Diagnosis in I have IC

[Trishie]

I had my cysto/hyro today, and I have IC. :loco: The uro today took pics and I have the classic pinpoint bleeds (alot). Anyway he sent me home with Toradol, Urised, Elmiron and Vicodin (told me to keep taking the ditropan
xl). I guess @ least I know why I pee all the time! Kinda depressing for me but @ least after 4 yrs I know what is wrong.

[shinana]

:angel: Hello Trishie, I had a cysto last week and am scheduled for hydro with DMSO Nov 10th. There are days I have a lot of pain, however today for some reason I feel pretty good. What I wondered is, are you going to get the DMSO?

[work it]

Trishie,
It's a good feeling to know what is wrong and to be on medication. That how it was for me anyway. After eight years of frustration they fianlly figured out I have IC. I can deal with the fact that it takes awhile for the medication to work because at least now I know that there is light at the end of the tunnel. Good luck to you.

[Trishie]

Shinana
He gave me a DMSO treatment today. Forgot to add that to the drug list, I think I am still groggy from the procedure. I have only been home about a hour. Anyway I REALLY feel like I have to pee (worse than before). :yikes:

[vm]

That feeling will get better, Trishie. Your bladder and urethra are screaming out from being invaded by that scope.

Welcome to the boards, btw. It sucks to have IC - but it is so good to know now and be able to get started on all those treatments. You are on the road to feeling better. :)

[Myli]

First, :welcome: !!! Glad you are with us. You have found one of the nicest, most supportive group of folks online.

I'm sorry to hear it took so long to get your diagnosis! What you are experiencing is pretty par for the case in the beginning of treatment. I often still have increased frequency urges for up to a day afterward. Hopefully, you will soon be feeling better!

Knowing is a blessing in many ways. I found it a great relief to name it. Now, I can look around from a more realistic viewpoint and find treatments that work for me. Without knowing the name, I might never have found these boards and this website with the treasure trove of information and a caring community. And, given my love of research on the net, I might have found it and said, this can't be me.

If you haven't had the chance, be sure to check out the online patient handbook located on this website. It is a gold mine of information. One of the valuable tools is the IC diet, which by itself often offers fairly quick relief of some of the symptoms. You will find the handbook here: http://www.ic-network.com/handbook/

:grouphug:
Myli

[Katrina]

:welcome: so sorry you have IC. I know the mix feelings about it well. :grouphug: Your doc seems to be medicating you well ....I hope your treatment works out well for you.
:kiss: