Topamax Info Needed Please!!!

[louise]

Hi,

I am seeing my pain doctor for the second time tomorrow morning and one of the meds. I want to discuss with him is TOPAMAX. I would love to hear from anyone who has or is taking it and if they find it helps with the IC/pelvic/low back pain. Also, what about the side effects - are they bad at first or what?
I have a feeling my doc may want to put me on Neurontin and not that I have a problem but I have heard it can put a lot of weight on which I don't want to do. I am quite fine with my weight as it is. That is why I would prefer if he would prescribe Topamax first because I have read that it is more likely to cause weight loss than gain. Now that I can handle - if I could only find my appetite!! If anyone finds an appetite looking for an owner, please leave me a message. I haven't had one for years and most days I could care less if I eat or not. I used to be a pretty good eater at one time - in my healthier days. But between depression and pain, who wants to eat?!
I know we are all different and for some eating is a comfort. I wish that were so in my case because I could use more nutrients plus a litle comfort would also be welcome.

Thanks for any information, advice or whatever - like I said even an appetite would be greatly appreciated!!

Do you think I am cracking up from the continuous bladder, low back and pelvic pain?! I know I am beginning to wonder myself. Anyway, thanks for any sort of help or support.

Sincere thanks,

LOUISE :bunny:


:bonk:

[Dixiefireball]

I'm sorry I haven't never taking it hopefully someone else will come by soon with some information
sending you hugs and prayers
Rhonda

[Jmeisnor]

Hi
I took it for migraines, after suffering for many years. You need to get up on dose very slowly, and yes, there are side effects. There is a very good website that I used to read (not as good as this one). I'll see if I can find it for you. Nobody knows more about these meds than the folks who are taking them! I actually stopped taking the topamax last week, with my diagnosis of IC. It is interesting that IC started just when I got up to full dose of topamax, but that could be a coincidence.

[shennan]

my ic symptoms started while i was on tegretol.....


:hmm:

lots of stuff on tegretol about inflammation this, inflammation that, etc....

maybe the same for topamax.

i called novartis and the fda and told them.

you can always call the company that makes topomax and ask if the side effects are related to inflammation.

good luck. :)
shenna

[Indy]

It is very acidic and has caused acidosis at levels as low as 50mg. It killed my bladder and I had no appetite and was not able to eat. It was horrible.

[shennan]

i also took topamax for a short time. cannot remember if it was at the same time as the tegretol. the shrink gave it to me because she had heard it helped people lose weight. i gained a lot of weight on all her meds for my anxiety and depression. had some bad dental experience. thru me for a loop.

:hmm:

shenna

[shennan]

my brother lives in thousand oaks. in the gated compound near the lake.

:yikes:


you live near there?

shenna :)

[Indy]

No, I don't live "there." "There is very nice!"

[ad8123]

I do not know about topamax, but I am on neurontin, so far so good. It has made it possible for me to sleep through the night!!!!!! Something I have not done in two years! I have not noticed weight gain yet, i am only onit once a day so far and I already packed on 30 pounds (maybe a bit more) from elavil. the weight gain is a negative but if it eliminates pain? i stopped the elavil a good while ago, it was not agreeing with me (besides weight gain) but the weight has stayed-my goal now to reduce pain so i can start walking again, hoping that helps with weight lose also i think the Ic diet is part of the problem veggies are had to eat with no spice or sauce!
good luck to you.

[Jmeisnor]

I was at pain clinic this week, and Dr suggested that I go back on the topamax which I had been taking for migraine, as it could aslo be helpful for IC. This dr is well versed in IC. Just wanted to pass that info on to you all.

[Mishka]

My doctor just prescribed Topamax for me today for chronic pain.

I'm a bit freaked out now after reading the info on it about it causing acidosis. That's something I already think is a problem and I'm trying to alkalanize. I don't need anything more acidic! I'll give it a try though I guess.

Also it seems to make people lose a lot of weight, and I can't afford to lose any weight :/

These drugs seems to fix one problem and cause 10 more!

[shennan]

yeah, my brother has some moolah.

yes, "there" is very nice!!

i am just a commoner, too. :lmao: poor folk... ;)

shenna

[shennan]

http://search.yahoo.com/search?p=topomax&csz=&ei=UTF-8&fr=FP-tab-web-t&cop=mss&tab=&toggle=1