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View Full Version : Comprehensive IC survey anywhere?



KeeKee
09-15-2004, 08:21 AM
Hello to all,

This is my first post. As a recently diagnosed IC'er (diagnosed in July), I'm doing as much research on IC as I can. Every time I find something that has helped or "cured" someone I try to write it down. The problem is, there are so many different treatments and what works for one doesn't necessarily have any effect on another. So what does one try first?

I know there are the basic treatments which seem to be posted on most IC sites (oral medications, DMSO treatments, bladder distension, etc.) But just browsing through this message board, I'm finding folks that have had tremendous success through other methods. (Like, MSM, Nexium, cortisone cream).

It seems to me that there should be somewhere out there, a big huge list that tells about all the possible medicines, procedures, herbs, etc. and how many people have responded to each. Does anyone know of one? Anyone know the treatment(s) that have helped the most people with IC?

Thanks.

MarthaF
09-15-2004, 08:48 AM
KeeKee,

There is a site which shows how patients rate remedies for various illnesses. Since I am not allowed to post website URLs here feel free to email me and I will send it to you. mfmidlo@aol.com

Martha F

Dixiefireball
09-15-2004, 10:51 AM
:hi: and :welcome: to the ICN family.
have you checked out www.ic-network.com/handbook or the home page www.ic-network.com both sites has great information on all types of treatments for IC.
I forgot shame on me which one that had the most common treatments for ic there but i remember seeing it and reading about this and found it useful.
sending you hugs and prayers

Rhonda

shennan
09-15-2004, 12:32 PM
why aren't you suppose to post web site here?

thanks, shenna

Sarojini
09-15-2004, 01:10 PM
:welcome: to the ICN, KeeKee!! Sorry to hear you have IC. As for a comprehensive list of possible treatments, including herbals, Katrina has compiled a list of them based on these boards... check out the Flare Coping Strategies board for the list. I know it's on the there somewhere :)

By the way, where are you in TN? I'm over here in Memphis! :)

KeeKee
09-15-2004, 01:54 PM
Thanks to all for the warm welcomes and helpful info.

Jen, I found Katrina's list and it has a lot of good stuff on it. I'm in Nashville, which I believe is about 4 hours from Memphis.