I am new ..going in for the first part of stim

[steffyb]

:) Hello I am stefanie, & I have a few questions regarding pain management after the after I leave from the hospital for the trial part of the interstim surgery, do they send you home with a script for pain meds or do they just give you stuff there? also after the trial run & I have success , & do the next step for a permanent stim what does it feel like , I am getting no sleep & my boss thinks that noone shopuld be in the bathroom as much as me & nobody understands what it is like, you guys do but others in general. this past june I had brain surgery for an acm1 ( arnold chiari malformation ) the malformation was sooo bad that it was very compressed at the base of my skull so it was bolcking the csf flow & causing very bad symptoms , I feel that ever since this surgery I have had a bladder problem, never before have I had anything like this I am 31 & a mother to two girls , & a wife to the most amazing man on earth, he has been a saint through all of this, but at times I feel like a failure :shake: I have been put on lexapro for my depression during all this , & I love my uro he is a godsend & I have complete confidance in him but I am scared ......sorry for all the rambling but I have so many things to ask & say anyhow any info will help & many thanks in advance, Stefanie

[Dixiefireball]

I'm sorry I don't have any answer for you because i don't have the stim but there is others here that does that i'm sure will be bye shortly to help you out.
all i know about the stim is it isn't for pain anyway shape type or form.

I wanted to :welcome: you to the icn family and wish you luck and send you prayers for your up coming surgery. Please let us know how you are you will find here that we do care very much about each other.
in the mean time you may want to check out www.ic-network.com/handbook this has the i.c diet there that has helped many icers it also has updated information on treatments for i.c you may want to check out.

I'm so very sorry you been threw so much. I do hope things get better.
sending you hugs and prayers
Rhonda

[dancemomof2]

I just went through this procedures myself. The trial I realy needed no meds, but was given pain meds. I took a few after I tried to do to much to fast with my baby. The permanent implant did hurt a little more and was a rough few days but I was so excited at the results, that a little pain was worth it. My voiding went from 10 times at night to 2-3, and daily 60 trips is down to every1-2 hours. I tis a huge decision to make and am sure you have done your homework. This will do nothing for your pain, just urgency/frequency. Keep us posted.

[steffyb]

I understand it is not for pain I am concerned about the pain afterward, I am up at least 6-7 times just at night while trying to sleep, let alone the other 30-40 during the day that is why I am having this , my uro said to me this is my last resort , we have tried ditropan, dertol, ddavp, & now he has me on atarax & pyridium plus they do help but jeesh I am going through a case per week of toilet paper :) getting very annoying as I am sure you all know , well anyway I am still nervous about this and I relize everyone is different but just the same I wouldnt mind everyones thoughts, smiles to all & thanks for the warm welcome........Stef

[steffyb]

I also forgot what does it feel like when the first procedure is being done? as you all may be able to tell I hate pain & I have had to deal with alot considering I had brain surgery a short time ago . I just want to know if you aware that something is being done & if they do conciuos ( spelling sorry ) sedation will I just be to out of it to notice? I am sorry for sounding like a baby , it probably sounds as though I dont want this done lol , but hey what do I have to lose ......Have a good night , Stef

[dyno]

Steffy, I see the different meds you have tried. Have you tried any installations or Elmiron? How about the diet that Rhonda mentioned? Make sure you really investigate the Interstim before you agree to it. It can help some people but it also has caused further problems for others. It is so important to fully understand all the ramifications of it before you get it done. If you feel there are more treatments you can try and your current Dr. won't help you, maybe think about a new uro. Some of these medications can take 6-12 months to know if they are helping. Also the installations can take time to work too. Good luck in whatever you do, just wanting you to make sure about your decision since you sound a little apprehensive.

[ktrncl]

I have had the temperary done 3weeks ago and its really not that bad they will give you medicine where you are relaxed you really wont know whats going on even though you are awake I know that sounds weird but you wont be in any pain until you get home and they give you pain meds. but I didnt have to use them a lot because it wasnt as painful. But I had the permanent one in for 6 days and its a little tougher than the temp. I am still very very sore and I stayed quite sick for the first 4 days dont know why but I still get sick some still its not the meds either I tested it the other day so not sure what thats about. But I was more aware of the temperary implant more than I was with the permanent you will not feel noithing while there doing either procedures on you so dont worry about he pain while your in surgery .

[steffyb]

Thank you soooo much everyone !!!! I have tried everything , I am aware of the ramifications although how long before I can go back to work I would like to get back asap assuming I am feeling up to it , I have had alot of things this year & I think I am tuoghening up LOL , I still cant beleive I had brain surgery only 7 months ago I its like a blurr , well you guys have been so nice to respond to me I really appreciate it Hope every one has had a good week end , I have kind of just layed low plus it has snowed again( yuk ) anyway pray for me while I under go this trial friday , thanks, Stef

[Shelia H]

Hi, I am having my temp put in on March 28 and was wondering about a few things I have read..I read that when u operate a vehicle u have to turn it off and that when u enter stores with theft devices it will set them off also...can anyone help with these questions...i have also read that the secodn stage is more painful...I was told that I could go back to work the next day after my trial implant..but none has said how long I will be off work after the 2nd stage...nay help u can giv ewill be appreciated..
Thanks,Shelia H