Exact same spot pain?

[tjackson]

Hello all....I have been recently diagnosed with IC and am having pain which recurs in the exact same spot. It's to the far right, about an inch below my hip bone.

I have 2 questions:

1)Doesn't that seem too far away from my bladder, without any "connective" pains toward the middle?
2)Do any of you have a particular "sharper" pain that recurs in the exact same spot?

I'm wondering if this is IC pain. I had surgery in Jan. for endo (stage 3) and my appendix was removed then also. I'm wondering if the spot is where the appendix was or if an adhesion could be forming there. Or if it's just IC pain.
:confused:

Any comments would be appreciated.

[Babs RN]

Tish,
You can have referred pain with IC. My pain radiates to my back, groin pain, and thigh pain depending on how evil it is(the IC)at that point in time.

Hugs,
Barb

[tjackson]

BabsRN, I knew that IC could affect/cause pain outside of the bladder, but this just seems different somehow. I also get the thigh pains.

Does your pain recur in what seems to be the exact same spot, over extended periods of time? Or do you have one spot that is triggered first, to maybe warn you when it's going to get worse?

[Thoney]

The way my Uro explained it to me, was that you can feel pain almost anywhere, because the ****** off nerves in your bladder are sending off signals to your brain, and because everyone is different, are brains are telling us there is pain in all different kinds of places.

I get severe flank (kidneys, both sides) pain and really bad lower back pain, and of course pelvic pain...always!!! Most of the time from hip to hip I feel like I'm on fire and swallon, not to mention the spasms...I could go on and on... :) But I won't.

As Donna always says....if you have a new symptom, get it checked by a Doctor, because you never know, it might be totally unrelated to IC. Better safe than sorry!

Oh and to answer your other question...I always have the pelvic pain, but if my lower back starts hurting...it's time to lie down with the heating pad, because then the flank pain will come and I'm in for it BIG TIME!!!

Hang in there Baby!!! :bonk:

[Babs RN]

My above baseline pain deal starts barely above my bladder. In the meantime the other constant pain is my left flank and lower back. By the time it gets to my groin area, I look for alot of fun.

Hugs,
Barb :bunny:

[tjackson]

Just renewing this post, hoping for more replies...

[donutgirl]

Hello Tish. I understand your question and can relate. Believe it or not I had a hysterectomy when I was 29 for Stage 3 endometriosis...I'm now 49. With the IC I get pains that are so much like what I had with the endometriosis. There IS a spot that seems to be the exact same spot I always complained about 20 yrs. ago. In fact, I started with those pains before my bladder got so bad last year that I was diagnosed with the IC. Seems weird that we are having pains that relate to other problems we have had. But..... you know people who have had amputations have what they call "phantom pains". I knew an elderly lady that had severe phantom pains even though she had to have her leg amputated. So....what Traci's doctor said seems to make sense. If we are suffering and everthing in the area is inflammed and painful, then I guess those "related" nerve areas kick in again.

Hope that makes sense...
DIANE

[tjackson]

Thanks everyone for your replies.

So are we saying that we think that "referred pain" recurs in the exact same spot?

Perhaps the referred pain triggers certain nerves over others, so it seemingly hurts in the exact same spot over and over...? For me, like Diane said, it could be phantom pains from the removal of my appendix.

I was just curious as to how many ICers have a recurring pain, referred or whatever, that hurts in what seems to be the exact same spot, or if it is more vague than that, occuring in a general area rather than an exact spot.