Conditions

IC/BPS Info Center

Welcome to the ICN! You are not alone! IC is real and treatable!

Welcome to the ICN! You are NOT alone

If you’re like most patients, it has probably taken months or years before you received a diagnosis of interstitial cystitis or bladder pain syndrome. You may have believed, incorrectly, that you were suffering from repeated bladder infections and/or may have taken antibiotics for years with little success. The great news is that IC is real and treatable. The bad news? Many medical care providers are unaware of current research and treatment guidelines.

ICN Founder Jill OsborneThe most successful patients (or parents of IC patients) are those who are active, informed and involved. Our goal is to educate and empower you with the latest information and resources. Our site will help you understand what IC is, how to work with your medical team, the many treatment options available and, perhaps most importantly, those critical and easy self-help strategies that can done at home each day to reduce symptoms. We’ve built a large self-help area on this website because it works. In fact, the American Urology Association (AUA) specifically encourages patients to explore the many self-help strategies available in Step 1 of their IC Treatment Guidelines

As a support group leader, I’ve noticed that the patients who often struggle are passive. They have no idea what treatments they’ve tried. They refuse to follow the diet, thus causing daily bladder irritation. They’ve never read a book about IC. They don’t track their treatments. They often live in a world of denial. You DO have the power to make change and promote healing of your bladder. Please take a few minutes to read through these materials. Even if you’ve had IC for several years, much has changed about the way we look at IC and its treatment. By the end, you may be more informed than your medical care team and that’s not a bad thing! – Jill Osborne, MA – ICN President & Founder – Revised: June 3, 2013 Created: 1995

Chapters

  1. What Is IC/BPS/HBS? – Learn the IC basics, what the symptoms are, how it’s diagnosed and suspected causes.
  2. Finding a Medical Care Provider – Learn how to find doctors who are skilled and compassionate towards IC and pelvic pain.
  3. Exploring Treatments – Confused about treatments? We outline the six step treatment protocol that works!
  4. Self Help Strategies – Learn the common, day to day, self-help tips that can help reduce symptoms and prevent flares.
  5. Diet – Diet modification is one of the first things that every patient must learn to avoid IC flares and pain.
  6. Flares – Learn the different types of flares and what you can do to treat them.
  7. Support Center – Feeling alone? You aren’t! Meet others and ask questions today in the ICN Support Center & Support Forum
  8. Romance & Intimacy – Learn some great tips to help strengthen your intimate relationships in the face of pelvic pain.
  9. Pain Resource Center – Learn the best pain management tips we have to offer.
  10. Pregnancy Resource Center – Considering pregnancy? Thousands of patients have had successful pregnancies. Learn more here!
  11. Living with IC Video Series – Watch our latest videos about IC on flares, diet, traveling, holidays, preparing for doctors visits, family struggles and more!

Essential Readings & Resources

Interstitial Cystitis Survival Guide

Click here >>

Heal Pelvic Pain
Heal Pelvic Pain

Click here >>

Ending Female Pelvic Pain
Ending Female Pain

Click here >>

A Taste of the Good Life Cookbook

Click here >>

Prelief tablets

Click here >>

CystoProtek®

Click here >>

Bladder and prostate friendly chair cushion “C”

Click here >>

Desert Harvest Aloe

Click here >>