Do they work?

[XoChelsey03Xo]

I visited my uro today. I am so overwhelemed with IC. It has really gotten to me since I was diagnosed. I can't even concertarte anymore at all. I have droped out of all my college classes because I haven't felt well at all. My uro suggested getting a nerve stimulation. She gave me a video to watch about it. I'm not really sure. I have a GI problem and it seems like I cannot eat anything. I have went several days without eating before because food makes me so sick anymore. I can't believe all of this. I'm so tired and it's affecting my life. I'm only 19 and I feel as if my body is 70 years old. Sometimes I feel like rolling over and dying. The uro said that the interstem really helps with eating anything. Have other people had great success with this. I figured up, I take 91 pills a week. :( Chelsey

[codyryonwoodward]

I am not sure as to what you are asking. If you are asking if the interstim will help you eat foods and not effect your baladder?. With mine I still had to watch what I eat. I still gets flare if I eat certain foods that mess my bladder up. I cant say if it will help if you get acid reflux or upset stomach from certain foods? Have you tried Preleif to help with foods that affect you bladder? If not maybe you can try this. You can get it over the counter at most parm. Please try every thing possible before you get the interstim. I have had mine since 2001. This is usually used as a last resort when everything else has failed. Also the interstim is not for pain. I am not sure if you have pain or not. Sometimes it will help with pain but that is a plus if it does. The interstim is for urgency and frequency. And sometimes the interstim will not work like it use to. If you fall or have an accident and the lead wire moves even a little bit the unit will not work like it use to. I am having problems with mine now b/c of that.

I know you are young. I was 25 when my IC started. But dont give up. Stay as postive as you can. Start out having beliefs that something will work. If it doesn't move on to the next thing. Never give up hope that you will find something that works for you. Right now nothing is working for me but I have to believe that someday something will work for me. If I give up hope I will be of no use for my kids and my faimly. They need me. Please believe in your self and do not give up. I will be praying for you.

Patricia :grouphug:

[tiggerfan]

Can you tell me about the Nerve Stimulation implantation, my doc wants to do it.

Christina

[Babs RN]

Chelsey,
If I am not mistaken, Orange Park is in the Orlando area? I am coming to my parents for 6 weeks early next year(once I get my surgery date I will know better) and let's meet up and chat. I think you need a vent with a fellow sufferer and wait, no wait, we own a time share at a spa in Orlando and you need to think and unwind and I want you to be my guest. I had someone give me the love and support I needed today and I need to pass it forward. So my dear since you are not in school we will be spending a week at the spa. Don't worry, I have to burn the points anyway, so I am not outlaying thousands of dollars cuz no offense, if I had that kind of extra I'd be on a cruise. Look for end of Jan, beginning of Feb--even if you want to just sleep, this is a great resort and if you are looking at surgery, you need a break. PM me and I will give you my home number.

Hugs and no excuses,
Barb :grouphug:

[SaraJ]

I have a PNS instead of the interstem. It attaches to Sacral nerves 2,3, & 4. Mine works great. I can still have flares, but they are not as bad. my bladder stopped being over active within the first couple of days, and the second night was the first time I sleeped all through the night. I had the same thing. Nausea & the runs all the time. Since the implant, I have been able to eat better. I still have bowel problems but once you get used to the unit (if it is like the one I have) it slows down. I know that I have done all other treatment options. Instills (every three days), 28 pills a day, pelvic exercises, 8 surgeries and numerous other procedures. So far the worst thing has been getting used to the unit in mu side and sitting!!

[XoChelsey03Xo]

Chelsey,
If I am not mistaken, Orange Park is in the Orlando area? I am coming to my parents for 6 weeks early next year(once I get my surgery date I will know better) and let's meet up and chat. I think you need a vent with a fellow sufferer and wait, no wait, we own a time share at a spa in Orlando and you need to think and unwind and I want you to be my guest. I had someone give me the love and support I needed today and I need to pass it forward. So my dear since you are not in school we will be spending a week at the spa. Don't worry, I have to burn the points anyway, so I am not outlaying thousands of dollars cuz no offense, if I had that kind of extra I'd be on a cruise. Look for end of Jan, beginning of Feb--even if you want to just sleep, this is a great resort and if you are looking at surgery, you need a break. PM me and I will give you my home number.

Hugs and no excuses,
Barb :grouphug:

Thanks Barb Orange Park is 3 hours away from Orlando. Orange Park is a subberb right outside of Jacksonville. A day at the spa does sound great though. Chelsey

[Babs RN]

Got rental car will travel. You're on. I will come get you.

Barb :grouphug:

[anxious one]

Hi Chelsea just wanted to give you some hugs :grouphug: :grouphug: I know how you feel. I'm 24 and I hate this stupid disease that has taken over my entire life. :mad: My uro has also said that nerve therapy is probably my only option besides DSMO, (freaks me out YUK!) but my health insurance won't cover me for another 9 months. :mad:

You are not alone sweetie.

By the way Babs, a day at the spa sounds great!! Have you a rental plane you could come and get me too!! :lmao: I can dream...

Sara