pelvic floor pain [Archive] - ICN Support Forum - Interstitial Cystitis, Overactive Bladder, Pelvic Floor Dysfunction

vickylb

09-19-2004, 05:07 AM

i"m having a flare up and am taking atarax, ditropan and elmiron. My bladder has settled down but my pelvic floor pain is wearing me down. I can't sit on any hard surfaces, stand for long periods of time or walk without irritation. If I wear clothes that are too tight or sometimes even underware it makes the pain worse. It goes all the way down my leg. Anyone expierience the same difficulities and has any suggestions please yell. Also I can't take any amitriptaline products for pain-bad side effects.....HELP................

tigger_gal

09-19-2004, 05:34 AM

Hi Vicky,
PFD is the worst pain... gggrrrr.. I once tried therapy, but had the therpyst from hell. :yikes: ... I have all the pfd excerises... and I still do them (sometimes) it has helped.... if you pm me with your email address I will send them to you. :)
Brat

kelly McC

09-19-2004, 08:37 AM

I have had the same problem lately my doctor is sending me to a pelvic pt. I hope your able to find something that helps you!
huggs,
Kelly

Katrina

09-19-2004, 01:02 PM

:hi: :hi: :welcome: to ICN!
My suggestions are sitting on a pillow and wearing loose clothes I have cut the ellastic in some of my underwear to make them wearable....I am so sorry you are suffering.

http://www.ic-network.com/guestlectures/weiss.html there is a lot of info in the handbook on PFD.

http://ic-network.com/cgi-bin/ustorekeeper.pl?command=goto&file=DailyComfort-ChairCushions.html there are some good chair cushions in the ICN store

:kiss: :kiss: :kiss:

JAMIEL

09-19-2004, 03:52 PM

I have PFD as well as IC. I am starting PT in a few weeks but in the mean time I do try to take two warm baths a day (not for more than 15 minutes or so)...I also have a problem with constipation which makes the PFD much worse. I am taking Murilax daily to help me with that problem. Other than that I have not found much that helps. It has been very frustrating for me and I am hoping that I get some relief with PT. I will let you know how I do!!! I am sorry that I could not offer more suggestions but we seem to be in the same boat!!

Jamie

PikkuMyy

09-19-2004, 04:48 PM

Before I started PT, I found that hot baths really helped. I also bought some Thermacare heating pads (they makes ones designed for your period so they fit really well on your abdomen) and they really helped. Don't buy one of the cheaper brands. They'll barely get lukewarm while the Thermacare gets nice and warm and lasts for HOURS.