Jaxie
03-03-2004, 04:21 AM
Hello Everyone
Well, I have had IC for a year and a half and I can't believe this is the first time I am writing here. I have read many of your messages and want to thank everyone who works to make this such an informative and supportive place to turn to. I think I am finally posting this message because I realize that I do have IC and will probably have it for the rest of my life. I was in denial for a very long time.
Well, I'd like to share my story and would love some advice and guidance from some you. I am 27 years old and first began symtoms about three years ago. Just bladder infections. Then, in June of 2002 it all began. Three weeks before my wedding this nightmare began. My symptoms did not start out slow or gradual, they cmae on pretty strong from the beginning. I went through the same run around most of you went through. From being told I was just a nervous bride to being brushed a side by doctors. I have been on many oral meds including elmiron, hydroxine, ditropan, elavil, etc. None of them worked. I live in NY and even went to see Dr. Moldwin. I was sent to Physical therapy for pelvic floor problems but nothing was helping. My symptoms were very bad pain in my lower abdomen- right in my bladder and some frequency. The pain is what I need help with. Anyway, as nothing was working a little miracle happened in my lofe. I got pregnant!!! It was not planned but it was the best thing that could have happened at that time. My symptoms improved greatly during my pregnancy. The pain had decresed tremendously and I could expand my diet too. I had a good pregnancy and had a c section. My baby boy was born in Jan. and I was doing well for about a month after. Then, it all came back. It's like I was almost afraid to tell people I was doing OK in fear of jinxing myself. And I did. Sooooo, now I am seeking treatment again. I honestly feel that my pain is either in the bladder or from nerves in or around it. I am thinking about installations or the hydro - both of which I have not tried before. I am getting really scared and desparate. It was different before. I could go to work and come home and lay down. Now, I have to take care of a little baby and I want so bad to be a good mom. It's so hard getting up in the middle of the night and being in such awful pain. I am really scared and I am determined to get this under control. Please, if you have any advice please respond. Thanks to you if you are still reading this long message!!!
Jaxie
Well, I have had IC for a year and a half and I can't believe this is the first time I am writing here. I have read many of your messages and want to thank everyone who works to make this such an informative and supportive place to turn to. I think I am finally posting this message because I realize that I do have IC and will probably have it for the rest of my life. I was in denial for a very long time.
Well, I'd like to share my story and would love some advice and guidance from some you. I am 27 years old and first began symtoms about three years ago. Just bladder infections. Then, in June of 2002 it all began. Three weeks before my wedding this nightmare began. My symptoms did not start out slow or gradual, they cmae on pretty strong from the beginning. I went through the same run around most of you went through. From being told I was just a nervous bride to being brushed a side by doctors. I have been on many oral meds including elmiron, hydroxine, ditropan, elavil, etc. None of them worked. I live in NY and even went to see Dr. Moldwin. I was sent to Physical therapy for pelvic floor problems but nothing was helping. My symptoms were very bad pain in my lower abdomen- right in my bladder and some frequency. The pain is what I need help with. Anyway, as nothing was working a little miracle happened in my lofe. I got pregnant!!! It was not planned but it was the best thing that could have happened at that time. My symptoms improved greatly during my pregnancy. The pain had decresed tremendously and I could expand my diet too. I had a good pregnancy and had a c section. My baby boy was born in Jan. and I was doing well for about a month after. Then, it all came back. It's like I was almost afraid to tell people I was doing OK in fear of jinxing myself. And I did. Sooooo, now I am seeking treatment again. I honestly feel that my pain is either in the bladder or from nerves in or around it. I am thinking about installations or the hydro - both of which I have not tried before. I am getting really scared and desparate. It was different before. I could go to work and come home and lay down. Now, I have to take care of a little baby and I want so bad to be a good mom. It's so hard getting up in the middle of the night and being in such awful pain. I am really scared and I am determined to get this under control. Please, if you have any advice please respond. Thanks to you if you are still reading this long message!!!
Jaxie