View Full Version : I'm new to these boards
10-01-2004, 06:33 PM
I just found out today that i have....IC.
Ii have head this really intense burning in my pelvic area that I have been suffering with for over 3 years,and finally i'am hoping this is what the problem is "ONLY"....so i know what the problem is!.I have dealt w/this pain for so many years, it has been driving me crazy wondering what it could be. Can any of you out there tell me if you have had intense burning ,that seemed to be buried deep in the pelvic area? and if the weather seems to make a difference pain wise. I'am going to have my bladder streched and has any-one had that done.?.........thanks : :hmm:
10-01-2004, 06:54 PM
:welcome: to the IC Network. I'm very glad you found us. There's a lot of information and support here. I suggest you read the information in the Patient Handbook at http://www.ic-network.com/handbook --- it contains chapters on treatment options, including the IC diet, which I think is very important.
The "stretching" you mention is most likely what we usually call hydrodistention (some refer to it as over distention). It's done under anesthesia and is one of the best ways to confirm diagnosis. The good thing is that some find it eases their symptoms for several months.
Sending warm healing thoughts,
10-02-2004, 01:44 AM
i was just diagnosed a couple of weeks ago myself. I had my Cysto w Hydro a week ago. ( stretching of the bladder) it went really well. The only real pain I had was peeing the first couple of times. The buring that you describe is my main complaint with IC. I have a very intense burning almost all of the time right up through me. I'm not on any meds yet. Will be seeing my uro Nov 2 to discuss treatment. Is there any meds that you take that helps the burning? Welcome to these boards :welcome: everyone is so nice and helpful here. Take Care and good luck
10-02-2004, 02:01 AM
10-02-2004, 02:08 AM
Thanks For The Info,i Have Been On So Many Meds I Can't Remember Them All,i Have Different Health Issues Going On W/me.my Doc Just Gave Me A Med Called Ditropan Starting At At 5 Mg.i Take A Half One Of Those 2 Times A Day.if This Is Where All Of The Pain Is Coming From Then ,at Least I Have A Idea What It Is Now After 3 Years.
10-02-2004, 02:18 AM
Yes, I know what you mean... I think the worst part of this disease is not knowing what the Heck is wrong with you.. I was sick for about 7 months before being diagnosed and it was truly torterous. I feel blessed to have a diagnosis and for it to have taken less than years seems like a miracle. We will get through this..
10-02-2004, 02:28 AM
Thats Excatly How I Feel .i Have Different Problems Like Irratable Bowel,colitis,fibromyalgia,arthritis,and 6 Different Opeartion On My Stomach,over The Past 20 Years,it Was Hard To Tell What Was Causing It,then Again Some Docs Play Around Way To Long For ,instaed Of Sending People For The Test,(to My Uro,) They Tried A Couple Hundred Meds....lol. But I Really Think This Was A Hard Case Just Because Of My Past Problems.but Hey What-ever I'am A True Believer In God,and He Can Handle It For Me.......lol
7 Days Without Jesus Make 1 Weak.
10-02-2004, 02:58 AM
:welcome: ...Everyone here knows exactly how you feel, and we are all here to help each other.. :)
10-02-2004, 03:02 AM
hi there and welcome to the boards.. you come to the right place for support.... you may also want to talk to your doctor and see if you may have pfd (pelvic floor dysfunction) ..
10-02-2004, 03:13 AM
:welcome: to the ICN!! I'm glad you found us. I had a cystoscopy with hydrodistention (stretch) in March and it really wasn't too bad; I peed blood for a while afterward, it burned to pee for a while, and I just felt sore and bruised in the bladder area -- but it lasted about 4 days and then everything was back to "normal." Unfortunately, I did not get significant relief from the hydro for very long, but at least 50% of people who have them do, so you may be feeling lots better in no time at all!!! :)
10-02-2004, 03:34 AM
Did You Have Any Weight Gain Or Lost?
:welcome: to the boards - glad you found us!
10-02-2004, 03:59 AM
Welcome! You will find lots of info and support here.
The weight gain, or loss, probably depends on what meds you are on. For me, that's elmiron, elavil, and until yesterday, vioxx. I have gained some weight over the two months I've been taking these. I suppose it's just like any other stressful time in my life, eat for comfort. I haven't figured out the exercise routine that keeps me busy (away from the food) and yet doesn't cause too much discomfort or a flare.
10-02-2004, 05:01 AM
I Was On Vioxx Until I Seen The News, I Stop Taking It,i Was Also On Lexapro 40 Mg. A Day Down To 1/2 Now,trying To Get Off A Lot Of These Stupid Pills..lol.
10-02-2004, 05:03 AM
Yes,i Have Thought About That Also..thanks
10-03-2004, 06:10 AM
:hi: and :welcome: to the ICN family you will find loads of support here.
sending you hugs and prayers
10-03-2004, 10:14 AM
hi and welcome. i hope you find releif soon.
10-06-2004, 06:05 AM
welcome nice to meet you. just been diagnosed myself learning alot 'bout this disorder . handbook has been helpful
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