Even Worse

[Dani72]

Hi guys,
I had my cysto/overdistention/biopsy on the 21st. I wrote on the boards that I wasn't felling any better. Well first the uro put me on ditropan LA and then I couldn't urinate. So I stopped taking it. So I started going every 5 minutes again. Then on Sunday, I could not urinate at all. So I had to go to the ER. They cathed me and now I am sitting here with a catheter in me and they put me on Flomax. And you know the uro never even returned my phone calls? I have had 7 cystos and the yeah I had a little frequency and urgency and pain for a few days but this is ridiculous. They have always helped my symptoms greatly. His nurse says it is really bad because of the biopsy. And the most unbelievable thing of all is that he says I don't have IC because my bladder capacity is fine. This after being diagnosed by 3 other uros as having a severe case of IC. So he is waiting for the results of the biopsy and then he says I need to see a gynocologist. Obviuosly he is just trying to blow me off. He just wanted to do his procedure, make some money, and go on his trips out of the country. I guess I am kind of venting here, I am just so ticked off and hurting and I want to rip this catheter out so bad. :headbang: But for anyone reading this who is going to have a cysto, please don't get scared. If your uro is knowledgable and kind and caring, please have it done, like I said my other ones have helped my symptoms greatly. I think this uro was just in a big rush and bombarded my poor bladder. Please keep me in your prayers,that I recover quickly, I have a 5 year old daughter to take care of (I know alot of you do too and your in my prayers) and she sees this bag hanging off of me and she is really scared. Thanks for listening.
Big hugz :grouphug:
Danielle

[ICNDonna]

How long will you have the catheter? The Flomax should be working enough very soon so you can get rid of the catheter. I hope you feel better soon.

:grouphug:
Donna

[liznazz]

Have you also been checked for UTI? I had a BAD one after my cysto/hydro. Hopefully you were put on an antibiotic.. liz

[Dani72]

I have to have the cath in until Friday morning. :cussing: It makes me feel like I have to pee even though the urine is draining out. They gave me antibiotics after the procedure, but Friday I am going to request more, because I am sure having this in so long is bound to bring on an infection.
P.S. Does anyone know what Flomax is for?

[Babs RN]

Flomax relaxes the smooth muscle and the bladder neck.

Hugs,
Barb

[Dani72]

Barb,
Is that why I have the feeling of having to pee down by my urethra? Or is it from the cath? I didn't have this feeling yesterday, and today is day 3 of the FLomax.
Love,
Danielle

[Babs RN]

Danielle,
It is probably from the catheter itself. Depending on the lumen(size) of the catheter, there is a balloon that is filled with sterile water to keep the catheter in your bladder. The sensation that people commonly have is that they have to go, or that they are going to pee around the cath.

Hugs,
Barb

[Amyinagony]

How would you have 3 other Uro's diagnose IC and this one not? That doesn't make any sense to me, and the bladder capacity isn't what diagnoses IC. He biopsied something...make sure you get your hands on a copy of the report (you have the right to a copy), if he blows you off. If he blows you off, I would request a copy of your entire chart from his office.
I had 3 Cystos w/bladder biopsies done from a Uro, (you should see the new car this Uro has, thanks to the money he made off of me),they all came back saying "chronic inflammation consistant with IC" and he still never diagnosed me with IC....go figure?? That Uro missed the 8 ball!!!! I wasn't smart enough back then to know. But when I got my hands on those reports (after being diagnosed) and saw that...I was SOOOOO MAD!! I went through years of unneccessary suffering. My GYN that is treating me now saw that and was ticked off too!!
I had indwelling catheters too. They are HORRIBLE!!!! And I understand that to be really bad for pts with IC. They severely irritated me even more, had bladder and urethra spasms like you wouldn't believe. After Cystos I cannot urinate on my own due to BAD bladder spasms. This also happens to me when I have big flares. With my Physician now, I have learned to straight cath myself with a tiny little catheter. MUCH MUCH better!!! Even now, I don't always empty out all the way and when I do my own instillations I have to straight cath what meds I can't pee out.
I REALLY feel BAD for you with that catheter....I am SO SORRY.
I sure hope you find a better doctor. I sure would NOT stay with an idiot like that. With him sending you back to the GYN, please be careful there....I was misdiagnosed with a GYN problem, had a total hyster only to find out years later...it really was IC. PLEASE, PLEASE BE CAREFUL

[ICNDonna]

I have had a foley catheter before and it's not comfortable, but not horrible either. When I have had one in the past, my doctor's nurse tapes the catheter to my leg so it can't pull when I move around. The way it is taped is to pick up the catheter at just above my knee, then move it up about three or four inches so it isn't tight, then put a little tape over the catheter so it can't pull.

It's no fun to not be able to urinate. Hopefully the Flomax will relax those muscles so you won't have any more problems once the catheter is removed.

Donna