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Are Here: ICN : ECRC
: About this site
The
Interstitial Cystitis Network provides information and support
to the on-line community of IC patients. We did not become aware
of Eosinophilic Cystitis until Cricket, a brave woman from Tennessee,
took the time to share with us her experience. As such a rare
disease, we hope that we will find others for Cricket to correspond
with and to provide gathering place for basic information on
EC on the internet.
The
Interstitial Cystitis Network is a publishing company exclusively
dedicated to interstitial cystitis and other pelvic pain disorders.
Founded in 1994, our company began first as a web site, one
of the first urology web sites established and the first
interstitial cystitis web site created on-line. We have
since served hundreds of thousands of patients throughout the
world. And, as many IC'ers have said to us, the ICN offers a
home for IC patients who, for years, felt so alone.
The
best way to navigate our site is from the the front page (http://www.ic-network.com)
or Site
Map. If you're looking for the latest information, articles
and industry press releases on IC, make sure that you visit
our "What's
New on the ICN" page? If you'd like to stay informed
and be notified of our guest lecture and chat schedules, sign
up for our free ICN
E-Newsletter.
Most
patients begin in our ICN
Patient Handbook, which is a large archive of patient
education materials on a wide variety of topics, from diagnostic
techniques to treatments and self care. If you're a researcher
at heart, you'll enjoy browsing our IC
Library, where you can read the latest research abstracts
and articles on-line. And, if you're curious about what doctors
think of IC around the country, make sure that you read our
"Meet
the IC Expert" Guest Lecture series transcripts,
where you can review the lectures from many of the best and
brightest IC professionals in the world!
Our
site thrives because of the many volunteers and patients who
have contributed their time and work. Bev Laumann, author of
"Taste of the Good Life: A Cookbook for An Interstitial
Cystitis Diet", has written dozens of monthly columns on
the topic of IC and diet which we have titled "Fresh
Tastes by Bev." If you're looking for new diet
ideas, that's a great place to begin, along with our own on-line
IC Chef Cookbook.
If you are struggling with understanding medications, our Drug
Glossary could be very useful. If you can't afford them,
we also have an extensive list of all current Drug
Assistance Programs.
One
of the highlights of our site is a wonderful contribution given
by Lesa F., who contributed a Pregnancy
Journal to inspire other IC patients during their own
pregnancies. It's a one of a kind treasure of inspiration and
information for those who are considering pregnancy. And, parents
with IC might find our IC
Coloring Book very helpful in explaining IC and their
repeated doctor visits to their young children.
If
anyone expresses doubts about information on-line, you can share
with them the Consumer
Awareness and Internet
safety information found in our on-line handbook. We
take our responsibility to provide reliable information very
seriously and follow the HonCode: Health Code of Conduct For
Medical Web Sites (ID#
269714). This is one reason why the ICN has received
several Medical
& Web Site Awards and was named one of the top five
health web sites on-line in 1999 by the GII Awards, in the select
company of the Mayo Clinic and AEGIS (The AIDS International
Database Project). We are also four star mental health net web
site.
As
you use the ICN, we hope that you will share the information
on our site with your physicians, families, friends and support
group members. There are still millions of others with IC
who are being told that there is no hope. They have no idea
that there are new treatments or even basic diet information.
There are physicians (especially primary care providers, family
medicine & emergency room staff) who are unaware that IC
is a legitimate disease. We must educate as many people as we
can.
I
encourage you to be an active participant in your medical care.
Create a partnership with your doctor as you both seek to understand
and find a treatment for your IC. Join the on-line support groups
and activities so that you can gain support and then offer support
to someone else in need. And, if you find our site helpful,
please consider supporting our work by purchasing an ICN
Subscription.
As
Vicki Ratner, President of the ICA-US, once said "Instead
of giving up, we found each other." I wish you well! Be
wise! Be strong and always keep the faith!
Jill
Osborne, IC Network Founder
Age 41, Diagnosed at 33
Support Group Leader since 1993.
E-mail: jill@ic-network.com
Interstitial
Cystitis Network
5636 Del Monte Court
Santa Rosa, CA 95409
(707)538-9442
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