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View Full Version : Newly Diagnosed and Pregnant (long)



bluegreen
10-01-2004, 05:17 AM
Hi everyone! I'll likely post this here and in the pregnancy area. I'm excited to find this message board - I had found a few other sites on IC, but this seems like just what I need right now :)

I'm 32, currently 24 weeks pregnant with my first baby, and was diagnosed with IC around 12 weeks (I began having problems with it around 7 weeks). I either didn't have IC before I got pregnant, or had it and didn't really have any symptoms.

Around 7 weeks, I started to have the feeling that I constantly needed to urinate (even though I didn't - just lots of presure on my bladder), as well as a few episodes of some fairly intense waves of abdominal pain (that often moved into my back). Needless to say - not what you want to feel during pregnancy! After three rounds of antibiotics for what seemed to be a UTI and a few trips to the emergency room (when the pain happened after doctor's hours), I kept getting negative urine culturs and my doctor diagnosed me with IC.

In a stroke of luck that must have been meant to be, the doctor I had picked for my OB also specializes in urogynecology, so I'm convinced that if I had a regular OB, I would have gone on much longer thinking that I had a UTI. At any rate - he started me on hydroxyzine, which rather quickly stopped the severe abdominal pain that I was having. However, it hasn't done much else. I still feel quite uncomfortable almost all of the time, and I've had a few instances of what I assume are flare-ups, where it's really uncomfortable to do much of anything besdies lie down. He's left open the option of the DMSO treatment - he says that it would be safe, but since some of the medicine would get into my bloodstream, it should be a last resort (until I have the baby, of course).

So...I'm just trying to deal with it for a few more months. And, as uncomfortable as it is, the worst part is the paranoia it's causing me about the pregnancy. Since I didn't have this before and can't always recognize the symptoms, I've frequently gotten overly concerened about feelings of pressure, etc... that end up being IC (but that make me worried that something's wrong with the baby).

In addition, I feel a bit overwhelmed by the diagnosis because I also have fibromyalgia and IBS (both of which I've been managing quite well). I'm not sure why more progress hasn't been made in figuring out the source of all of these conditions (since the link seems clear to me - my body just overreaacts, apparently).

Any suggestions would be much appreciated (especially from those who are or have been pregnant), and I can't wait to read more of the posts here!

Rae

tigger_gal
10-01-2004, 05:27 AM
hi rae
welcome to the boards..... I cant help you on your questios. We have had a few girls that just had babies, and some preg. now.... they will give you some advice and pointers
hugs
Brat

Mishka
10-01-2004, 05:32 AM
Hi Rae!

My IC started in very early pregnancy for me as well. 4-6 weeks I think. Same thing, constant urination, pressure etc. You are lucky it was diagnosed so quickly. It took 3 years for me! Someone was looking out for you to get the right doctor. :)

I suffered from an irritable uterus. Where I had contractions and spasming all the time. They couldn't figure out what was causing it, my cervix was never opening, so i was never going into labor. But I still ended up on bedrest for a lot of the pregnancy. NOW we know that it was likely my bladder spasms setting off the uterus.
I also had the pressure, and some loss of control in late pregnancy, thankfully not for long (I thought my water had broken, so much gushed out) It only happened for 2 days and the baby flipped around and took the pressure off.

So those were my experiences with IC and pregnancy. It was uncomfortable, but later pregnancy is anyways. The baby will be pushing on your bladder more and more as it gets bigger, unfortunately there isn't much help for it. Lots of women seem to go into remission during pregnancy, so maybe you will. :) One tip is make SURE you don't get constipated. It makes everything SO much worse. I had a lot of trouble with it.

I hope you have a comfortable pregnancy, I'm sending good wishes vibes your way! :)

bluegreen
10-01-2004, 12:34 PM
Thanks everyone! I think what I need more than anything right now is to figure out how to manage this better on my own for the rest of the pregnancy.... I'm going to check out the diet section next.... Glad to be here, and I know hearing how other women dealt with this during pregnancy will be tremendously helpful!

Rae

Sarojini
10-01-2004, 12:41 PM
:welcome: to the ICN!! I've never had a baby, but I'd like to welcome you anyway and say that I'm happy you found us. You'll get a lot of support here from the other ladies who've dealt with IC during pregnancy :)

I'm sorry to hear you have IC, but just want you to know that there are lots of treatment options, and that it may take time, but you'll probably find a med or combination of them that make you feel normal most of the time :)

Good luck!!!