Newly Diagnosed with IC!!

[Christi Chelle]

[[FONT=Comic Sans MS]FONT=Georgia]Hello All!!

My name is Christi I am 22 years old with a wonderful Husband and a beautifull 16 month old daughter!! I was diagnosed with IC in July. I told the doctor that he was crazy, and that there was no way it was possible. I guess I just didn't want to have IC because I was diagnosed with Endometriosis when I was 17. I did not want to deal with 2 different incurable disorders. All summer I remained in denial, until I gave in and came to this website in August. I read about the IC diet and began that immediately. I started feeling a lot better with less flares and less intense!! For a couple of months I really started feeling close to normal again with only a few flares every week and about 1-2 severe flares a month. This was great compared to every day!! So I started to forget the importance of my diet and slowly fell back into the cycle again. Now I am in such intense pain!! It feels like I am urinating razor blades and I get these electrical impulses of pain in my bladder, vaginal and urethral area.

I went to the doctor last week and he did a UA and said it was negative. I will have to admit that I would love to find a more understanding doctor!! He has only prescribed me 40 pain pills since July and is reluctant to refill my prescription. He says he doesn't want me taking any pain pills and I really want to shove something right up his urethra to show him how bad the pain is!! Sorry, I can get a little carried away when I am in a lot of pain!!! He has prescribed me Elmiron but he said it will take 3-6 months before I see any results.

I have started back on my strict diet. My husband is so upset at me and I can understand why. I really want to be the best wife and mother I can be, but sometimes it is so hard to function on a normal level, and I go to nursing school full time and work full time in the emergency room and one of our local hospitals. I barrel through it most of the time; however sometimes I have to take a breather!!

I just always try to remember that God has blessed me with a wonderfull life and he will never give me more than I can handle!!

God Bless!!
Christi Chelle

[dyno]

I am glad you found us. It sounds like you have a very busy life. I am giving you a link to the ICN handbook and maybe something in there might help you some more. http://www.ic-network.com/handbook/
Maybe there is another medication that your Dr. could add with the Elmiron to help you.

There is so much useful information on our site, don't miss the guest lectures. http://www.ic-network.com/guestlectures/
There is a lot of great info in those also.

If you continue to have the bad pain, I would get checked again for a UTI and if it is still neg. then tell your Dr. you have to have something to help with the pain, or find a new Dr. You deserve to get relief.

Good luck to you and welcome. :welcome:

[Dixiefireball]

Just a thought but how about a tsp of baking soda in an eight oz glass of water? have you tried that? heating pad? If nothing else and your doctor want give you pain medicine when the pain is really bad go to the e.r. and let them treat you if your not under any type of pain contract.
Hope you feel better soon hon. hang in there there is many treatments out there that will help get this under control. By you working in the e.r. and going to Nurseing school you can make a diffs.
i know its scary to be dealing with more then one disease at a time.
My gyn said he is sure i have it but since i been sick with u.t.i he hasn't been able to do the lap yet.
hang in there hon. we are here for you we do care.
Rhonda

[SharonA]

Hey Christi... :welcome:

You sure are one very busy lady. I am impressed.

While reading your post, there was one thing that kept running through my mind. Do you drink tap water? There is a chance that, if you do, your city water may be highly chlorinated. That might be one of the reasons your pain level is high. Try bottled natural spring water for awhile to see if it helps. Pay attention to the labels. There are some bottled water that have added minerals in them. Keeping your urine diluted is very important. Therefore, be sure to drink lots of water throughout the day.

I am glad you found us. :)

[Katrina]

:welcome: I gave you a list of ideas to help with pain in one of the links I gave you at your other post.....I hope that all the adivse you are getting helps you a lot and want you to know how happy we are you found us!

[curlycue]

Welcome you are with wonderful, caring people. Good luck with the Elmiron. It worked for me, it only took 11 months? hang in there.

[Christi Chelle]

Thank you all for your support and advise. I am so glad and relieved to be in a world (IC Website) that understands what I am going through!! I really try to explain it to my friends and family but seems that they will never get it!! Oh well, I have all of you now to devulge to. I am planning on seeing a new doctor soon. On the topic of my busy life, I feel as though I have to do what I do for my daughter so that I can provide for her and I love to stay busy because sometimes it takes my mind off the pain.

I do not drink tap water;however, I do drink processed water that may include chemicals and extra minerals. I will check into that.

Thank you all so very much for your caring support, I really just try to remind myself everyday that God has blessed me with a wonderfull life and I could have worse!!

Thank you so much!!
Christi