shut the flare up

[sandles]

:loco: This may sound dumb but i have chronic bladder pain and vaginal pain. Is this a flare-up? What does remission feel like?

[~*~Christine~*~]

First of all LMAO to that title XD
Secondly, remission means going a long time without any symptoms of IC, such as no burning, no preasure, no frequency/urgency etc. It feel like you don't have IC and can last for years. I was in remission for 3 years (until last June) and it's wonderful!
Your pain may be IC or an infection, were you diagnosed with IC already?

[stacey79]

Your title is too funny! It made me laugh out loud.

Christine gave you some pretty good information. I just think of a flare as a time when I am aware that I have a bladder! :) I'm always aware, but when I start really noticing it, then I know that things are going on like a flare.

People have different opinions about remission, but I will tell you that I was first diagnosed with IC when I was 14. THe uro wanted to start DMSO, which my parents didn't really want. I saw another uro, but by a year later (after struggling for a couple of years), I started feeling better, so I ignored it. For almost 10 years I lived relatively normal. I had an occassional infection, but mostly I was OK. I could even drink pop and some juices and stuff as long as I didn't overdo it. A couple of years ago, everything came back. I'm hoping for a long remission again! :)

I hope you feel better soon! :kissing:

[jaime15]

Actually any one patients remission can be a week or longer. It would be wonderful to know exactly how to get there (remission) and make it last much longer. The longest remission I've had last for 4 months. It was great not having to buy those meds for that time period!! :)
I hope you get to enjoy one soon, whether it be a week(s) or month(s)!!

[ICNJess]

I am a chronic pain ICer...always have some degree of pain. That is just the way my IC works I suppose.

I had a remission before...and it was like heaven! Very minimal to no pain, frequency and urgency gone. Enjoy it while you can, and make the best of it!!!

Hugs,
Jess

[Betsie]

It cracked me up too and I am too tired to think of a decent response, but loved the humor, intentional or not!!!!!! ROFLMAO!

[Dianne]

Me too. I laughed so hard at this.

[Imustpee]

Christine...have you ever seen Immortal Beloved? It's about the life of Beethoven...Mozart is cool too..I am learning the Turkish Rondo now..I am a piano teacher..

[~*~Christine~*~]

I indeed have seen 'Immortal Beloved' with the lovely Gary Oldman :) I liked his performance but wasn't too found of the film. It's enjoyable but could have been better.
I love the Turkish Rondo! It's such a fun piece to listen too :)

[Imustpee]

Gary Oldman was so handsome in the movie,,,sigh...Beethoven wasn't that lucky..he was quite homely....Turkish Rondo is fun to listen to but hard to play! Hahahhaa..I am still on page 1.... :)

[dawnfawn]

I don't understand this disease I once had a remission for over three years. Then when I started menopause it really came back. Since then I have been on elmiron. I would like to stop taking it though.