Jacqui P
12-15-2004, 08:25 AM
Sorry, I posted this on coping strategies and then realised I had posted in the wrong area. Sorry!
Hi All,
My name is Jacqui and I am 20 years old. I am at university and have just started my training to train to be a Peadiactric Nurse.
I registered on this site a couple of years back when my drs and myself thought I had IC.
Two years ago I had a cystoscopy and bladder stretch and the urologist who did it told me my bladder looked fine but the biopsies showed inflamation!
I never got a follow up appointment to see the urologist again and left it as I am fed up of getting poked about as I have extensive endo and suffer horrendous pain with the endometriosis.
This past year I have reoccuring UTI's, Kidney infections but there has been alot of times when I have been to see my GP as I thought I had another urine infection and on dipstick testing my urine shows blood and protein but then when my GP sends the sample off to the lab the majority of samples come back showing no infection even though I have blood and protein on dipstick and have all the signs and symptoms on a urine infection.
My GP is wonderful and I would be completely lost without her. She always takes me seriously and never fobs me off. She feels that endo causes alot of my pain but she really feels that I have IC aswell.
She went to a conference a few weeks back given by a Gyne who has a special interest in endo but he spoke about IC to and said how common IC and Endo are together.
She says I have alot of sugns and symptoms of IC and I spoke to her again today and she is going to refer me to this Gyne who gave the conference that she went to as she thinks he will be a good guy to see as he seems very clued up on both endo and IC. So she is sorting out a referal to this Gyne for me, apparently he works with a multidisiplinary team aswell.
At the moment I have a wonderful endo specialist who I have been seeing for 3 years and I really trust him but I feel very stuck at the moment and I am really struggling to deal with the pain.
I have dreadful burning when I wee at the moment, I am having to go to the toilet frequently and at night my sleep is disturbed as I am up and down to the toilet. I am in dreadful and very severe pain in my lower pelvis, pubic area and vagina and I am really worrying as my pain is getting worse and I feel so stuck as theres nothing I can to do stop it. I have just started a new BCP so hoping that will kick in soon.
I really do not want more surgery at the moment, I have had alot of laser and excision surgery for the endo but I have just started at University in October and have just finished my first term at uni and I really do not want to have surgery at the moment. I am at university training to be a Peadiatric Nurse.
Is a common for IC Sufferers to have blood and protein in their urine? Any ideas I can do until I see this new Gyne? I am reallystruggling with the endo pain and the bladder problems pain! Do any of you wake up in the night with your pubic area in spasm and the only way to shift the spasm is to get up and go to the toilet?
I look forward to getting to know you all. Thankyou in advance for your help and support.
Take care and best wishes, Jacqui P xxx
Hi All,
My name is Jacqui and I am 20 years old. I am at university and have just started my training to train to be a Peadiactric Nurse.
I registered on this site a couple of years back when my drs and myself thought I had IC.
Two years ago I had a cystoscopy and bladder stretch and the urologist who did it told me my bladder looked fine but the biopsies showed inflamation!
I never got a follow up appointment to see the urologist again and left it as I am fed up of getting poked about as I have extensive endo and suffer horrendous pain with the endometriosis.
This past year I have reoccuring UTI's, Kidney infections but there has been alot of times when I have been to see my GP as I thought I had another urine infection and on dipstick testing my urine shows blood and protein but then when my GP sends the sample off to the lab the majority of samples come back showing no infection even though I have blood and protein on dipstick and have all the signs and symptoms on a urine infection.
My GP is wonderful and I would be completely lost without her. She always takes me seriously and never fobs me off. She feels that endo causes alot of my pain but she really feels that I have IC aswell.
She went to a conference a few weeks back given by a Gyne who has a special interest in endo but he spoke about IC to and said how common IC and Endo are together.
She says I have alot of sugns and symptoms of IC and I spoke to her again today and she is going to refer me to this Gyne who gave the conference that she went to as she thinks he will be a good guy to see as he seems very clued up on both endo and IC. So she is sorting out a referal to this Gyne for me, apparently he works with a multidisiplinary team aswell.
At the moment I have a wonderful endo specialist who I have been seeing for 3 years and I really trust him but I feel very stuck at the moment and I am really struggling to deal with the pain.
I have dreadful burning when I wee at the moment, I am having to go to the toilet frequently and at night my sleep is disturbed as I am up and down to the toilet. I am in dreadful and very severe pain in my lower pelvis, pubic area and vagina and I am really worrying as my pain is getting worse and I feel so stuck as theres nothing I can to do stop it. I have just started a new BCP so hoping that will kick in soon.
I really do not want more surgery at the moment, I have had alot of laser and excision surgery for the endo but I have just started at University in October and have just finished my first term at uni and I really do not want to have surgery at the moment. I am at university training to be a Peadiatric Nurse.
Is a common for IC Sufferers to have blood and protein in their urine? Any ideas I can do until I see this new Gyne? I am reallystruggling with the endo pain and the bladder problems pain! Do any of you wake up in the night with your pubic area in spasm and the only way to shift the spasm is to get up and go to the toilet?
I look forward to getting to know you all. Thankyou in advance for your help and support.
Take care and best wishes, Jacqui P xxx