Interstim Trial

[rubjen]

I got the trial interstim at 11;30 am today :woohoo: :woohoo: and my uro said it went great with no problems,it is set on 1 1/2 rate.Have an appointment tomorrow to check out every thing.I am a bit sore an having some slight pain on the left side of my vagina when walking which must be normal.Best part i don't remember a thing. Going to have bruised left hand an arm as the first IV didn't work. got to go as Iam a bit tired, (one more thing I went 2 hours without going to pee). :woohoo: :woohoo: :woohoo: thanks everyone for all of your posts they help me make a big decision.
RUBY JEAN

[dancemomof2]

:woohoo: sounds like your doing great, take it easy and keep us posted. I swear the Interstim is my new best friend LOL

[rubjen]

Saw My Uro Today An He Adjusted The Monitor As I Was Having Some Pain When Walking.the Pain Was In The Left Lablia.now No Pain!!!!!!!!!an I Have Not Went To The Bathroom For3hours I'm Grining From Ear To Ear.so If This Keeps Up I Will Get The Inplant On The 19th. I Am Just A Bit Tired As The 1 1/2hour Drive To The Uro Was A Bit Much. My Hubby Kept Saying Next Pottie Stop Coming Up An I Kept Saying Drive On. My Face Looks Like I Painted It Up As If I Over Blushed. They Said It Was From The Med That Was Used To Put Me Outan It Would Go Away Soon. It Looks Like The Interstim Will Be My New Best Friend Also.
Ruby Jean

[patricia1]

I am so happy that so far the trial has worked good for you. I hope with all sincerity that the interstim will keep working for you and you have the best of luck with the unit. My prayers are with you. I am going in either April 28 or the 5th of May for the revision of my unit. Wish me luck to.

[rubjen]

Hi Patricia,my Prayers Are With You.keep Me Up Dated On How You Are Doing With The Revision,i'll Be Watching Out For It. Best Of Luck To You.
Ruby Jean

[ICLori]

I'm so glad to hear your trial is a success so far, I hope that the Interstim gives your life back to you!

Blessings, Lori

[tigger_gal]

:woohoo: :woohoo: I am so glad you are having great success... I will love my uro forever for suggesting this and having it put in :)
Brat

[jensue973]

Great to hear your Interstim is working well...i had mine done in January and it is a life saver...Good luck!!

Jennifer

[rubjen]

THANKS FOR THE GOOD WISHES,BRAT AN JENNIFER, I EXPECT INSTANT RESULTS AN I KNON I MUST HAVE PATIENCE.SO FOR MY POTTIE VISITS HAVE GONE FROM33 DOWN TO 12 DURING THE DAY AN AT NIGHT I GET TO SLEEP 3 1/2 HOURS AT A TIME,WHERE I WAS UP EVERY 15-20 MINUTES BEFORE. MY URO ASKED IF I COULD LIVE WITH THIS? AN I TOLD HIM I COULD.HE SAID THE INTERSTIM WOULD HELP TRAIN THE BLADDER AN I WOULD SEE MORE IMPROVEMENT AS TIME PASSES.
BRAT I HAVE FOLLOWED YOUR POST ON THE BOARD AN WAS SO GLAD YOU ANSWERED
I FEEL AS IF I KNOW YOU. THANKS AGAIN TO YOU ALL FOR THE GOOD WISHES,I DON'T KNOW WHAT I WOULD'VE DONE WITH OUT YOUR SUPPORT. SAY A PRAYER FOR ME,I WILL HAVE THE INTERSTIM INPLANTED THIS TUESDAY THE 19th .
RUBJEN

[DebbieB]

Hi rubjen;

I also would like to wish you all the best on your InterStim Implant on April 19..
WOW, my sixth year with the InterStim Implant is on April 20 so I will not forget your date ...

I just want you to know that the results that you are getting from the trial will be way different then the Implant, remember it is implanted inside of you and the feeling of the stimulation is very different it will not feel as strong as you are feeling it now...
It also took me a good eight months with an adjustment as well to get some wonderful results so please understand you have to learn to have some patience with it now it is not in no way a over night fix ...
It will take some time for your body to accept the device as well and remember we are all so different in this procedure it may help one faster then an other one ...

So all the best and I wish you a speedy recovery please take it easy for two weeks as you will be very sore, I thought the surgery was a piece of cake myself but we are all so different in our healing as well...

Please post and let us know how you make out rebjen...

Hugs, Debbie

[rubjen]

Hi Debbie,six Years That Is Is Wonderful!!!!!!thanks For The Good Wishes An The Information You Sent.i Will Remember It. So Patience I Will Be An I Will Post As Often As I Can.rubjen

[rubjen]

Hi DEBBIE an all , my surgery time is 10am,I have to leave home at 630am as i have to check in time of 830am. It will take us that long to get to the hospital with the am traffic. MY WISH FOR TODAY IS THAT ALL IC'ERS HAVE A PAIN FREE DAY.
RUBY JEAN AKA rubjen

[tigger_gal]

Hi Ruby,
Will be thinking of you tomorrow when you are having your surgery... I know things will go well for you.. You had a successfull trial, I am confident the implant will be just as successfull.
hugs
Brat

[DebbieB]

Hi Ruby Jean,

Well I will be thinking of you tomorrow as well..
I got my finger crossed that you will have a fast and speedy recovery and up and around in no time..

Just think positive and with a little patience it will go a long way...

Please let me know when you are up to it Rudy Jean...

Hugs, Debbie

[rubjen]

HI ALL, I AM UP AND GOING, THE SURGERY WAS A BREEZE AN REAL EASY,AS YOU KNOW I HAVE TO TAKE IT EASY FOR A COUPLE OF WEEKS,MY HUBBY HAS YELLED AT ME A COUPLE OF TIMES NOT (IN A MEAN WAY).I HAVE ONLY HAD TO TAKE ONE PAIN PILL. BIGGEST THING IS NO SHOWER UNTILL SATURDAY YUKE!!!!
rubjen

[tigger_gal]

whhhooooo glad you are home and not having to take much pain pills... relax and heal my friend :)
the shower part sux, but soon it will be in the past :)
hugs
Cindy

[Portia17]

Hi

What is an interstim trial?

Thanks

[dancemomof2]

Interstim trial, is a test with a tempory wire implanted near the sacral nerve that produces stimulation to the bladder to reduce URGENCY/FREQUENCY ONLY. If the trial is a success in 7-14 days depending on the physician the permanent implant is implanted into the hip area. THIS IS ABSOLUTELY NOT GOING TO HELP WITH PAIN. DON'T LET ANYONE TELL YOU IT WILL. That is not it purpose nor will it stop your pain. It is a very costly procedure that I have over $50,000. in already. Please don't investigate this device for pain. Which from reading your previous post seems to be what you are looking for the most.

[Portia17]

stasny

Yup I am cancelling my appointment that he referred me to today. I told my uro that iis not for pain, he goes yes it is. Thanks I am cancelling now.

I have a new uro May 9

[rubjen]

the inter stim is not for pain, I cannot understand why any uro would tell you it is.I just got the inter stim an it has helped me with the frequency an urgency not with pain .I controll a lot of the pain with my diet.I DO NOT TAKE PAIN MEDS ON A REGULAR BASIS.I hope you will research the inter stim for your piece of mind. I do belive you have to do a diet to controll those trigger foods,that give you pain.I wish you lots of good luck an pain free days.
rubjen

[rubjen]

portia17, visit this site, www.interstim.com, for more info. they will send more info if you need it.
ruby

[Portia17]

rubjen:

Hi

Thanks for the advice - see previous post please - I have just cancelled the dreaded appointment and I am getting a new urologist on May 9th

I know that is is NOT FOR PAIN. They keep telling me it is so when I cancelled the appointment with the other uro that my crappy uro sent me to I just said you must be interested in kickbacks but you are no getting it off of me. lol

I do follow the diet but still have pain. I am working with my pain mgmt doctor for 2 months now and we keep switchting things around. The pain is not excrutiating as when this first all started in November but it is there somtimes better than others

I appreciate all of your advice and concern - rubjen and stasny

I am getting prepared now to do my urine sample to send it FEDEX to United labs in Virginia for the broth culture test. I will let you know in a a week or so how it goes as that is how long they let the bacteria grow

Hugs to you both
Mary

[jrowley]

you are sending urine through the mail I have never heard of such a thing

[Portia17]

Guess you never heard of speciman packs a-k-a medical packs with speciman being shipped all over the states and world via fed-ex, airborne, etc.

WOW, I worked for a company and we did a lot of specimans and cultures every day and shipped all over to certain labs. One time we had a liver transported from state to state for a liver transplant via overnight service.

oh well

[jrowley]

well transplant yeah but not urine here in michigan they usually just send it within state and within certian miles

[tigger_gal]

Yea I have to agree with Jan .. its different flying a liver/heart via helicopter then urine.. I suppose as long as it stay's cold.... and gets there in a day it would be ok.. but I don't see how it would get and accurate result, being shipped a few states verses your doctor sending it to the local lab in your town...
Brat

[Portia17]

Oh let me clarify

I am having a broth culture test by Dr chang who uses Dr. F tecnique of letting the bacteria grow in our urine for 5 to 7 days and if gram positive bacteria is shown then a vigorous course of antibiotics will be given. You see our doctors only let our urine stay for about 24-48 hours which will never show if we have any different kind of bacteria growing but this lab does. A lot of our doctors do not beleive in this theory called the broth theory.

there is a section on here about antibiotics used for ic patients on the boards

[Portia17]

It can be explained thoroughly if you go to www.google.com and put in either the name of Dr Toth or Dr. Fugazzotto

Take care

[Portia17]

rubjen

Once again, I am glad it worked our for you.

Way to go

Mary

[ICNDonna]

It's not unusual to send specimens through the mail --- if it's done properly, it shouldn't be a problem.

Donna

[Portia17]

Donna

You are so right. I worked for a freight company years ago and we shipping thousands of urine and blood samples a day to various states. I shipped mine yesterday to another state.

This I know for a fact

Hugs
Mary