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trytosmile
01-09-2005, 11:22 PM
I was diagnosed 7 years ago with IC. To date and three urologist later (one being the best in Canada) and I still have no relief. Treatment after treatment, nothing works. Today I've hit the bottom and I don't know how to pick myself up.

The last year and a half have been very difficult. It all started in Sept 2003 I lost a baby because of this crappy disease and have been medically advised not to pursue another pregancy. I was so sick and the IC symptons where unbearable that the fetus became weak and stress and it just couldn't handle it. I felt like I was dying. I have ached everyday since the lost, feelings of guilt and loss are becoming overwhelming. At the time I lived a hours distance from my boyfriend and family. I was on disability and I'm not likely to ever return back to work so I decided to sell my house and move back to my home town area. I live with my boyfriend and up until tonight I "thought" he was supportive, understanding and caring but after 2 1/2 years I now see his true colors. As I sit typing at 5:00 AM he is yet to come home. I have an idea where he is and it is with a guy that doesn't care about his own girlfriend and influences my partner to be the same. You know men, can't show their soft side infront of another guy. There race sleds and where doing practice runs today so assuming into the wobbly pops and couldn't drive home...hello...ever hear of a phone !

I have been in a horrible flare for a couple months now, my grandmother was put in the hospital last week, I'm in the middle of renovating a century farm house and it has been nothing but chaios since the beginning (which started 13 months ago). I need him and where is he. What I don't need is his irresponsibilities. I can feel the pain increase already. I'm sensing a trip to the emergency room.

This disease has taken over my life and who I was. I think back to who I was and what I did compared to what I have now and it makes me cry. I hurt inside and out. I am not working because of this, I have no social life because of this, I've lost friends because of this and now I don't know if I'm loosing the man I love because of this. Hasn't God already taken enough from me. I want to scream at the top of my lungs. I want to run and never turn back.

Fake a smile, tell a lie, when really you are hurting deep inside.

Thanks for listening

ICNDonna
01-10-2005, 03:32 AM
Jen, if you aren't seeing a counselor, that could be a very good thing for you. When anyone has a chronic disease that effects our lives like IC does, it's just to hard to do it alone.

Sending encouraging thoughts,
Donna

ICNJess
01-10-2005, 05:12 AM
((((((((((((((Hugs))))))))))))))))

trytosmile
01-10-2005, 12:12 PM
Pain worse today thanks to my stress level going up. Got into my doctor for a chat tomorrow. HOpefully he can help.

VickiB
01-10-2005, 03:28 PM
Jen,

I hope you're feeling a little better today. Yes, IC is extrememly tough to do alone! We're here for you any time you need us. We understand & care.

I lost my last baby at five months gestation. Your post brings tears to my eyes over that loss, even though it's long in the past now. Guess it's something that we never really get over.

Please take care of yourself! It seems from your post like you're under a lot of stress, and we know that's not good. -I know,..easy to say! But try to remember that you're important. Friends will come & go (and when they 'go' it's debateable whether they were actually 'friends'!), men can be 'men', and throw in IC and you have a real stinker to deal with. But, none of that defines who you are! I've seen your posts to others, and know you have a kind heart.
Be good to yourself and have faith that better days are just around the corner!

PM me anytime.

Hugs, Vicki