Lupron for Endo - how does it effect your IC?

[HGC]

I have endo as well as IC. My gynecologist would like to start me on Lupron. I don't think it is something I want to take but I was curious to know how others who have endo & IC have done on it. Does it make your bladder symptoms worse?
HGC

[Babs RN]

Unfortunately I wasn't dx with IC when I was on Lupron, but it worked quite well to shrink my endometrial implants prior to my hysterectomy. Got some side effects like vaginal dryness and headaches, but the pain relief made it worth that.

Hugs,
Barb :grouphug:

[holles]

i developed IC while i was on lupron. that's one of the reasons (among a myriad of others) i had to stop halfway through the 6-month treatment.

do your research. my bladder was fine until about 6 weeks into the treatment. then i couldn't urinate, and i had blood when i did. went another 6 weeks seeing if it was infection. then finally stopped, did another lap (endo had returned during treatment), and had a cystoscopy at the same time.

i personally am not a fan of lupron.

[ICLori]

I was given Lupron to try after I developed IC, because I had had endometriosis too and they wondered if it could be endo of the bladder causing the painful bladder symptoms.

At first, the Lupron made my IC symptoms much worse. After the first two weeks, though, my IC did get somewhat better than normal, but...I got such horrible hot flashes which kept me awake all night long, that I really didn't experience any improvement in quality of life whatsoever.

I hope you have good luck with Lupron and other treatments you try.

Blessings, Lori

[Katrina]

I found Lupron to be helpful to my IC. It is a drug worth researching though since it can be dangerous.

[tjackson]

I too have endo and IC, and just started (3 weeks ago) the Lupron injections. So far, so good. I have had the hot flashes and sleeplessness, as well as being somewhat agitated most of the time. I'm hoping some of that will level out. But as far as my bladder, no change yet. I should mention, however, that I did not even know I had IC until my lap for endo, when they found it. Obviously, my symptoms are mild in general so the lupron may effect someone else with higher sensitivities more than it would me. I am also doing the add-back pills, and they haven't given me a problem yet either.

If you want to ask me anything further, or want to compare notes after you begin the lupron, PM me.

[Katrina]

Do research the drug....I hear a lot of bad things about it ....not really regarding IC but makes me thank the Lord it didn't affect me that way.