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Canada IC Guidelines Finally Adopted – Patients Get Much Needed Guidance

Why have so many interstitial cystitis patients in Canada come to the USA for care? Despite the glowing reviews about universal health care, there is a sad IC truth behind the scenes north of the border. There is no national IC organization to advocate on their behalf. Only a handful of physicians in the nation specialize in [...]

By |December 7th, 2016|Awareness, Diagnosis, ICN Announcements, Industry News, Interstitial Cystitis Network Blog, News, Research, Treatments|Comments Off on Canada IC Guidelines Finally Adopted – Patients Get Much Needed Guidance

Substantial Revision and Removal Rate for Interstim

Neuromodulation uses a mild electrical impulse on various nerves to help maintain appropriate nerve function in the bladder. Two different forms of neuromodulation are available: post-tibial nerve stimulation (Urgent PC® by Congentix Medical) and sacral or pudendal nerve stimulation (Interstim® by Medtronic). Both procedures are FDA and Medicare approved for urinary frequency, urgency, incontinence and overactive [...]

By |October 23rd, 2016|Interstitial Cystitis Network Blog, Latest Research, Research|Comments Off on Substantial Revision and Removal Rate for Interstim

A New Chronic Pelvic Pain Terminology Guide Adds Clarity For IC

Earlier this year, the International Continence Society released new terminology standards to aid in the diagnosis of ALL chronic pelvic pain disorders, including those that affect the bladder(1). This is a powerful document that will help physicians and patients identify and classify potential sources of their pelvic pain. Consider the plight of a young patient with [...]

By |October 19th, 2016|Conference Reports, Interstitial Cystitis Network Blog, Latest Research, Research|Comments Off on A New Chronic Pelvic Pain Terminology Guide Adds Clarity For IC

New IC Treatments Currently in the IC Pipeline

New, Promising Treatments - AF 219, LiRIS, AQX-1125, GM-0111, LP-08 Patients constantly ask "Is there anything new?" Yes, Virginia, IC research is alive and well with teams from around the world exploring new treatments. Here's our review of the most promising projects in the IC Pipeline! Afferent Pharmaceuticals AF-219 Afferent Pharmaceuticals is developing a potential new [...]

By |October 7th, 2016|Interstitial Cystitis Network Blog, Latest Research, Research|Comments Off on New IC Treatments Currently in the IC Pipeline

My Fibroid Study

(Editors Note - You may be asking why we're posting a study about uterine fibroids on our website. Many women with IC have a history of not only fibroids but also ovarian cysts and endometriosis. The connection is still a mystery. If you struggle with uterine fibroids, the MyFibroidStudy is worth reviewing! -- Jill Osborne, MA) Do [...]

By |October 7th, 2016|Clinical Trials, Interstitial Cystitis Network Blog|Comments Off on My Fibroid Study

IC Patient Develops Aortic Aneurysm After Using Cipro

New FDA Warning About Fluoroquinolone Antibiotics - When IC patient Naomi* was prescribed Cipro for a bladder infection several years ago, she had no idea that it would lead to a life threatening aortic aneurysm. She, and others, found both both answers and outrage in an FDA safety alert released in May which required a [...]

By |July 18th, 2016|Interstitial Cystitis Network Blog, Research|Comments Off on IC Patient Develops Aortic Aneurysm After Using Cipro

The DIPP Mystery – Why are IC patients deficient in some good bacteria?

Researchers have discovered that IC patients have significantly different levels and types of bacteria in our digestive tract (bowel) rather than our urinary tract (kidney, bladder). These distinct deficiencies (known as DIPP) hint that the lack of beneficial bacteria as well as an overabundance of pathogenic bacteria play a role in the cause and intensity of bladder and [...]

By |June 16th, 2016|Interstitial Cystitis Network Blog, Research|Comments Off on The DIPP Mystery – Why are IC patients deficient in some good bacteria?

Dr. Jeannette Potts – Pelvic Pain In Men is Not Prostatitis

"Real Men Get Real Pelvic Pain" Course Provided To Urologists At AUA 2016 - If you've been told that your pelvic pain is the result of chronic prostatitis, you are not alone. If you've spent hundreds if not thousands of dollars on various "prostate centric" antibiotics and other prescriptions, you're in the company of millions of [...]

By |May 4th, 2016|Interstitial Cystitis Network Blog, Research|Comments Off on Dr. Jeannette Potts – Pelvic Pain In Men is Not Prostatitis

Northwestern Study Seeks Men & Women With IC/BPS or CP/CPPS

MAPP Research Network Study Seeks People with IC/BPS or CP/CPPS - Do you or someone you know suffer from Interstitial Cystitis/Bladder Pain Syndrome (IC/BPS) or Chronic Prostatitis/Chronic Pelvic Pain Syndrome (CPPS)? Northwestern University’s Feinberg School of Medicine is looking for men and women who have IC/BPS and men who have CPPS to participate in a [...]

By |April 27th, 2016|Clinical Trials, Interstitial Cystitis Network Blog, Research|Comments Off on Northwestern Study Seeks Men & Women With IC/BPS or CP/CPPS

New LiNKA Study Launched In North America Seeks Bladder Pain Patients

Do you or someone you know suffer from IC/BPS? If so, you are familiar with the pain that can make it difficult to enjoy life. Allergan, Inc. is enrolling participants for a research study investigating a drug device to investigate the safety and effectiveness of a of continuous release of lidocaine inserted into the bladder [...]

By |March 6th, 2016|Clinical Trials, Interstitial Cystitis Network Blog|Comments Off on New LiNKA Study Launched In North America Seeks Bladder Pain Patients