Stephanie2004
12-15-2004, 01:21 PM
I ordered the IC Survival Guide and also A Headache in the Pelvis, the second mostly because I thought it sounded a lot like my brother's experience with pelvic pain. As I read the general description of IC symptoms, I didn't think it sounded all that much like my symptoms. When I got to the section on related conditions, the description of pelvic dysfunction described my pain exactly. So, I turned to the second book and read it also.
Two questions:
1) Are the authors saying that pelvic floor tension causes IC, or that it is often mistaken for IC? In other words, if my pain is pelvic floor pain, does that mean I probably don't have IC? I've been following the diet, and it's hard to tell whether it's helping or not.
2) This is partly question and partly venting. After two months of pain, the urologist said to take antibiotics and wait two more months, which I have now done. Today I saw my GP for an infected sweat gland (now I have to take another antibiotic for that), and mentioned that I was still in a lot of pain, that I thought it might be coming from muscle tension, and that I wasn't sure whether that would fall under the urologist's area or not. She thought a moment, then said to wait another two weeks and ask about it again when I come in to have my arm re-checked.
But - the IC Survival Guide says that pelvic floor dysfunction is most easily treated in people who've had symptoms for less than four months. I feel like the chance to treat the problem is passing by, and no one will do anything. My brother suffered with pelvic pain for six months, but during that time the doctors were giving him medication, including prozac and hytrin (which he said made all the difference in his case). Do I keep waiting as instructed, or try to insist on some action? (I'm having an especially bad pain day, which perhaps adds to my impatience.)
Two questions:
1) Are the authors saying that pelvic floor tension causes IC, or that it is often mistaken for IC? In other words, if my pain is pelvic floor pain, does that mean I probably don't have IC? I've been following the diet, and it's hard to tell whether it's helping or not.
2) This is partly question and partly venting. After two months of pain, the urologist said to take antibiotics and wait two more months, which I have now done. Today I saw my GP for an infected sweat gland (now I have to take another antibiotic for that), and mentioned that I was still in a lot of pain, that I thought it might be coming from muscle tension, and that I wasn't sure whether that would fall under the urologist's area or not. She thought a moment, then said to wait another two weeks and ask about it again when I come in to have my arm re-checked.
But - the IC Survival Guide says that pelvic floor dysfunction is most easily treated in people who've had symptoms for less than four months. I feel like the chance to treat the problem is passing by, and no one will do anything. My brother suffered with pelvic pain for six months, but during that time the doctors were giving him medication, including prozac and hytrin (which he said made all the difference in his case). Do I keep waiting as instructed, or try to insist on some action? (I'm having an especially bad pain day, which perhaps adds to my impatience.)