New Guy

[Lancerdad]

I was diagnosed last November but have had the syptoms for lots of years.
My Doctor tried medications 3 different kinds but no improvement. Saw him Friday and he recomended the cysto/hydrodistention. So I am set up May 13 for it. I see by the posts here that there seems to be a lot of success with it. I am sure ready to try it! I was on a bus 3 weeks ago without a bathroom and had a real flare up. I was lucky it stopped for one pickup at a hotel so I was able to go there but still was miserable. It was what made up my mind to try the hydrodistention. This board is really helpful! Thanks to all.

Brian (Lancerdad) :rolleyes:

[Katrina]

:welcome: Brian! Which meds did you try?? Were you diagnosed by symptoms in November or did you have the potasium test?

I hope the hydro goes well for you. I would apsalutely hate being on a bus during a flare like that. Car rides...or bus rides...often make me way worse. During flares that is one of the worse things for me to do. :grouphug:

http://www.ic-network.com/handbook/ this is an essential link for everyone with IC. It is very informative on meds, living with IC, and self help....take a look!!!

http://www.ic-network.com/forum/showthread.php?p=90935#post90935 Newbie kit from the oldies to the newbies
http://www.ic-network.com/forum/showthread.php?t=7562 this link is a pain managment post.
The second page has 4 attachments...the last one is a list of ideas for IC pain.....take a look if pain is problem for you.

Let me know if I help you with anything. Take Care!

[ICNDonna]

I also hope the distention works for you --- it definitely does for me.

Are you following an IC diet? That can also help a lot.

Sending healing thoughts,
Donna

[hisjenn]

welcome, Brian.

sorry to hear of the continuing trouble, but i hope the cysto & hydro will work wonders for you!

[Lancerdad]

It is sure nice to see how quick everyone responds here! I sure appreciate it!
I will keep everyone informed of by progress (God Willing!).

Lancerdad (Brian) :bow:

[Babs RN]

Brian,
Welcome to our neck of the woods. I am another who is helped with hydrodistentions for up to 6 months. I hope you find relief soon.

Hugs and :welcome: ,
Barb :grouphug:

[theclownster]

Welcome to the Boards Brian! I'm sorry to here you have IC - I hope your upcoming treatments help you tremendously. I've never had the hydro, but I do well on the meds and IC diet.
Best wishes to you as you explore your treatment. Keep us updated when you can.

Take Care!
Jennifer

[Amyinagony]

Another :welcome: Brain,
I too hope the cysto w/hydro works for you. Having the diagnosis is more than half the battle for many. I hope that you find the treatment plan that works for you SOON.
I also find it really hard to go to places that have parking lots bigger than two football fields and that are BLOCKS away from the event, meaning you are a long ways away from the nearest restroom. Places like Fairs, NASCAR races and such. I think I may ask my doctor about getting a handicap parking permit for such large events.
Wish you the best with your Cysto w/hydrodistention.

[Lancerdad]

The one thing I sure notice is everything I do is based on where the nearest bathrooms are!

Brian (Lancerdad)

[sleepyangel30]

The distention work for me it helped me so much.

[traceann]

Hi and welcome Brian from one Michigander to another!!! Glad you found the boards and hope to "see" you around!!!

Hugs,
Tracey :)