what does your bladder pain feel like???:(:(:(

[lhmm]

Hi ic friends:)
I have been in a horrible flare for 3 months 24 hours a day and no matter what I do(i have even stopped eating) the pain continues in my bladder. I cannot take the meds sadly so I am awaiting my DSMO treatments hoping for my miracle! My question is "can u please tell me what the pain in your bladders feels like? Im not talking about the frequency or pressure---just the actual pain. I just cant imagine that this can feel so bad. I feel like Im being tortured(I had three natural 20 hour childbirths and this is far worse....)
thank u and bless u all... L

[ICNDonna]

First of all, I urge you to go back to eating, even if it's just rice and chicken at first. You are courting disaster if you aren't eating.

Are you taking any herbal remedies? "Natural" medicines? Drinking enough water? All can be a problem for some of us.

To answer your question, my IC flare pain is like a slightly misplaced menstrual cramp. It feels like my body is trying to expel my bladder. When this happens, I take hyoscyamine, an antispasmodic, which relieves the pain significantly.

I am also on DMSO maintenance treatments once a month. They do seem to help. The first few were very painful, but after that, I began to see some improvement.

Warm healing thoughts,
Donna

[Sarojini]

Mine often starts as a severe cramp (almost like a menstrual cramp or even sometimes gas pains!!!) but then it progresses to a sensation that there are needles or razor blades in my bladder and urethra (in addition to the cramp). When I go to pee, the sensation is worse... sometimes there's a little burning, but mostly it's actual bladder pain, like I feel every little movement my bladder makes inside me during the urination process as a razor cut or a knife stab. I also get bladder spasms, which feel like my body is trying to expel my bladder, as Donna mentioned.

When the pain is severe like this I have to take everything in my arsenal... narcotics, Pyridium Plus (which ibtracy introduced me to -- it has the regular orange dye in it, plus hyoscyamine and a mild barbiturate for pain relief), and sometimes even a Klonopin (which is a benzodiazepine like Valium) to relax me and my bladder... and then lie down for a while with heat over my lower belly.

I used to do DMSO's, but they didn't work that well for me. However, many people have had AMAZING results with them so I encourage you to give them a shot. They just might be the magic bullet you are looking for :)

[Katrina]

There are many different kinds of IC pain that people have. For me the bladder pain was the worse pain I have ever experienced....it was like a PMS cramp that was going to explode...I had "pain symptoms" along with it, it was so bad. The good news is that I am way better than that now. Treatment definatly can help! :)!! I know the pain of IC can be very very very bad....but it can get a lot better too! :grouphug:

[southerngirl]

:welcome: I just started these message boards recently and they have been a godsend, I hope they are the same for you. My pain is a little different than a lot of ICer's, which is what threw the docs off track for awhile. I have some cramping and burning sensaion in my bladder, I also have severe stabbing pains in my lower right abdomen that double me over. I just found out today from my doctor ( I had him read me the report from my cystoscopy) and found out that I have hunners ulcers which is probably what is causing that pain on my lower right side. Those pains feel like someone is ripping out my organs sometimes it just feels like being stabbed. Then, I also have a burning sensation in my urethra when I urinate--I take pyridium plus for that which helps that pain quite a bit.
My doc just prescribed Xanax for me today and also prescribed me a few more pain meds.
Good luck.
:toilet:

[Arabelle Amara]

I am also new here....
Typically the pain is as though there are many small razor needles in the urethra... and then when having to urinate it's as though I suddenly have fire in my urethra too...
There's pain in the bladder/lower abdomen... a deep cramping sensation that mixes between sharp and dull...
Then there's pain in my sides around the ribcages... this pain is comparable to that of running but not breathing correctly, and you get that instant pain in your side, except that this doesn't go away.
I hope you'll find some relief. I too, gave up eating, and didn't find that whether I ate or not made a difference, so I decided to keep on eating. It's very important to not add more to the pain by not eating or drinking.
Before being diagnosed with IC (I was just officially diagnosed on Friday after the biopsy diagnosis came in), I used to take D *******. It helped with the symptoms a bit... and have been using a heating pad over my abdomen to help with the pain. I hope you find something that helps for you.
*hugs*