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StaceyK
03-22-2005, 06:42 AM
Hi,
Recently diagnosed in early March. I'm 33. Only really have frequency issue especially at night which started is Sept '04 after receiving from upsetting news from a family member. Never had UTI before. Went to PC in Oct put on 3-day antibotic even though not a UTI but though something might be brewing. Back again in Nov, actually had a UTI and the CiproXR they put me on made me feel like I was in mental fog, back again end of Nov as stressed out/felt like in mental fog and BP through the roof, put on BP meds sent for test -- thyroid, urine, etc. All fine. Back last week of Nov -- BP better on meds, still in mental fog put on prednisone as they some fluid buildup in my sinuses. Back two weeks later, now Dec, put on Effexor -- anxiety med and recommends I see uro. End Dec, Go to uro even though in the two weeks before appt no problems only getting up once during night to pee. Uro does pelvic exam -- that night frequency starts again. Call to see uro but he is on vacation so I see covering uro's PA (last week of Dec). PA listened, put me on Detrol (worked here/there), sent for x-rays where they do the radioactive IV, all fine, next is cystocopy end of Jan, uro says I'm a 2 on a scale of 1-10, switching OAB meds to try for three weeks (worker here/there), called back 3 weeks later changed it again (not any better) back to PA early March did test for IC and started Elmiron, bladder installs and Zyrtec. Only have had 3 thus far. Took a week off of bladder installs as I was on vacation -- not drinking much water while on vacation but other beverages/food and only got up approx 2x a night. Now started seeing nutritionist last week as I've read it could be foods (PA doesn't think so) not to mention I have turned to food for comfort in the past months and gained about 10 pounds. Nutritionist suffers from IC (Sharp pelvic pain) but doesn't do meds/treatments. She recommened Ester-C, multi, calcium supplement (I'm lactose intolerant), glucomine/chrondinne w/MSN, Prelief and watching foods you eat. Have only had a few nights recently of achy pelvic pain but past week bouts of anywhere from 2x-6x getting up during night. Never had pain during sex.

Any advice for me?

traceann
03-22-2005, 07:20 AM
Hi and welcome Stacey! For me, the foods play a huge role in how I feel. Now, granted I am on Elmiron, Ditropan, and Vistaril, but the diet is a key tool for me. It helps me to manage what the meds might "miss", lol. I used the food list here on the site, here's a link to it for you if you haven't found it already:

http://www.ic-network.com/handbook/diet.html#list

Glad to hear you are seeing a nutritionist too, because I again really think it most cases, diet plays a huge role. There are some that food doesn't really affect, go figure, in this disease, everyone's different. For me though, the foods I eat do affect me. But I have found out that there are alot of foods I previously didn't think I would ever be able to eat, but through the process of trial and error, I have discovered I can. I am still working on finding my trigger foods, it's a slow process, but very worthwhile, I believe. So hopefully you and your nutritionist can work on finding what works for you and what doesn't. (and for me different foods trigger a different reaction -- some might just cause my frequency to go up, and some might just cause a lovely bladder ache, depends on the food)

Again, just wanted to say Welcome to the boards and hope to see you around!! Take care!
Hugs,
Tracey :)

Dixiefireball
03-22-2005, 09:47 AM
yes hon it can very well be the food you're eating or the drinks your dranking it can cause bad bad flares please see www.ic-network.com/handbook this is a great site to find out what is safe and not safe its the i.c diet however remembers it not written in stone so when you find out what is safe and not you can start adding a few things back little by little.
it takes a while to get use to the i.c diet but is very wroth it.
also on that site it has updated treatment on i.c

Sorry you been threw the run around so much.
sending you hugs and prayers
Rhonda

b.t.w. :welcome: to the ICN family

Katrina
03-22-2005, 11:41 AM
:welcome:
She recommened Ester-C, multi, calcium supplement (I'm lactose intolerant), glucomine/chrondinne w/MSN, Prelief and watching foods you eat. Have only had a few nights recently of achy pelvic pain but past week bouts of anywhere from 2x-6x getting up during night. Never had pain during sex.

Ester C is good idea....I take a kid multi vitamin....easier on the bladder, cacium suppliment good idea too. I also recommend the IC diet which you can find in the handbook. Elmiron is good to start...do you know what the drug you are having instilled???
I found out I am lactose intollerant too...and am taking Lactaid these days.
http://www.ic-network.com/handbook/ this is an essential link for everyone with IC. It is very informative on meds, living with IC, and self help....take a look!!!

http://www.ic-network.com/forum/showthread.php?p=90935#post90935 Newbie kit from the oldies to the newbies
http://www.ic-network.com/forum/showthread.php?t=7562 this link is a pain managment post.
The second page has 4 attachments...the last one is a list of ideas for IC pain.....take a look if pain is problem for you.
__________________

:grouphug: I hope you feel better soon!

StaceyK
03-23-2005, 07:42 AM
Thanks for the advice. Saw my nutritionist last night and are working to id the trigger foods. I'm sure it will be a slow process but on a positive note I've lost 3 pounds in one week. Yeah. This site is very helpful. I can say my IC isn't nearly as severe as others from the stories I've read so I am thankful for that. :)