My final diagnosis is here

[rdo801]

I had my Hydrodistention & Biopsy done yesterday and now i'm here in bed trying really hard to get back into the swing of things with work. My doctor is very arrogant and i never got to talk to him, but my husband did and he told him that it's a "classic case of Interstitial Cystitis" Did you know we have classic cases? I woke up in horrific pain and they gave me 4 shots of demerol and then 2 loritab and I was still not able to calm down. The first time I went to the bathroom was by far the worst pain I've ever experienced. It was off the charts. The good news is that my pain is under control today and about where it was before I had the procedure. I still can't stand up, but I'm optimistic that I will be able to soon.

So I guess it's official. I've been in denial and wishing so bad that I didn't have this dreaded bladder disease, but now I can't live in denial anymore. I sat and cried pretty hard last night. I guess despite the fact that I've known all along that i had this problem I wasn't fully accepting or believing that it was real because it wasn't "officially diganosed" yet. Now I have no excuse to not follow the diet, or persue treatment.

My two little boys are at a babysitter today and I miss them, they are what keeps me going and bring me to life. I told my husband that I was fine and they could stay with me but he didn't believe me and took them to our neighbors house anyway. They are 2 & 3 yrs old and quite handfuls. I also have a 12 yr old but he's at school. He has been such a great helper.

Rikki

PS-I have some great photo's of my bladder also. What do you think-should I hang them in the living room? he he sorry I have a sick sense of humor today

[ICNDonna]

Being told you have a "Classic" case of IC is just a term meaning that you showed all the usual signs of IC.

At least now you know, and as you say --- you can get on with treatments. I think it's good that you will have a quiet day today to rest without having to run after two toddlers.

Sending warm healing thoughts,
Donna

[Babs RN]

Rikki,
I am the mother of a 4 year daughter and she keeps me going, I think you are a saint with 2 that close together in age. They're blessings anyway, and I know Lindsey makes me smile on the worst days, and an "I love you Mommy" is the best. I also know how hard it is to take care of toddlers with IC. I have had days that I have felt horribly guilty because I feel like a bad Mom for being sick and no matter how many times I suck up the pain and take her to the park or for a playdate I still feel like I'm not doing enough. She does go to preschool 3 days a week. Once again I have fallen off my train of thought so let me hop on board again. Take care of yourself. If people offer to make dinners and bring them over take them up on it. If someone offers to watch the kids, take them up. You may be there when they need help. Just some ideas...I tried to do it all, and being a Mom is hard enough. Let yourself heal. Know that we are all here for you in the great times, and in the times when you need a shoulder to cry on that understands exactly how you feel.

Hugs,
Barb :hi: :smile tee :flower:

[vm]

{{{HUGS****** It stinks to have IC, doesn't it? :( But, if we have it better to know and get on that road to feeling better! Knowing was the best thing for me b/c it meant my uro would explore the treatments for IC --- and that led to me feeling so much better.

Grieving is part of all this, though. Be gentle with yourself. :kissing:

[rdo801]

Thank you all for your kind words of encouragement. My boys are home with me now and my 12 yr old is home sick with a fever, so the fun never stops here! lol

My bladder starting bleeding again yesterday and I wondered if it was because I got dressed and functioned as if I were normal yesterday? Sometimes I want so badly to be well that I push it when i know I shouldn't, just so I can hang on to some sense of normalcy. if that makes any sense. It's stopped bleeding today and I'm drinking some comforting Marshmallow root tea and putting my feet up while I can.

Thanks again for making me feel right at home here and for making this journey seem not so desolate and alone.

:)

Rikki

[IC SARAH-CPP]

I have that same problem and almost got myself in trouble when I had my cysto w/hydrodistention and biopsy, last week. I kept trying to get up and move around and do housework, but then I would get this horrific pain that put me back in bed. My uro scolded me saying, " I told you bed rest for two days!!" My problem is that I always feel really guilty for just laying around while everyone else is so busy. I am trying to learn to take it easy though. To heal, you really need to rest.
Now, on to the horrific pain I had from the cysto. Did you have that?? It was so bad. My bladder was bleeding too and everytime I went to the bathroom, I felt like someone had inserted a knife in there. It hurt SO bad!! My uro told me he thought it would hurt for a couple days, then I wouldnt even feel it. Well today is day 8 and I am still in so much pain.
I am glad you have a diagnosis now too. It just feels good knowing you have a reason to be in pain like that, huh??
Good luck to you
Love Sarah