View Full Version : I'm new and kinda freaked out by this!
10-03-2004, 03:28 PM
Hello everyone................i am newly diagnosed and am very uncomfortable. I dont take meds well, so the one he gave me to relax the bladder makes me uncomfortable. i heard some of you say a heating pad works right? i just wish i idnt have the feeling of having to pee constantly...........its so aggravating. also, does anyone get achy legs and lower back with this? Any info would be helpful :thumbsup:
Thanks all for listening..................god bless!
10-03-2004, 03:48 PM
First of all, I'd like to say :welcome: to the IC Network.
I have to ask --- does the medication make you physically uncomfortable, or is it ust that you don't feel right about taking pills? If it's the latter, I do encourage you to take them; do whatever you need to do to remind yourself. It can make such a huge difference in how you feel.
If the medication is causing physical symptoms, I suggest you call your doctor to see if there's a substitute available.
Sending warm healing thoughts,
Hi Jennifer, Welcome!
Yes, I used to have backache & achy legs when my IC was bad. And yes, that sensation of having to pee all the time is maddening! Now that I've found some treatments that work for me, I don't have that all the time anymore. If the medicine you're taking is bothering you, be sure to call your doctor back & let him/her know. It is not unusual for IC patients to be sensitive/intolerant to meds. There are a number of different medicines available to ease bladder spasms & hopefully lower frequency/urgency. So, if the one you're taking isn't right for you, there is probably another option. There are also medications available to help with other symptoms, such as pain or nocturia (frequent nighttime awakenings to pee). The IC diet is helpful to many of us as well.
For some of us, a heating pad or patch is helpful, for others an ice pack is helpful...
If you're newly diagnosed, I'd like to recommend to you the Patient Handbook part of this site, linked below. It has lots of useful information on self help & medical treatments available. Also, you can find the IC diet in that section. (That alone reduced my symptoms significantly)
Wishing you better days soon! And please come back and post as often as you need! This place is here to help-
10-03-2004, 11:02 PM
I have lower back pain too; it feels like it is right between my hip bones. Good luck finding some meds that will help you!!!
10-03-2004, 11:21 PM
:hi:Jennifer :welcome:to the ICN!
http://www.ic-network.com/handbook/ this is an essential link for everyone with IC. It is very informative on meds, living with IC, and self help....take a look!!!
http://www.ic-network.com/forum/showthread.php?t=7562 this link is a pain managment post. The second page has 4 attachments...the last one is a list of ideas for IC pain.....take a look if pain is problem for you.
I have gotten achy legs and lower back with IC pain. I hope you find a way to feel better soon!
10-04-2004, 12:32 AM
Hi Jennifer Welcome,
Wanted to welcome you and hope your able to find a treatment that works for you! I use a heating pad or a heating patch. I do get back pain and leg pain but I have problems with some discs in my back.
Take care and hope your feeling better soon,
10-04-2004, 01:36 AM
:welcome: to another Jennifer :)
I'm glad you found this site; you've been given some great advice already. I want to encourage you to check out the Patient Handbook as Kadi suggested -- it is very comprehensive and discusses treatments and lots of self help strategies.
I often get back or leg pain with my IC in addition to the pelvic pain -- I think that's fairly common among us ICers. I used to feel that I constantly had to pee too, but with meds it's gotten better. I still have to go more often than most people, but in between times I often get some relief now, which is good. You will too, but it's likely you will need to take meds to get there (I do). Please discuss the med situation with your doctor, because they can really make a difference.
Good luck, and post whenever you want, we're glad to have you!! :)
10-04-2004, 01:55 AM
Hi welcome to our family :)
I too have lower back pain with ic.... I agree with Donna, if the pills don;t bother you physically, you should take them.....
10-04-2004, 05:50 AM
Welcome to the ICN boards. What medication is making you uncomfortable? I am on uroimax. When I first started taking it my stomach was hurting really bad. It made me pee a lot and my stomach felt huge. After my cysto/hydro the uroimax didn't do that anymore? I don't know if it was the meds or something else? I hope you figure out what is bothering you. Chelsey
10-04-2004, 09:42 AM
:welcome: Jennifer. Glad you have joined us. :)
10-04-2004, 04:40 PM
Hello and welcome. IC is frustrating but once you find the right "comfort" it becomes easier to live with. I look at my night stand table and hate that I see a basket of pills but they do help. The heating pad also works for me and when I am in a bad flare I do a hot bath then the heating pad then usually straight to bed. I hope you start to feel better soon.
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