Been away from the boards for a while!!

[debzx]

Hi

I had Cystistat instills and basically thought i was cured!!Lol i had almost 5 months of symptom free life apart from the odd twinge!! and then BANG!! its back with a vengence BUT alot worse!!

i have had a terrible 2 weeks of almost constant symptoms!! think maybe worsened by certain foods Ie i love chocolate!! and fruit!! am so sore and stingy!! and bloated and achy!! i get home from work have a bath and hit my bed!! nstead of a 40 yr old i feel 60ish!!

Called my Uro who has made an apt for next month and will restart the instills BUt in the meantime my new foolish doctor surggested cranberry tablets!!/ cranberry juice!!

I have stopped the fruit and am struggling with the chocy!!!

feel that lifes on hold in a way totally fed up and have a feeling i also have Fibromayalia and am waiting tests!! what next ha!
any tips on foods

debzx

[Dixiefireball]

well with I.C the last thing you need is cranberry juice. I don't know about the pills but personally i wouldn't touch them with a ten foot pole.

Good Luck hon. you will go back into remission
sending you hugs and prayers
Rhonda

[Katrina]

foolish is a kind statement for that doc is he thinks you need cranberry juice. Tips on food
1.2. Food Avoidance
1.3. Avoid tomatoes
1.4. Avoid spices
1.5. Avoid chocolate
1.6. Avoid caffeine
1.7. Avoid citrus beverages
1.8. Avoid acidic foods
1.9. Avoid artificial sweeteners
1.9.1.
1.3 Alkline Diet
Atkins diet http://atkins.com

To drink maybe try a herbal tea

a. Marshmallow rooth (soothing to mucous membranes)
b. Mullein (soothing to mucous membranes)
c. Confrey leaf (soothing to mucous membranes
d. Aloe Vera (soothing to the intestines and mucous membranes)
e. Acidophilus (soothing to stomach and intestines)
f. Flax Seed Oil (Soothing to the intestines and any inflammation)
g. Glucosamine Sulfate (soothing to the joints)
h. Vitamin E (soothing to mucous membranes)
i. Licorice root (soothing to mucous membranes)
j. Slippery Elm (Soothing to mucous membranes)

Not sure you can find them all in tea form but they are soothing so more easily tollerated by us.

Hope you feel better again soon!

[hisjenn]

welcome back to the boards, sorry to hear that you are having trouble again, but your 5 months of symptoms free much have just been heavenly... your few months are very inspiring for me!

i do hope you find some relief while waiting to get in to see your urologist.