- At least I have my Husband and Maine Coons
- Phantom Pain and Urgency, another possible side effect after cystectomy.
- Really beginning to look forward to TAH
- The Urethral Pain is back today,I hope it passes
- Foley catheter crisis - extreme pain
- Hello and Thankyou!
- Beginning to really stress out now
- This is where I will be posting for awhile
- Like this topic
- The tests begin
- Did I find a team this time? Could it be real?
- An Artice written by my two new Doctors
- My Christmas wish has been answered.
- Some more good information
- Going in for my 2nd Pudendal Nerve Block tomorrow.
- I survived my surgery...barely
- Feeling a little better
- I wish this could be over soon!
- The results GOOD and Bad
- Help is on its way! Pudendal Nerve Entrapment
- IC, Urethral Instability, Pelvic Floor Dys now Kidney Stones?!
- ICN has some helpful information on PNE
- I can't sit down at all anymore and it is upsetting.
- Interstim is coming out! I think on Friday!
- Hysterectomy-post IC diagnosis anyone? Please stop here....
- Question about Social Security Disability
- Kara, Congratts!
- Update
- Why do we feel a sense of Loss?
- Complex Case Is Right!
- Tailbone Fire
- Hardest Two Weeks
- Back Home
- MRI and Pudendal Nerve Entrapment
- Pain left side of body from buttocks to ankle
- Can Fluid Settle into your Muscles?
- We have found the ANSWER!
- Oxycontin (so sick)
- I am SHOCKED! Wish me Luck!
- Having a BAD Week
- excruiciating pain in arms
- How's Kara & her Mom ?
- Official Diagnosis Is Here
- Yay! Saw specialist (still sick...but not as bad)
- I am assuming I have a complex case!!!
- RN's or MED Folks: What the heck is this?
- I'm scared!!
- Question Re: "stuff" in urine today
- Hi Everyone!
- I am so EMBARRASED!
- Side effects to new medssss
- Dr Raymond Rackley~ Cleveland Clinic
- MIGRAINES: restarting
- VESICARE for frequency
- Does doing instills risk getting an infection??
- Where's Kara ?
- I can't eat much with IC belly, anyone else?
- Complex illness
- Posting guidelines reminder
- OWIE..my tummy hurtssss..
- Gallbladder problems
- Nitrous oxide and IC...A question...
- Rectal Surgery Tuesday
- Hemmroids!! What is safe to use??
- I'm not doing well
- Update on test- not gallbladder problem
- Anyone have advice on these?
- hospitalized from Requip
- Bleeding In Gluteus Maximus - MRI Results Any Nurses/Opinions
- Drifting down that road again
- update from the doctors
- I am upset and in pain
- Alternativetohysterectomy
- Wow..Just...Wow
- Back to the doctors
- Life in the slow lane.....slow recovery for complex illness
- More Surgery and one more chance at Pregnancy
- Vitamins???
- Question Re: vision
- Tired, mentally drained and looking for suggestions...
- Surgery Ahead
- How to tell if it's retension
- Tackling the Hard Stuff
- Appetite: Figured out my problem
- Has anyone had seizures and low sodium?
- uterus on bladder?
- Kara, One Day At a Time!
- Anyone else??
- Seeing The Cardiologist Tomorrow - Need Prayers
- Low Potassuim Level - Does Anyone Have This?
- Cold Laser Therapy
- Nausea city! Kitten has worms.. the fun continues
- Bone scan....venting....
- Come Chat At Icn 1/21
- Tramadol and Fever
- IC and then cancer?
- PSAS - Segment on ABC's 20/20 Related to PFD or IC?
- Just a vent
- trauma causes of IC help
- severe retention episode on Monday
- Cystitis Cystica
- Uterine Fibroids?
- I'm Back
- could cleaning products cause flares/pain?
- Urinary infections misdiagnosis?
- kidney infection/ swollen kidneys/swollen ureters/ severe retention
- 4 More Months....Then it's back into the Operating Room
- Help! Frustrated and Confused!
- Failed this month too (Not Pregnant)
- Kidney reflux....
- So tired of complications
- Very low neutrofil level 1.8
- I've Been Down
- I need help for tomorrow.........thanks
- in the hospital
- High BP & IC
- Withdrawl????
- HELP, need advice???
- Anyone else take Trimethoprim??
- I am so desperate. Please help.
- Horrible Side Effect
- Another Operation in Two Weeks......
- Stuck in the land of my affliction . . .
- Urine Retention
- I broke my foot last night
- Constipation issues?
- Anyone with cystocele and uterine prolapse?
- Surgery: Burning of Ulcerations, Botox Injections, & Numbing of Bladder
- how much more
- My colon is shut down....
- Liver issues -- really worried
- fibroids update
- Weary and worn out...
- ICE PACKS made out of Preemie Diapers (Slideshow)
- I almost died yesterday. I am very sick. Bleeding internally somewhere.
- Help? Something is Wrong!
- Urine Retention Problems
- UTA Capsules??
- Question
- Blood: Urine or not?
- Urine Retention ER Waits
- Self-Cath
- New medicare ruling! Medicare now pays for new caths each time!
- Vulvodynia
- Have IC & Bladder cancer? I do.
- PNE Interstim IC
- Urine retention after Toviaz (fesoterodine)
- PLZ help me with ur ideas
- Chat room open tonight 3/2
- I am a newbie--ever heard of this surgery?
- what to do
- Ulcerative Colitis and IC. Anyone else?
- Not sure if this will help anyone...
- urine burn
- IC IBS and Acid Reflux
- deep pain
- endo/adhesions
- Apparently I have a large mass.
- Lupus
- Need someone to calm me down
- Major Operation, won't be on for a few weeks.
- What blood pressure meds are you ok on?
- Nausea
- TOT Sling Op Next Week
- Why do I have razor pain when I am laying down at night sleeping?
- Anyone having low blood pressure as a side effect?
- At Wits End!!
- If your creatine levels are normal...what can it be?
- hypothyroidism
- does anyone here have ibs/right side pain?
- diverticulosis and elmiron
- can anyone relate:ic and a multitude of other symptoms
- Info on Laproscopy
- Keep fighting!
- Any advice?
- You know its bad ....
- Has anyone felt worse after taking Elmiron??
- Kidney stones anyone?
- Vulvadynia Symptoms
- High Blood Pressure due to meds?
- Losing hair - but not from elmiron?
- IC Flare/UTI after sex
- Does anyone get this weird feeling?
- Is this all IC related or is something else going on?
- Elmiron Complications
- Why don't we just wear "depends"??
- infections and possible retention.....
- please help me give feed back new user
- mystery diagnosis
- need someone to talk to about pfd
- Overwhelmed
- Kara's Hospital Information
- severe shredded bladder, is it ic?
- what are the symptoms of lupus?
- anyone here have chronic IC?
- Anyone get bladder spasms while laying down?
- Bacterial Vaginosis
- Has anyone had an MRI with IC?
- Seems Like A Lot Lately!
- Blood in urine. Kidney stone or IC?
- Cathetor in bladder... is it better for surgery?
- Cystocele adding to IC woes?
- this will sound crazy, but...
- Urine tested positive for blood and lots and lots of white blood cells
- For those of you who developed IC after finishing anti-biotics
- About my appt yesterday w/ my ex-uro
- Dr Brookoff
- P.u.r.e. H.o.p.e.
- I may have a doctor! Hallelujah!!
- I didn't known where to put this-HELP
- Heavy Metals and IC, is there a link?
- Gross question, sorry
- Can't go out at all anymore??
- need meds that will not cause difficulty urinating
- Need to go for a Ureteroscopy
- In the hospital
- Prelief and Prednisone
- Please help with flare up question ASAP
- In a mess
- If I sleep during the night, I flare in the morning
- Prednisone is working for me-that sucks!
- Ketamine gel
- migraines
- IC and chemo????
- My IC worst since I moved to a different city
- Not sure where to go from here
- am i overreacting?
- Mitrofanoff and bladder denervation
- Off to a new Uro
- High Blood Pressure Medications
- Feeling Scared :(
- any suggestions for my stomach
- Catheter inserted daily or at night with a collection bag on them?
- Looking for other IC's with MCS ?
- superpubic catheter
- Ic and RA taking Remicade
- IC and Chemically sensitive
- IC and Behcet's Disease
- BioFeedback through the rectum?
- Humira
- Hematuria
- Neurontin and High blood pressure??
- Why is there no urine coming out in my foley?
- a strange symptom ?
- vision problems from meds?
- clorine?
- Possible flare after starting Enbrel
- elavil making baldder flare, help?????
- IC is worst when I moved to a different city-updates
- Does Nexium cause flares?