? about Cysto/hydro results

[Hamburglar]

I was just curious if maybe you more experienced ICers can tell me what you think about my dr.'s findings as he has never discussed them with me and there weren't pictures taken (the reason he didn't discuss is he was an RE that did my endo surgery for me and referred me for the IC)

A cystoscopy was performed which revealed normal bowel and hydrodistention up to 80 cm H20 and 800cc of fluid was left in the bladder for 2 minutes and then it was released. There were glomerulations and bleeding typical of interstitial cystitis seen in over 80% of the bladder mucosa, giving a positive test.

Does anyone know by the sound of that how bad the IC is or what my bladder capacity it? I can't make heads or tales of this.

Thanks

Mindy

[Babs RN]

Mindy,
I am not a doctor but from reading that is sounds like you have IC. The glomulerations and bleeding are typical. You need to talk to him directly about the severity and I think sometimes that is subjective. Please call your doc and have him clarify the findings. It is your right to know.

Hugs,
Barb

[Hamburglar]

Yes, I do have it, at least that I know, was just curious on the severity of it. Like is it typical for all IC'ers to have the hemmoraging on 80% or more of the bladder, or how your able to tell if it is severe or not

I have an appt with my urologist on wednesday to do another dmso treatment so I can ask there, just was curious if anyone knew as the surgeon who did this didn't explain anything just that I had IC

[XoChelsey03Xo]

Do you have a follow up appt. with the dr. anytime soon? Maybe he's going to explain it there? I'd call and ask to have him personally call you to explain what he found. Chelsey

[Hamburglar]

Maybe I didn't say this right. Sorry.

The dr. who made the diagnosis I am no longer seeing because he was just the one who did my excision surgery for my endo. The only thing he said, and by the way, he wouldn't have said anything had I not complained on the post op appt that I was peeing razorblades every 5 minutes, he said "That's because you have IC", that's it as far as the IC talk goes, nothing more, nothing less, the nurse referred me to a uro and I have been to 3 uros since and no one has explained the diagnosis and what the findings were, like if it was severe or mild IC, so that's why I was curious if anyone could tell by what he wrote how severe it is.

[Sarojini]

Unfortunately it's difficult to tell from what was written; it's best to talk to whatever doctor you are seeing now about your concerns.

[ICNDonna]

I don't have a lot to add, other than that 800cc capacity under anesthesia is not too bad --- mine us about 700 to 750 cc. The other questions are good ones for your doctor.

Donna

[Imustpee]

How many c.c.'s are in 1 cup?

[SharonA]

There are about 30 cc in 1 oz...8 oz in 1 cup= about 240 cc in 1 cup. I think that is right. :)

[Imustpee]

Thanks ...I can hold 1 cup..that's not very much is it? :o(

[shennan]

http://www.ic-network.com/md/doctorlistings.html

try for another uro up there.
the new uro can get the records from your old uro or uro's.

good luck!

:) :) :) :) :) :) :) :) :)

shenna
shennap@yahoo.com