who had a uti and got ic?

[shennan]

what antibiotic did you all take?

what did you all take with the first sign of ic?

i took cipro.

thx.
shenna

[nss]

I had a UTI then got IC. The UTI was resisitant to Keflex, Triprim and finally was given Noroxin (I think in that order). That eventually cleared up the UTI, but the pain persisted. I saw a Urologist and he put me on Keflex for a couple of months, but that did nothing. I still kept peeing 100 times a day. LOL

And I'm still peeing. (in a flare atm) Which is almost a week. They dont usually last this long.

[twiggy]

LOL--yep, that's how my problems started. NEVER had a UTI in my life. Then, bang, those darn UTI's kept coming and kept coming and kept coming. Actually, got sooooo many it freaked my uro out. Then, thank the Lord, the results started coming back negative, negative, negative and told I have IC. I spend a lot of time wondering if I had IC and it set me up for the UTI frequency or if the UTI's led to IC.

[Sharon]

I got my first uti right after I got married, took cipro and the symptoms went away after a few days. Probably a couple weeks later, I noticed that when I would have a glass of juice I would feel like a had a uti again, and if I didn't drink juice I was fine. That was the start of my IC.

[jaime15]

Hmmm.....I got my first uti and it turned into a six month long antibiotic run of: Keflex, cipro, and macrobid.
They all worked but once the meds were finished the symptoms came back. That is when I knew something else had to be going on.
I also had two kidney stones years prior to the uti's.

[Annie2]

I had my first UTI years ago (in my early 20s). It was very quickly resolved with ABs. I continued to have one every 3-5 years and they also were very quickly resolved. At 55, after suddenly stopping hormone replacement therapy I had been on for 15 years, I developed a nasty UTI. A week of ABs resolved it and I felt fine but a couple of months later I started with that "I must be getting another UTI feeling". This time the culture came back negative and my IC journey began. I now understand estrogen plays a big role in maintaining healthy bladder and urethral tissue. Stopping the estrogen left me vulnerable and I developed that nasty infection. I strongly believe, in my case, stopping the hrt set the stage and infection triggered my IC.

Annie

[shennan]

how many girls took cipro and got ic after the uti?!

hmmmm....

wonder why they give cipro??

why not levaquin?

i know the antibotic theory is out there, but i wonder if it is specific antibiotic.

sounds like others took different antibiotics...

don't know?!

just a thought...

thx...

[shennan]

woman are told to drink a lot of cranberry juice before and during the uti.

could the kidneys become too acidic and then secrete acidic urine down the ureters, which then breaks the bladder lining down?!?!

i actually took valproic acid for about 3 months prior to taking 3 months of tegretol, for bi-polar, then i got ic. had the 3+ on the bacteria, 10-15 on my white blood count, positve nitrites, and 1+ on the leukocyte esterase.

hmmm...

i think the urine changes in the kidneys and that's what makes things change in the bladder.

my ph was 5.5 when i had this uti. i thought uti's show up when the urine is more alkaline.

i guess the questions is still this: how does the lining not stay good for ic'ers?!?!

i am no doctor...

i just think that the urine changes and breaks down the mucous.

shenna :hmm:

[Annie2]

Sorry, I guess I really didn't understand your question. All my infections were treated with Septra (same as Bactrim-sulfa) and that did the job for me. I was on Bactrim when I got that first negative culture result. Tried Cipro then, too, but of course had no results since it turned out I didn't have an infection.

Come to think of it, though, 6 months before that last nasty true infection, I was traveling in Europe and came down with a respiratory infection. I was given Cipro to take for that. It was the first time I had taken Cipro. Hmmm...could there be a connection? I had never considered this until you mentioned it.

Annie

[Sharon]

I don't know if cipro had anything to do with my getting IC or not, it was the drug I took after my first infection, and my IC symptoms did start shortly after that. For many years I was given cipro for this or that, if anything it usually seemed to calm my bladder down, my IC symptoms were very mild after my first bladder infection . Then one day, same symptoms, different doctor, I was given the drug macrodantin, and I have had full blown painful IC ever since. Again, I don't know if it had anything to do with the macrodantin, it's just my experience. I can also relate to having hormone changes at the same time, and a lot of stress.

[shennan]

my hormones went wild, too, sharon.

annie, wonder if cipro had anything to do with it?

i guess, though, cipro wasn't around when ic was first documented, though.

darn....

i still think the urine changes and kills the lining, imo.

from what, who knows?!

i don't think it is bacteria, though.

all woman would have ic, then.
lol...
:hmm:
shenna

[shell]

I developed IC in my late teens, about 17 years ago. I'm not sure which came first, the IC or the UTIs. I hadn't seen a doctor in 15 years and had been having symptoms for 1 1/2 years before I went to a doctor for my IC/UTI symptoms. At that point, antibiotics didn't eliminate any symptoms. I've always figured I could be to blame for my IC - I should have gone to the doctor when I first had symptoms. Maybe untreated UTIs caused my bladder problems?

I took Cipro for the first time last spring for a medical issue totally unrelated to IC.

[ICNDonna]

I have never taken Cipro. IC is not a new disease. It was around before antibiotics were widely used. Unfortunately, it wasn't often diagnosed, but was one of those things they called "female problems."

I remain hopeful that a cause will be found soon --- because once a cause is found, a cure will follow.

Hugs,
Donna

[shennan]

think tegretol activated some allergic reaction in my alrady damaged bladder from vesicoureteral reflux.

:(
shenna

seems like there are too many reasons people think they get ic.

i still think something goes wrong with the filtering of the kidneys.
somehow something gets into the bladder and damages it, imo.

toxins?
virus?
something?
all in my opinion, of course.

:bonk:

[Betsie]

I did start off with a UTI...then a series of antibiotics due to reactions, then surgery unrelated, and yet gyn in nature and finally eight weeks later my hydro.cystoscopy. This was in addition to some abdominal gyn surgery....so for me it is so hard to rule out one particular issue. Though looking back I was having the start of stress incontinence in teensy amounts and very infrequently. I still think this is all a tiny part of some huge "blanket" disorder and eventually we will be connected to things that other people suffer from....and/or things we also have. I just think it is too coincidental that so many of us suffer from multiple chronic issues. In the meantime, I hope we all find ways to make each day count. :idea:

[Jeanne D.]

I also started off with a UTI. I was treated with Keflex. The infection abated with the antibiotics but returned 7 times within a 14 month period. With the 7th infection, I went to a urologist. I was diagnosed with Eosinophilic Cystitis. My urine cultures are usually negative. In the rare case that I do have an infection, I am treated with Cipro. I am prone to pyelonephritis due to vesicouretero reflux. The cipro always works and always makes my bladder symptoms lessen.

By the way, Levaquin is in the same drug family as Cipro. Either drug can be used to treat a UTI.

Jeanne

[WeeweeHurtz]

:woohoo: I had a UTI then got IC. I hadn't had a UTI in years then got a horrible attack with pains in lower abdomen. The dr. prescribed Macrodantin but I only took it for 3 days cause I was having side effects. After that I needed Bactrim...and was on and off that stuff for a whole year along with yeast medication,Terazol, to get rid of the sulpha yeasty side effect (there was no yeast problem until I started the sulpha drugs). I never had Cipro. I was drinking cranberry juice daily, which I was advised to do, probably the worst thing to do! Now I have to watch everything I eat like a hawk. I just tried that "Good Friends" Kashi cereal that is recommended on the site here and happily it is agreeing with me after eating cereals with dried strawberries all year that may have been aggravating my situation.

[poetgirl]

When I had recurrent UTIs, I was usually prescribed Macrobid and that usually cleared it up, although one time I was on a prophylactic course (one every other day or just after having sex) and developed a breakthrough infection. I don't recall what was prescribed then to clear up the UTI. I had recurrent UTIs for about 5 years.

[ICLori]

Mine started that way. Had a UTI that supposedly was gone but it didn't feel gone.

Blessings, Gentle

[bunny]

They put me on cipro, bactrim, and one other AB. And that is how my IC began.

Nancy

[Sharing]

think tegretol activated some allergic reaction in my alrady damaged bladder from vesicoureteral reflux.

:(
shenna

seems like there are too many reasons people think they get ic.

i still think something goes wrong with the filtering of the kidneys.
somehow something gets into the bladder and damages it, imo.

toxins?
virus?
something?
all in my opinion, of course.

:bonk:
-----------------------------------------
I agree with you Shenna,
I some-times think i got mine from the tap water at work--cause thats when this all started --but who knows!