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View Full Version : newly diagnosed - cysto/hydo/dmso friday!


NikkiDawn77
12-01-2004, 06:53 PM
I was diagnosed in September and I am getting my cysto/hydro/dmso on Friday the 3rd, in two days. anybody know what dmso is like? I live in Montana and everyone keeps telling me that they use it on horses and cows!! :biglaugh:
I have been feeling well for the last few days, with a rigerous IC diet and of course, my marshmellow root tea! I just do not want the pain to come back!
I realize that it is probably inevitable, but later rather than sooner would be good.

If your in need of a laugh, here you go. I work at the hospital where I am haveing the procedures done and I know that everyone is supposed to be professional, but... I just can not seem to be able to decide if I should shave, you know, down there, all cutesy like I usuially do, or not. :bonk: sometimes focusing on the little things....

vm
12-02-2004, 01:26 AM
:welcome: And I am chuckling at your last paragaph - you have an awesome sense of humor. :lmao: I think thaat really helps in coping with IC and the emotional rollercoaster that it often brings.

Good luck on Friday!!!! Make sure to let us know how it went. :)

SharonA
12-02-2004, 04:01 AM
:welcome:

Hope the procedure goes well for you. When I had the c/h, there was no shaving involved. :woohoo: So happy about that as the growing out process is a major irritation...in more ways than one. ;)

ICNDonna
12-02-2004, 04:29 AM
There's no shave prep for a cysto/hydro. I am retired now, but worked at the hospital where I have my hydrodistentions. I think it makes it much easier to have familiar people treating you in a familiar place.

Sending warm healing thoughts,
Donna

traceann
12-02-2004, 06:43 AM
I got laughing at the "shaving" question, my anecdote isn't in relation to a procedure, it's to the last "get me in quick" appt at the gyno's...I was so embarrassed, why I don't know...Usually the "lawn" stays mowed quite drastically, lol, and I try to let it go naturally for such appt's as yearly's etc. (Just for my own sake I suppose! LOL). Well, there I am sitting under the sheet and all of a sudden I realized that my 'do was drastically different from the last time I was there, I wanted to just die. But I kept myself relatively calm and cool but chanting to myself, "he's a doctor - he's seen everything" over and over again. Ugh, oh well, it was bound to happen eventually I suppose, and now that I am "out of the shaving" closet, I can relax about it!!!

LOL, Tracey

NikkiDawn77
12-02-2004, 03:03 PM
Thanks everyone! I neede a pick me up and I am so glad that I found all of you, I finally feel like someone really understands! Thanks for the "lawn" story, I got a kick of it. Has anyone else done the DMSO? and I read somewhere that someone had lidocain infused also? Anyone? anyone?
NikkiDawn

Katrina
12-02-2004, 03:51 PM
I hope your procedure goes well. I have done DMSO and it helps ALOT to have lidocaine put in first separately and than the DMSO! I recommend being prepared for some increased pain followed by feeling better! Sometimes it takes a few before you get results but I suspect it won't take too long with you. I think it is a good idea to have someone with you and possibly a joke book or something to keep your mind off of things while you hold it in. My doc had me change possitions a few times to spread the med out. Some people go strait home but if you do I wouldn't want to be the driver and may want to plan stops and such. What is the distance between home and doc office? Do you know how long he is planning on you to hold it?

Good luck!!!!!!!!
:grouphug:

NikkiDawn77
12-03-2004, 04:09 AM
I am going in to the hospital where i work to have the procedure, so I will be under general the entire time, I am nervous but I think that is good, especially for the hydro.
I live in rural montana so the hospital is only 10 min from home and my husband will be with me.
Thank you!

traceann
12-03-2004, 07:46 AM
Glad I could make ya smile! LOL It is nice having people who "get it" isn't it? I know it's been a wonderful thing for me! I don't have a computer at home anymore (kinda lost that in the divorce), so I rush now to work for help and advice and most important of all, understnading! What a relief!

Tracey :)

NikkiDawn77
12-03-2004, 05:28 PM
I made it. I have been home for a few hours, I am totally exhaused, but so far that is the worst of it. i was in a bit of pain right when I came to, but I had some morphine and a rest and haven't had any meds since (8 hours). No cancer, and no stones so it is definate now, IC. I supposed I am relieved that it is not cancer and a bit dissappointed that it wasn't a stone (or 10 for that matter). My grandmother also has IC so we were pretty sure anyhow. Thank for all of you support and good luck, I think it worked!

vm
12-04-2004, 05:38 AM
I am glad the procedure went well for you. :)

Traceann - You are hilarious with the "lawn story". :lmao: Made me smile, too.

SharonA
12-04-2004, 11:47 AM
Nikki...I am glad things went well. Do take the time to rest and recover from this procedure. :)

Yeah...the "lawn story" was very funny. :lmao:

ShelbySW
12-05-2004, 10:16 PM
Nikki,
I just had the h/d with a DMSO on 11-16. I wish I"d have seen your post sooner and I'd have told you what to expect .... GARLIC! Everything tasted like garlic and my family told me I smelt like garlic for 24hrs. It was weird. However, I've had an h/d before but w/o the DMSO and I found it extremely painful. No pain medication was effective enough. This last one was much better! All I wanted was the Peridium (the pee-funny-color-pills). When I told my nurses how great I felt and I wanted to know what they did differently because I was in less pain after surgery than I am on a normal basis... the dropped the "S" bomb on me and I wanted to DIE! They told me that my doc. wanted to stay ahead of the game and gave me a suppository that releives pain. I was SO embarrassed! I'm very fickle about that part of my body... EXIT ONLY!!!!!!! I will take 20 pills to control pain before I let anyone put anything up there again!
Oh, by the way, about the shaving... I had to let my husband read that. We had a great laugh because after my last distension we had the same conversation. How next time I need to shave a design or a phrase just to make the docs and nurses laugh when they're in an unpleasant area. My family and I have discussed getting a tattoo of a stick figure pushing a lawn-mower through the patch of hair, and just shaving that corner off, so it looks "mowed." I bet the hospital wouldn't forget it! Something to do just for fun!

traceann
12-06-2004, 06:11 AM
Shelby that is way too funny! What a great idea, I mean heck, with this crap seems like everyone in the world has a peek or a poke at ya, doesn't it? So, we might as well do all we can to be "fashionable" LOL! I can see it now..."oh wait honey we can't go the doc's yet, I gotta do my "hair", LMAO!!!" Sheesh, :) , we gotta laugh at something don't we, otherwise I would be crazier than I already am!

Tracey :)

ShelbySW
12-07-2004, 10:05 AM
I know the crazy feeling! I swear my husband questions my sanity every day! He deffinetly got more than he bargined for!!! I tried shaving a heart one time because my husband said he's never seen a heart-shaped *ahem*. It didnt turn out so well. I kept having to shave more and more off to try and make it look right and I ended up having to shave the whole thing. Then I wouldnt let my husband see for 2 weeks because I felt like a little girl. He said "maybe I'll like it." I told him if he liked that I'm turning him in for being a pedofile!

traceann
12-07-2004, 10:09 AM
Oh my god, I know exactly how that could happen, my "just a bit off the top" once turned into a full blown "all gone"! It was hilarious!! You take a little bit here, and then it's uneven over here, so you take a little bit there, and before you know it....

Tracey, still giggling and the guys at work are wondering why....:)

VickiB
12-07-2004, 03:42 PM
Hi NikkiDawn, and welcome to a 'neighbor'! (I'm next door in Idaho) Geez, if they use it on horses & cattle, I wonder if we could get a price-break by having the vet out to do it?

Tracey & Shelby, thanks for the laughs,...you gals & your hair-dos! I do like the lawn mower guy. How 'bout a golfer?.... Maybe looking for his ball in the rough? Oh, the places we could go with this!

Vicki

Sarojini
12-08-2004, 03:00 AM
LOL.... :lmao:

This shaving thread gave me a good laugh :lmao:

I've done it before too.... once I had my fuzz waxed off. Then had to go to the uro. I realized it was going to be embarrassing, so I said, "I waxed" when she was down there to head her off at the pass in case she commented. She said, "I see that... it might itch when it comes back in" and gave me some super-duper anti itch cream to put on it if it did ;) :lmao:

traceann
12-08-2004, 06:54 AM
Oh my, what a brave girl to go for the waxing!!! I tried at-home waxing of the "bikini line" one time ( I emphasize the "one" ), cause I got so tired of shaving, waiting for the horrible red bumps to go away (my skin is super sensitve), and by the time they did, it was time again to re-shave. UGH. Soooo I got the brillant idea of at-home waxing. I couldn't walk right for a few days, but I gotta say, that a week later after I healed, lol, it lasted a long time! LMAO! Oh Jen you are so lucky to have a woman doc!!

Tracey :)