01-13-2005, 11:20 PM
I've had IC for several years now and only recently have my systems gotten so bad that they've effectively altered my life (in the negative). I can no longer go on my daily runs, sit through a lecture or sleep through the night without intense pain and urgency. I just started Cystistat instilliation treatments. So far I've felt no improvement (after one instillation). I'm also taking oxybutinin and an antidepressant called Amineurim (German; I live in Berlin but from US). I just read Headache in the Pelvis and I'm quite sure that pelvic floor disfunction is a major cause of my pain, if not the primary or singular cause. After having shucked out 200 Euros already for the first instillation of Cystistat, I face deciding whether to continue with that treatment or pursue the pelvic floor therapy--I cannot afford both. Not continuing with Cystistat means I lost 200 Euros (no small change for me as a student) as the treatment can only work when taken in a series of instillations. It could be several weeks before I start the pelvic floor therapy--I'm not even sure if there is a doctor in all of Germany I could see. In the meantime I'm in lots of pain, unsure what to do. .