside with massage and she said no, but, there are others who do. (but, not in this facility) Do you think that the massage is a better option? And, do you think that I should be going more than every 3 weeks? I am not complaining bc it is an hour and 15 minutes away. Did you also have the biofeedback??
Dana W.

massagedoula
04-14-2005, 06:21 PM
If you read my last post you can read my experience with biofeedback. It didn't show much for me...but I am strange, because my PT says that it usually shows for most women with PFD.
I really think that if you are spending all the time and money going to a physical therapist, then you should try to find one that does the internal massage. When I first started going, I went 2 times a week. Now I go once a week. It is only 15 min from my house, though, an hour more commute like yours and I probably would go once every 2 weeks. I see it as a form of massage, and because I am a massage therapist by profession, I know that when my clients have an acute condition or a severly chronic condition, I try to get them to come every week, and at least every 2 weeks until they start getting to a place that they are comfortable with. If you have any more questions about it, please feel free to ask me.

DanaW
04-14-2005, 07:13 PM
lol sorry about the biofeedback question!! Now, I remember reading it. Brain-fog. Need to go to bed!

I don't think I really have an option to go anywhere else. I suppose I could try Eau Claire.....Not sure though if I could stand to be massaged that way though bc I also have Fibro? Thanks again for your feedback :)
Going to bed!

Dana W.

Sarojini
04-15-2005, 02:10 AM
I went every week to a therapist who was very experienced in treating all kinds of pelvic problems, including IC and PFD patients. When I did biofeedback, my therapist put electrodes on the outside, so nothing was ever inserted into my vagina. This helped prevent flares. Later, she did some internal massage with a lubricated finger to find trigger points in there. She taught me stretches to do at home to stretch and loosen my pelvic floor, and I was also asked to practice contracting and relaxing my pelvic floor, but was told not to continue for the day if I felt any type of flare symptoms coming on. She also used deep tissue ultrasound to heat and relax my muscles, and also an E-stim machine to relieve the back pain I often get with my IC.

I found PT really helped me learn that I was holding my pelvic floor in tightly, and I learned through the biofeedback how to relax, and got better at clenching and releasing. Eventually, my endurance (how long I could hold a Kegel-type squeeze) went up also. The gentle stretches she taught me are good for relieving some pelvic pain when I feel a flare coming on, and they're great to do during rest stops while travelling to relieve some of the pressure from sitting so long. I've even done some of them in airports when I went to a job interview out of state recently and my plane was delayed, and was asked by other travellers what I was doing -- I told them and I had several women at the gate doing my exercises with me by the end. I felt like some kind of aerobics instructor :lmao:

XoChelsey03Xo
04-19-2005, 02:30 AM
I did all of that in physical therapy too. I actually never finished my physical therapy. I quit after she told me to get an anal vibriator to stretch my virigina out since it was extremely tight. I also have vv. She has probably seen a lot of IC patients because a regular physical therapist cannot work with IC patients. You have to be specially trained. I live in subburb near Jacksonville, Fl and my uro told me there were only 3 close to me. I still had to drive about 45 min. to another town to go to physical therapy. Good luck with PT, I wasn't faithful.

Chelsey

tac1962
04-19-2005, 03:16 AM
Hi Chelsey,
I live in Jacksonville and found a great physical therapist that deals primarily with women's health issues. Send me an email if you are interested. I used up all my visits allowed by my insurance company, but she gave me some great exercises to do on my own. It really helps. I also have an Interstim that has really helped with frequency/urgency problem but the pain remains...as I was told before surgery. Hope you have a great, painfree day!
T :)

mink47
04-19-2005, 05:01 AM
My uro sent me to physical therapy also for IC & vulvodynia. I've been going for 3 weeks now but my therapy consists of: 15 min of ice back on my lower back, 15 min of the shock patch things on my lower back, 15 min of massage, and then 15 min of her randomly pushing on stuff in my bladder/back area... Does this sound not right?? I've been enjoying it b/c its relaxing but is it benefiting anything?? She says she deals with other IC patients, I go to my Uro tomorrow, I'm going to ask him but has anyone's therapy been similar to mine?

massagedoula
04-19-2005, 06:23 AM
You actually get more time than I get! Mine only does 30 min...all pelvic floor muscle massage. She got me a Tens to use at home, so she only does the intra vaginal massage when I go to her. I really think it helps so much.

icsue
04-27-2005, 04:33 AM
My physical therapist knows all about IC but also thinks she has the answers to everything. She keeps telling me I can get rid of this with the exercises and when it's not working she trys to blame it on me. That I'm not doing it correctly. Unfortunaly she knows her stuff but I get so angry at some of the stuff she says. She thinks she's a doctor that can cure IC. She was trained by Dr. Whitmore who is one of the country's best in the IC department. She's always on the ichelp website but I think it's gone to her head!

mink47
04-27-2005, 04:37 AM
That's kind of how mine is. She's really nice but she wants me to stop my meds & has been hinting that stretches & stuff can cure IC. I'm trying to keep an open mind but she's not a doctor.

icsue
04-27-2005, 05:01 AM
I think the exercises can cure IC too sometimes but I think it's more complicated than doing some stretching. It also might not cure it, nobody really knows. I've been doing yoga for about 8 years and it has helped but no cure.

My IBS was flared up also when I went for therapy and the physcial therapist told me I have a yeast problem and was telling me to get all this stuff from the health food store. I tried it for awhile and it seemed to help in the beginning then everything got worse. She told me NOT do my bladder installation when my doctor told me I should. She was asking me if I was taking my health food stuff and I said "your not a doctor, you can't play doctor by using things from the health food store" She got really upset and threw the ice pack on the bed and said that I would never get anywhere with my IBS flared up. She claimed that the IBS was causing my hip problem and basically said good luck. So I stopped going. I think I'm going to complain to my Dr. but it's not worth the trouble but I get angry everytime I think about it.

massagedoula
04-27-2005, 09:06 AM
Wow...mine is nothing like that. She works closely with the urologists in the city, and even called specially to my doctor once to ask her if she could give me pain meds before a urodynamics test! Don't let this turn you off to all physical therapists, I know for a fact that they are not all like that.

icsue
04-28-2005, 12:57 AM
I think she just let things go to her head. She thinks she can cure people if they just do what she says. I don't know what her problem is. I'm going to tell my doctor but I'm not making a special trip to see her because of a controlling physical therapist.

ICNDonna
04-28-2005, 01:41 AM
By all means, tell your doctor about your interaction with that physical therapist. She was out of line and very likely practicing beyond her license. She could do somebody harm.

Donna