Its Unpredictability!

[songbird7]

Unpredictability of Ic is very hard for me to deal with. I am thankful for the good times but it sometimes is like the rug is taken out from under me. When I start thinking things are going better, at some unpredictable time I will flare, hurt, relapse, whatever. I'm focusing on the times it is better but it is discouraging sometimes, especially when I've followed the IC diet and haven't done anything more than to lie down and rest.
Prayers for everyone with IC,
Gentle healing,
Songbird

[green_the_fish]

I know what you mean!
I keep a voiding diary, and a few days ago I was so happy because I only voided 15 times that day, but then the next day I voided 25 times :(
Hugs to you... :grouphug:

[ICLori]

Yes, it's maddening, isn't it? I had about seven months of non-stop pain, urgency/frequency, and now today I am much better. But why? Lupron? Antibiotics? Or just some trick of the disease? Who knows? This disease makes all of us feel unsure.

And you can't make plans ahead - because who knows how you will be feeling tomorrow, or next week, or next year? Very annoying.

I like how the nice uro I met last week phrased it - he called IC a "mean disease." I think that's the perfect description for IC!

I hope you will be feeling better very soon.


Blessings, Lori

[kadi]

Wow, Lori. You found a good one! It is amazing how our burden is lightened when someone understands!

Unpredictability? Yeah, I try to keep my plans "light", have made very few long-term commitments at this point. One thing I've found helpful is that I now have different interests at varying energy levels. Before IC, all my interests were things that required lots of energy & stamina (or concentration)--travel, hiking, reading long novels, all of which don't work well when I feel bad. Now I have light magazines with short articles to read & small crafts projects to work on when I feel crummy & I head outdoors for mini hikes when I feel better. It's funny because when I feel good, I want to do all my good-day activities at once because I'm never sure when I'll feel that good again, but then I get tired & flare from being tired. Gotta learn balance, I guess.

Wishing us all good days...

[songbird7]

Thanks everyone for your kindness and understanding,
Warmly,
Songbird