Just was disgnosed....

[since1868]

I thought I would update in this thread since I went to the doctor and he did the TEST and told me that I do have IC. To make a long doctors apt. short I am now taking the following meds..... Elmiron, Elavil, and Atarax all for IC. He said they all may help w/ the pain and w/ the spasms. I am also going for the next 9 weeks for treatments. These treatments are "heprin" (sp?) treatments to help out as well.

An suggestions would be great on pain management, husband management, and life stlye changes.

[ICNDonna]

Now you know. I think my most difficult time with IC was that time before I was diagnosed.

Your job now is to learn as much as you can about IC and its treatment options. It does sound like your doctor is on the right track there. Are you following an IC diet? If not, I suggest you begin now. You'll find the diet in the Patient Handbook at http://www.ic-network.com/handbook/

I'm sure what you mean is heparin, which can be instilled into the bladder and helps many IC patients.

Sending warm encouraging hugs,
Donna

[vm]

Sounds like you have a wonderful start on treatments! You must have a uro who knows what he is doing - that's awesome. :) It helps so much to feel like we are working with someone competent and who knows his or her "stuff".

[Dixiefireball]

I agree with the others it does sound like your doctor is on the right track :)
I take heparin treatments at home and its been a blessing to me.
before i started doing these treatments i was in a much wrose state.
I hope it works great for you too.

Also like Donna said the IC diet can be a lot of help if your not already trying it please check it out.
Also please remember that diet isn't set in stone your body can only decide that.

Sending you hugs and prayers
Rhonda

[since1868]

Thanks for all your prayers and thoughts. I am starting to follow the IC diet and luckily there is no chocolate allowed in my house b/c I daughter is allergic to it. I plan to sit down w/ my husband and talk w/ him regarding everything tonight.

As for my doctor, my OB is the one taking care of me. My URO does not even know that I have IC. I have been seeing my URO for over a year and he never tested me for this. So my plan is to stick w/ my OB and see how it goes. He seem to be into this subject and is looking into other treatments for me just incase!

I will keep you up to date!

Thanks!

[Myli]

/bonk your uro!!! (bonk is a quick tap to wake someone up, online mmorpg is it's origin.)

Glad one of your doctors is awake and aware!!

/hugs
Myli

[Katrina]

I am on Heparin too! :welcome: so glad you found us!
http://www.ic-network.com/forum/showthread.php?t=7562 this link is a pain managment post. The second page has 4 attachments...the last one is a list of ideas for IC pain.....take a look if pain is problem for you. I love the handbook but my list of ideas is something I wish I had as a newbie. I hope you get all the relief you need. Stay in touch.

[ICLori]

Good for you that you have at least one good doctor, and a diagnosis now and the best treatment available!

I think you will soon be feeling much much better!

Blessings, Lori

[sadgirl1950]

the only way i can use this board is ansering u guys wish i could put my own post