Magrone
10-11-2004, 04:03 AM
Hello all,
I have recently been diagnosed with IC and am so grateful to have found this website and these message boards. I have been devouring information in preparation for my next urologist appt.
My story in brief: history of endometriosis (thus almost every doc I have seen in the past three years has said that is the cause of my chronic pelvic pain), had a lap to remove cyst and endo in 2002. Was pain-free for six months and then pain returned and got progressively worse. I also developed urinary frequency and problems voiding. Had a colonoscopy for bowel problems and found a benign mass in my colon (not considered to be cause of pain). Eventually one gyno suggested I had IC. I had a cystoscopy two weeks ago when I had another lap to remove endometriosis. The result? IC. That was confirmed in my mind even more after the same old pain came back after I recovered from surgery. If the endo was gone and I still had the same pain, I knew the pain must have been IC all along.
I am relieved to have a diagnosis but still frustrated and exhausted by the two + years of pain and doctor's appts that led me here, and the work that lies ahead.
So far I am on an antihistamine (prescribed immediately after the cystoscopy) but return to my urologist next week, at which point I will discuss Elmiron and other options. I am also interested in exploring physical therapy, as I think I may have pelvic floor dysfunction. To the people who have already tried this, I would be interested to know if you have one particular point in your pelvic region that you can identify as a painful spot. I have one spot that I feel all the pain radiates from, and can touch it on the skin and it hurts like hell. feels like an injury might. Could this be a trigger point?
My cystoscopy was done in CT (Where my gyno/endo specialist is) but I live in NY so am considering going to see Dr Moldwin.
So that's me! I look forward to sharing and hearing more from people here.
thanks,
Magrone
I have recently been diagnosed with IC and am so grateful to have found this website and these message boards. I have been devouring information in preparation for my next urologist appt.
My story in brief: history of endometriosis (thus almost every doc I have seen in the past three years has said that is the cause of my chronic pelvic pain), had a lap to remove cyst and endo in 2002. Was pain-free for six months and then pain returned and got progressively worse. I also developed urinary frequency and problems voiding. Had a colonoscopy for bowel problems and found a benign mass in my colon (not considered to be cause of pain). Eventually one gyno suggested I had IC. I had a cystoscopy two weeks ago when I had another lap to remove endometriosis. The result? IC. That was confirmed in my mind even more after the same old pain came back after I recovered from surgery. If the endo was gone and I still had the same pain, I knew the pain must have been IC all along.
I am relieved to have a diagnosis but still frustrated and exhausted by the two + years of pain and doctor's appts that led me here, and the work that lies ahead.
So far I am on an antihistamine (prescribed immediately after the cystoscopy) but return to my urologist next week, at which point I will discuss Elmiron and other options. I am also interested in exploring physical therapy, as I think I may have pelvic floor dysfunction. To the people who have already tried this, I would be interested to know if you have one particular point in your pelvic region that you can identify as a painful spot. I have one spot that I feel all the pain radiates from, and can touch it on the skin and it hurts like hell. feels like an injury might. Could this be a trigger point?
My cystoscopy was done in CT (Where my gyno/endo specialist is) but I live in NY so am considering going to see Dr Moldwin.
So that's me! I look forward to sharing and hearing more from people here.
thanks,
Magrone