confused

[butterflyhugzs]

Hello
I wonder if you can help me, I posted a while ago when I was going for my cystocopy and hydrodistention. After the operation the registrar come to me to tell me what they had found and he said they found a chronic bladder infection and a very small bladder and suspected IC as some pinpoint bleeding.
I have just received a letter from the hospital, which says I have a chronic bladder inflammation?? And the letter said that the hydrodistention may help but if not they can offer some other things. I have been offered another appointment in March.
IS this IC? I contacted the hospital via e-mail with some questions but I think it will be a while until they get back to me.
My symptoms are constant need for the loo, painful bladder, sometimes it just feels bruised and really uncomfortable and I also get other pains sharp stabbing or twinges and burning when I pee.
The urgency gets so bad that when I plan to go out, I restrict my drink. Does anyone else do this?
Please help do you think I have IC? March is a long time to wait to see the consultant again. I live in the UK so its national health here, anyone else from the UK and have similar experiences?
Thank you
Abbiegail
:loco:
P.S I also have fibromyalgia and IBS

[vm]

Is there any way for you to contact the doctor who did your surgery? By phone? Maybe the doctor could clear up the confusion for you. I understand why you would be confused...

[VickiB]

Yes, I would be confused too! I think trying to speak to the doctor as Kim suggested, would be the best thing to do. I find it odd that they haven't communicated with you better on this! Have they started you on any type of treatments? Do they plan to do nothing for you until March?

For what it's worth, your description of symptoms are exactly the same way my IC makes it's presence known. Though I suppose other conditions might also have the same symptoms. I have found that when I tried to restrict my intake of water, hoping to lessen the frequency & pain, it had the opposite effect and I was even worse off than normal. Increasing my intake of water decreases my symptoms. Course, it may not be the same for you!

I hope you find some answers. Good luck in your search!

Vicki

[butterflyhugzs]

Thank you for your reply, I had the operation done at hospital as I suppose I know from past experience that they take ages to get back to you and seem to give little information. When I send an e-mail to the consultants Secretary she said that I will pass on my questions on to the consultant and she will respond in writing. It is very difficult to get hold of the Dr who done the operation as they are really busy. I have not started on any type of treatment yet they said in the letter that if the hydrodistention did not help that they could offer some other treatments but that will be in March.
It is difficult because everyone has to wait over here (UK), my father in law has a problem with his heart and he has been waiting 9 months for investigation to see what the matter is, He is still waiting and on loads of tablets and in pain.
I have often come away from a consultation feeling unsatisfied, in my last consultation, my husband took half a day off as holiday, and we sat waiting for ages only to see a junior Dr who after a brief examination he told me that he thinks I may have fibromyalgia! Which I have had for about 17 years and have been diagnosed for about 5 years!!!
Thank you for letting me know that the symptoms I have are exactly the same way my IC makes its presence known. From what I have read this is what I believe I have.
Thanks again both of you for posting.
Bye for now
Abbiegail

[Dianna M]

I certainly agree all that you mention in your messages all point towards IC and your syptoms and results all sounds like typical IC. This in someways is even more of a diagnosis than some of the woman get who live in the US and Canada. We all need to be careful and not be too caught up in the official diagnosis. The truth is we have bladder problems. I know I suffer from terrible bladder pain as my worst symptom. I have been so lucky to find this site. When I first joined, Jill had just started it. We would have chats with only a few people online.It is amazing how much it has grown. Although we all have our own bladder problems to deal with, we are lucky that we have all found each other. We offer advice and our opinions - our written work give the clinical facts and the people that join us are here for the wonderful support we offer one another. Abbiegail please email or private message me anytime you need some help or support. It can be a lonely disease to live with.

[ICNDonna]

It does sound like IC is a strong possibility. I suggest you read the information in the Patient Handbook at http://www.ic-network.com/handbook --- you'll find information there about the IC diet and I do suggest you try that right now.

Warm healing thoughts,
Donna

[butterflyhugzs]

Thank you for all your help the http://www.ic-network.com/handbook looks really helpful. thanks again
Abbiegail