View Full Version : Pain in the Clitoris?
12-26-2004, 05:02 PM
Just want to know if any of you experience pain in the clitoris like it is engorged. The pain to me feels like almost have a tingling pain its really aggravating. I guess it would be like having a hard on in a man that would not go down. It is so irritating it sometimes makes me want to cut my clit off. It is though it has an electric current in it. I told my urologist that my clitoris hurt and he said it happens with IC that any part down there could have pain. Just would like some feedback. It will drive you crazy.
Broken_Smile :loco: :cussing:
12-26-2004, 05:09 PM
With my severest onset of IC, I too experienced this, but I felt "everything" was engorged for a long time and I also felt like a human percolater...I felt quite literally on fire for a long time....I do think it is a symptom for some and like other annoyances, does eventually calm down....keep those "seam" losse and comfy and try to keep the are bathed but patted dry....might be time for some ice packs....good luck.
12-26-2004, 05:40 PM
How awful! I am so sorry to hear this...thankfully I don't have that symptom.....did the dr offer any help?
12-26-2004, 05:46 PM
I have desribed to my uro almost the same as you did .. I try ice packs ,hot showers next week I start a lidocaine mixture to apply once a day for 8 weeks.. I have a infection so I have to wait for it to clear up first. Hope your able to find something to help sending huggs,
12-27-2004, 12:51 AM
Some have the feeling of constant orgasm. I think PFD should be investigated & also, pain magement doc might help.
I've heard how annoying it can be. Feel better soon. Kathi
12-27-2004, 08:57 AM
Oh my gosh, you described it exactly how I did to my boyfriend, and it's a really frustrating feeling! I noticed that "symptom" seemed to get worse before my period, and crazy as it sounds getting up and walking around (even though that was the last thing I felt like doing!) helped a bit, plus some motrin. When I mentioned it to my gyno, he muttered something about "engorgement" and asked me to keep an on things to see if they looked "puffy" or "swollen"...um yep. So that was where he left me with that, it was here that I found out it can be a symptom of IC. I haven't quite figured out how to make it feel better, aside from a cold pack and some motrin, sometimes that works in combo with walking around. Just wanted to say, I can so relate to it!!
12-27-2004, 01:27 PM
I don't know what to do either...but I can also relate. It's really not fun at all, especially when that whole area is so sore.
01-02-2005, 11:58 AM
I have not posted in a few days because I got a trojan virus I had to get rid of it had hijacked my browser very annoying. I told my urologist about this pain and he said it could go along with IC and that was it. I think maybe I would get more help from a gynocologist at least I hope. Please let me know if the Lidocaine works and what is PFD? If anybody finds a good way to treat this please let me know.
01-03-2005, 10:10 AM
I also have that awful feeling in the clitoris. I have found that some things help like cleaning around the clitoris once a week with a q-tip. Sometime a white patch can form under the clitoral hood making it aggravate the problem. I also use vitamin E over the area and rinse with a peroneal bottle. My doctor prescribed estrace cream compounded with elmiron. This helps alot!!! You can get it at any compounded pharmacy. I hope this info helps. Sometimes nothing helps.
01-09-2005, 02:59 PM
I do the same thing with the Q-Tip because you are right you can get a build up underneath the hood of the clitoris. I have also read that from not cleaing under the area the hood can actually adhere to the clitoris and the gyno will have to break the ahesions a loose. This can also happen in uncircumised men. If you get that build up it will sure make the pain alot worse. I just try not to get to rough with the Q-Tip as it can inflame it and make it alot worse too.
01-10-2005, 04:01 AM
Estrace cream and heavy ice pack. The weight and cold helps.
01-14-2005, 12:08 AM
Wow. I was beginning to think I was crazy...I'm so glad I found these posts (well, I'm not glad that we are all going through this, though!!) I have been experiencing terrible clitoral pain and pain at the meatus (what an anatomy education we are all getting!!). I can't believe someone said it feels like a constant orgasm - I WISH! It definitely does NOT feel that way to me. It hurts even sitting down. I have lidocane in the house and want to try it but I'm afraid it will burn-does it? Also I'm afraid of being so numb from it that I will never be able to have an orgasm. It's already tough to have one from being on Elavil (which in my opinion is not helping with the IC, but I guess it's helping the depression which goes along with it).
01-30-2005, 03:16 AM
Well ladies, thanks again for your candor. Both my primary care and my uro just looked at me when I described this (in total embarassment) and didn't really help me. I was so disappointed I don't even remember what they said.
I have been truly frustrated not knowing what this is. Thought maybe I 'pulled something' 'down there' when moving my mother out of her apartment. I have been sitting on heating pads. Never tried cold. Think I will.
Anyway, if it wasn't for people like you, angels who share, others would still be sooo stressed out. It's just a comfort to know I'm not crazy.
Sorry you all share in this type of pain though,
01-30-2005, 08:49 AM
I have clitoris pain,too! It's more like a numbness, I have no sensation left except for pain and discomfort. When it's touched, it feels soo irritated and a bit painful!! My doctor said I could have vulvodynia. Not sure yet, I hope not, I sure don't need another health condition right now on top of the 3 I have now!!!
I to have the same pain. I also notice that when the Clitoris is flaring up, I also get pain across the abdomen like I am on fire. Might have to try the cold pack down there. Have been in the worst flare since being diagnosed with IC & VV. Usually I get the odd day of pain, but nothing like this.
03-04-2005, 08:45 AM
hello everyone, I was just wondering where I would put this question. but I already see, I'm not weird and their are other people that have the same problem. My Clitoris is ALOT of my pain. Every night I sleepf on my side with the hand pushing on my clitoris just so I can feel compfortable, also a heating paid works. I'm taking pain meds and valium and it does not help with my clit pain. Has anyone had success?
I'm glad I'm not weird but I'm not glad that we have it.
Hope somone finds help.
03-04-2005, 09:19 AM
I also have this, it is very annoying, I usually describe it, as it feels like someone is pinching my clitoris a little, But I think you described it better.
And when I cry it gets really bad, kinda weird? Even if I don't have it crying will bring it.
Some presser on it does help for me and walking around a bit.
So you will see me walking around holding my crotch like a little kid who has to pee. :lmao: Very good image huh? I don't do it when anyone can see me.http://www.ic-network.com/forum/images/smilies/whistle.gif
I also noticed I go to the bathroom more not because I fill like my bladder is full but that clitoris pain is so annoying and it fills like I have a few drops right in it ready to come out, But it never helps. I have noticed if I make my self just hold it for as long as I can so when I go a decent amount comes out it will help.
I get that too with the pain across the abdomen. Sometimes feels like little papercuts across my clitoris. One thing that helps....go underwearless around the house!
03-04-2005, 05:50 PM
My clitoris only hurts and feels soooooo uncomfortable when it is rubbed or stimulated in any way.Oral sex and heavy petting is definately a no no!!! I can't have sex in the missionary position or any other position that stimulates the clitoris.Sometimes,if my bladder lets me,I can do it from behind.:woohoo: This condition makes it hard for me to 100% enjoy myself because then I get to thinking what if it starts hurting or what if I have to pee,more than once:toilet:,how much pain I'm going to be in afterwards,UUUGGHH!!:cussing: Sometimes I think to myself,"Is 30 minutes of pleasure really worth all the agony I'm gonna go through afterwards?" The answer more than half of the time, NAAAA!!!! :biglaugh:
03-05-2005, 11:40 AM
yup i have the same thing. Besides the damn urinating and disgusting pain in the bladder, I get sharp pains in the clitoris and in that area so I get an icepack and stick it between my legs.
I hate this disease.
03-05-2005, 11:51 AM
I have the same kind of pain. I lost my husband acouple years ago. Thank God he was understanding my friends donot they look at me like i am crazy.
03-05-2005, 01:11 PM
It's interesting, I don't have pain there personally, but when they were stimulating the pudendal nerve with electrical stimulation (long story, having a neuromodulation device installed near my pudendal nerve) I felt it in my clitoris. That's where they said I was supposed to feel it, actually. So any pain there...would have something to do with the pudendal nerve being inflammed. The doctors do say there is a neurogenic inflammation (nerves gone bad) component of IC, as well as the injury to the bladder. I would guess it's the pudendal nerve irritation/inflammation that causes the clitoral pain.
Hope you feel better soon.
07-22-2005, 05:26 PM
I spent about a year thinking I had a UTI because that's exactly what it felt like. The only difference was that it was not constant. It would go away after a couple days. It definitely didn't feel the least bit sexual. I had a hard time making autotrips because I kept feeling like I had to urinate. When I DID stop to use the bathroom there was less than a thimble full. I tried a trick I'd used when I was younger and prone to UTIs. I bought a cortizone cream and used it around the urethra. That really helped, but nothing I did stopped it altogether. When applying the cream one day, I noticed that my clitoris felt engorged, and when I touched it, I could tell that that's where the real problem was. Now I could apply the cream to the right spot and the change was dramatic. I was getting just enough on the clitoris before to make it feel better, but now I really get some relief. I'm still concerned about this, but just knowing I'm not the only one is comforting :)
07-26-2005, 03:18 PM
Estrace cream and heavy ice pack. The weight and cold helps.
I use estriol, think it is safer, and vitamin E compounded by a pharmacy (gyno can prescribe) estrace has chemicals in it. you don't want anything with propylene glycol...its a precursor to oxalic acid...and that will burn :woohoo:
I am glad to know I am not alone. I have clitoris pain too, and it is embarrassing and pretty hard for many people (except us) to relate to. My clitoris is painful, especially when stretched or pressed gently. It was never like this a week ago, and I'm still trying to find out what's wrong.
I think going to a doctor and making him do his job instead of providing a brief explanation is the best thing to do. I'm going to do it some time this week. It's much better than trying to fish online for information..
Hope you get better, hugs,
11-23-2006, 02:06 AM
If you can find a Physical therapist that deals in pelvic floor dysfunciton, that might help. They can work on pelvic spasms which can cause pelvic pain. Also, make sure not to stay constipated. I started Zelnorm which helped alot and you can use some olive oil for soothing comfort. Also, Elavil can help with the nerve pain. Hope these suggestions help.
I am not a doctor these are only suggestions.
I just want to say I have exactly the same clitoral pain as you ladies. I thought i was going mad so I am so pleased to find someone else who also has these symptoms.
I told my urologist but he just said its common with IC and thats it.
Mine is constant. has anyone has any treatment.?x
11-29-2006, 02:28 AM
Hi everyone...at the time I posted my question to you all about the clitoral pain I didn't see any posts on it...thought maybe I was the only one but thought too that I'd just throw the question out there.. I'm glad I did.
Although at the time I was alone in my quest for relief I am glad to see that the others that share this horrible pain, now see that they are not alone.
I don't jump to taking prescriptions for anything...I try my best to just listen to my body and if I mask my bodies symptoms with prescriptions then I feel I am doing myself an injustice and will never be able to 'read' what my body is telling me. I'm and IC'er like you all, not a doctor, not a nurse etc.
Here is what I did that helped me.
I started using progesterone cream just before bed, dabbing a dime sized drop on my fore arms and rubbing them together. I would alternate heat and cold. Yep, I actually used cold packs there (with underware on). This seemed to take away the extreme, intensity of the pain. Also, not being alergic to oatmeal, I bought AVEENO oatbath and made a paste with water.
I'd get a sanitary napkin, apply the paste and apply the napkin to my underware and sit for a spell while watching TV. This also seemed to sooth the area. Pressure also helped so, like others I've read here, at bedtime I'd lay on my side, apply pressure to my clitoris and try to fall asleep.
I can't remember but I think my pain lasted 4-5 months. I haven't had it since.
I hope for you too, this will be a short-lived symptom...
hugs to you all,
11-29-2006, 02:33 AM
This is wonderful news. I had just posted a question on Newly Diagnosed and no one answered, so I thought I must be crazy, but here was all the answers I needed. My clitoris hurts so bad - worse than my bladder. Every doc I have asked says it looks fine and then gives me that "she must be crazy look" that I am getting very used to. The thought of any sexual contact make me cringe. Who would of thought that something that was supposed to cause pleasure can cause so much pain. Thanks for all the info. I am glad I am not alone, but sorry that you guys are suffering.
Hi Broken smile
how are you feeling?
11-22-2015, 01:29 AM
I know this is an old thread... But did any of you find something to help the clitoral pain?
11-22-2015, 04:26 AM
Hi new&discouraged. I wasn't one of the original posters on this thread, but have suffered with this problem as well. I do want to tell you that from talking to other women with this issue, plus my own experience, over time this symptoms does seem to go away or at least get much better. It is a horrible feeling! So much worse to me than my bladder discomfort. I rarely get the feeling now, and it is so much less in intensity. PT for tight pelvic muscles helped me a lot. She does external massage and internal trigger point massage around my urethral area. As the sensation died down, I could zero in on where it was actually coming from, and I think mine are really bad urethral spasms. So an antispasmotic also helped. I take hyoscyamine or Uribel, which has hyoscyamine in it. Also I love 5% lidocaine gel. The 2% wasn't strong enough and didn't help me at all. With the 5% start with just a dab cause it can be an intense feeling. When flaring, I use it after every urination. Also, I use small ice packs put in a pair of socks right on that area. The prescription that seemed to help the most is Tramadol. I take only a half when needed cause I don't want to become dependent on it. Please see my signature below to see all my treatments. And let me know if I can help answer any other questions. At the beginning, this feeling was almost constant, but now it is only occasionally and so much more bearable. It is pretty mild when I have it now, and if I get busy with something, most of the time I can mostly ignore it. I used to try to hold my urine, but I found out when I was flaring with this symptom, if I went the to bathroom a lot, it would actually seem to pass faster the more I urinated. Then after it passed, I would go back to trying to train my bladder to hold it. If you search the forum for arousal or PGAD, you will find a lot of women on here have this symptom, and a lot of good advice in previous posts. I just started amytriptaline and it seems to be helping as well but too soon to tell. Hope this helps you. Feel free to ask me any questions you may have. Take care!
11-22-2015, 05:32 AM
Thank you SO much for your response. It helps to hear a success story (though I know you're still suffering some). I agree, the bladder pain is a breeze, the clitorial pain is much worse!! I am scheduled to start pelvic floor PT in December so I hope it helps.
I am not sure what Tramodol is so I will have to google it. I have generic urelle, didn't see improvement after a few days so I quit, but I'm going to start back and see if it helps since it helps you. Do you take it every day? I just started Elavil last night... Only 5 mg and I was completely wiped out. Do you build up a tolerance to it? I'm going to ask for lidocaine too.
Do you think it's related to the pudendal nerve?
Thanks again for your response. Let me know if you have any other advice for me. :)
11-22-2015, 09:08 AM
I also have this problem. I think it's related to my pudendal nerve but mixed in with bladder. So confusing.. Kathy do u have PN? I have PN pain too.
11-23-2015, 05:36 AM
Hi new&discouraged and Lhdaniell:
New&d., hope the PT helps you. I really believe that PT along with low doses of Tramadol are what is giving me my life back. Good luck with it.
Tramadol is a narcotic-like (some say a narcotic) pain reliever. It really helps me with the strange vaginal sensations I was getting. My doctor said it also has some anti-depressant effects as well, and that is why I think it helps me so much. Before this bladder stuff started, I was the kind of person who NEVER took meds. Now I never leave home without them. Hope one day I don't need Tramadol, but for now I'm thankful for it.
The Uribel seems to take a while to work for me. When I used to flare bad, I would take 4 doses a day for a few days till the flare seemed to ease a little, then I'd cutdown to a couple a day until the flare completely passed, then I'd quit taking it until I flared again. Now I just take one or two daily when I feel any discomfort.
My doctor does think this is from the pudendal nerve. I have super tight pelvic muscles that compress the nerves in that area. My muscles are always clenched. I hold all of my tension in my pelvis. I can relax the muscles and as soon as I quit thinking about it they clench right back up again.
I started the Amytriptaline at 25 mg. and was a little tired at first but not too bad. Now it doesn't seem to affect me too much. I take it at about 6 in the evening and stay up until 11 or 12 a night. Does help me get really good sleep though. My doctor wants me to try 50 mg. because he says that seems to be the "magic" number for most of his patients.
It has taken several months for me to get better. My first symptoms started in February 2015, and it has just been in the last couple months that I have seen really good improvement. I think I was improving all along but it is very slow and slight so it's hard to tell. On my best days now I am 90%-100% better and on my worse I'm still 75% better than I was when this started. So hang in there and try to stay positive. It helps. Also try to not get overly stressed...easier said than done I know. And don't let the negative stuff online get you down. Hope you find some healing soon. Let me know if you have any other questions.
11-23-2015, 06:21 AM
Thanks again for responding. You have given me much hope about feeling better someday. I am going to ask my doctor about Tramodol or possibly Valium. Something to calm down my sensations when needed. My PT actually had a cancellation so I got to go in this morning --two weeks before planned. Turns out I, too, have really tight pelvic floor muscles. She stretched them internally and said she would teach me how to do it on my own in a couple appointments. Also, she said to keep icing and take fish oil supplements to reduce inflammation. Anxiety wise- I'm already feeling better about everything. Time will tell if the pain will lessen. I feel good today... Might be a coincidence or maybe the Urelle is helping.
11-23-2015, 09:08 AM
Kathy, what have u done to relax pelvic floor muscles? Min3 are also tight. Like I have to mentally tell myself to relax them but after they clench back up. They stay tight because my bladder stays in pain and vaginal area I believe is the reason.
New and D, did your PT press on your pudendal nerve internally? That happened to me and I will tell my next PT to not do that.
11-23-2015, 09:21 AM
No she didn't. At least not yet. That sounds like it could be very painful. She just stretched some muscles externally and internally with her hands. Make sure you are seeing a PT who specializes in pelvic pain. Not a regular orthopedic PT.
11-23-2015, 03:29 PM
Yes the person that did that was a women's specialist, one a Dr. I traveled to see who deals with all my type symptoms including IC rescinded for m3 to see and she pushed on me hard there. I wasn't happy with her
11-24-2015, 05:36 AM
Getting my pelvic muscles to relax has been a long road and I am still working on it everyday. I've been in PT for about 20 weeks so far. She has given me stretches to do everyday at home (similar to the ones in the pelvic pain book by Amy Stein) and an exercise called a "bulge" where you kind of press out through the bowels and genitals almost like when having a bowel movement. I do that off and on all day long whenever I think about it. You don't push out hard just kind of like beginning a bowel movement. Hard to explain. Also the Tramadol helps calm me which helps with the muscle tension. Xanax also helps if I'm having a bad day. Relieves some of my tension. I'm so sorry you are having such a hard time. I used to cry everyday. Life seemed like it was a living hell, and I used to tell my husband if I don't get better I may have to decide one day to do something to myself. It sounds so terrible now, and used to terrify him, but I was in that much pain at the time. It takes so long to get better. Much longer than I thought when this started. The hardest part for me was in the beginning I never gave any treatment time to work because I wanted relief immediately to stop the pain. Don't stop looking for something and talking to specialists. Someone can help you. I really believe that. Take care.
11-24-2015, 05:48 AM
New&discouraged & Lhdaniell:
I forgot to mention that I also use vaginal Valium suppositories on my worse days. They are compounded for me at a compounding pharmacy. They really help release the muscles in the pelvis also. I use them at night for a few days at a time if I am hurting. Also Xanax gives me some relief when my tense muscles are causing me problems. Also initially none of the meds I took seemed to help. But looking back I can see now that they did. You have to stick with it and find the correct med and treatment schedule that works for you. It can be such long tiring road. New&d., I am so glad you are feeling so hopeful now. My mood really was a critical part of getting better. It's so hard to be positive though when you feel so bad. Sending you both healing thoughts. Please feel free to ask me any questions. I'll do my best to help and answer.
11-24-2015, 08:06 AM
Thanks for your response. Planning on asking for lidocaine, Valium suppositories, and Valium at my appointment next week. Felt great yesterday, today not as good, but trying to keep a positive attitude. Can't wait to get home from work and get some ice. Praying for a lessening of symptoms for all of us so we can return to a normal life. Next PT appointment is tomorrow.
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