is this right

[adrie]

I am lookin for anyone who has had physical therapy for PFD. I had second session today and she wants me to do "the pelvic clock, kegel excercises and some stretching. My concern is the kegel excercises which I have heard is the worst thing for an IC patient. She said she only wanted me to get to know where those muscles are and that is all the kegel excercises will be used for. Is this right? Do I have a good PT? Also can anyone tell me if they have ever used straight mineral oil for constipation? I bought some to day to try. My next option will be to do weekly enemas for constipaption. Thanks to anyone who responds. :help:

[Katrina]

I have heard kegal excercises I bad for IC too! I did physical therapy for PFD and just did tighten relax excercises with my musscles.

Have you been tested for Crohns or Colitis??

I take aloe vera gels from Spring Valley for constipation. I always have to be careful though with how I treat it since I could easily have diarhia instead.

Anyway it has: vegetable oil, gelatin, hydrogenated Vegatable Oil, Silicon Dioxide, partially hydrogenated Soybean and Cottonseed Oil, White Beeswax, Aloe vera gel in it.

I would hagte to have to use a ememas weekly...I have done so (more often) before at one time and would hate to go back. :grouphug:

If I were you I would research PFD with IC. http://www.ic-network.com/iclifestyles/april02.html I can't be sure if your Physcial Therapist is good or not...but if you are well informed on the best treatments for PFD in relationship to IC than you can better judge. :grouphug:

:kiss::kiss:

[adrie]

Thanks for your input. I have been tested. I did the mineral oil last night. Just one tablespoon with a drink and it worked wonderfully and quick. I didn't have any cramping or diarhea and my huge bottle only cost $1.44.

[Katrina]

That is great....no negatives than? That is a great cost! Good luck with therapy!

[SaraJ]

My PT has me doing an opposite kegel - I do a deep breath from my abdomen and then roll my legs outward from the hips to the feet. This does a hammock kegel - it pulls the hammock from the top instead of the bottom - it minimizes the bladder spasms that can be cause by kegels from the bottom. I have had a hysterectomy and I really can not do the other kegels - it causes horrible spasms - bladder, muscular and bowel. I also have a horrible problem with meds and constipation, but since I have been off all the meds - I found out i have crohn's. Crazy, huh?

[traceann]

Just a question on the mineral oil, did you take the tbsp, then drink or put it in the drink, might sound like a stupid question, sorry about that, lol, but sometimes I would like an alternative to my dreaded Milk of Magnesia, blech....lol

Thanks,
Tracey :)

[DanaW]

I also had my first treatment. I had to insert a tampon like contraption and she hooked it up to a computer. Apparently, even when I think I am relaxed my muscles are not. I should be at a 0-1 and mine kept peaking at 4-5. (it never goes down past the 4-5) -4 Then, she had me tighten that muscle and try to hold it. She said it took me 4 tries to tighten it up enough but, I could not keep it up there. It fell pretty fast. Then, she had me do some deep breathing and relaxation. At first she wanted me to practice tightening and then holding a few times, then, relaxing for 20 minutes each day. (at home) But, then, I asked her if that would cause a flare if I did that right off the bat. So, she said to just do the relaxing 20 min. a day for 3 weeks. I felt better about that. I was really sore for a few days just from that first session. I am going to ask her next time how many IC people she has seen. It isn't that I don't trust her, it is just that I have pain 24/7 and she may not have anyone like me. Just people with frequency, urgency and some flares.....How often do other people go to their therapy??? I won't be going but, every 3 weeks and then, only for about 4 sessions...?

Dana W.[COLOR=DarkOrchid]