Not yet diagnosed but need to vent

[George]

Hi All,

I've been diagnosed 6 months ago with prostatitis but I really do think I have IC and not prostatitis. I'm waiting for a second opinion from a urologist next week. My bladder biopsy from cystoscopy showed "chronic cystitis". I've been on antibiotics, and nothing has helped. I'm using the bathroom every hour and sometimes more during the day. Am having bladder spasms at times and mainly have pain in the urethral area but can feel pain in the bladder at times. During the night I'm up 5-6 times. I'm just so frustrated and am ready to burst into tears because I just can't handle this anymore. I really just need a shoulder to cry on at the moment and trying to find some hope. I am really feeling despair at the moment. Have started the IC diet but have not noticed anychange at the moment. I am just so tired and want to give up. I am trying to hold down a job, but being in the toilet every hour is really starting to become noticeable that I am not at my desk.

Don't know what else to say. My life is in the toilet at the moment and I am just holding out some hope that my new urologist may be able to do something more.

Thanks for listening.

George

[yvette]

(((((((((george))))))))))) I truly feel for you....i think there are lots of us who have felt the same way you do. Hang in there....have hope, and persevere....There are MANY SHOULDERS here... :)

Gosh I know its hard. Do you have any medication you could buy at the pharmacy...like Uristat or Azo...they can help with that urgency/frequency on those really unbearable days. Or you may be able to buy them online from a reputable drugstore online....altho shipping charges may be ridiculous.

Perhaps ask if your uro can do a Cystoscopy with Hydrodistention under anesthesia....if there's tiny, tiny, rips in the bladder wall (that bleed) that may give you the IC diagnosis you need. Of course, you may have to ask gently (some doctors may have egos -- and no one likes to be told how to do their job. :ignore: )

[sleepyangel30]

George I'm so sorry. I've been there I know how it feels believe me.... I went through 7 months of hell with IC last yr thats when mine first started. By the way.. You should try the Uristat or Azo it may help you. I know the Azo help me alot when I'm having a burning flare. Anyway... If you need someone to talk I'm always here you can email me at sleepyangel30@hotmail.com I will keep you in my prayers :)

[George]

Hi Yvette,

Thanks for your reply. I really do want to ask the new uro for the cystoscopy and hydro. My previous uro kept insisting that I had prostatitis and I kept telling him that I don't have any pain in the prostate :headbang: but he kept ignoring that. Anyway I am hoping my new one will at least have some knowledge of IC.

Regards

George

[George]

Thanks SleepyAngel for your thoughts and prayers. I do appreciate it.

George

[Stephanie2004]

About the diet not helping - I followed the diet for about four months before being diagnosed (last week). I would have sworn it wasn't helping until my GP put me on an antidepressant (at my request) to help with the pain. That cut my pain way down, and then I started to notice that food indiscretions really did affect me. Once the huge, constant flare up was semi-controlled, the pattern became easier to see. Before, I couldn't see the forest for the forest fire.