Read the latest news about interstitial cystitis, bladder pain syndrome and related conditions in the ICN blog.
Seeking participants for research study, June 30 – July 6
1.5 hour phone interview
We are looking for people between the ages of 50 and 80 who meet the following criteria:
Have been diagnosed with Overactive Bladder by a physician
Have completed 12 weeks of PTNS therapy
Returned to their doctor for a follow up which included at least […]
How You Can Help Barbara Flanigan and Her Search For the Cause of IC
(Editors Note – I’ve wanted to share Barbara Flanigan’s story and theory about IC for many years. Barbara was the founder the first Interstitial Cystitis Association here in California in 1983. She has always had one key goal in her volunteer work, to […]
Have you tried an OTC pain relief product? They may help!
Topical treatments for pain relief have become quite popular. Sprayed or rubbed onto the skin over painful muscles and joints, they may have a modest effect at reducing pain. There are three basic types:
Counterirritants use ingredients such as menthol, methylsalicylate, and camphor to create a burning or cooling sensation that distracts the […]
Chronic Interstitial Cystitis Study – San Diego, CA
As part of a clinical research study, we are collecting blood and urine samples from female volunteers who have been diagnosed with chronic Interstitial Cystitis for atleast 4 months.
Procedures for this single, one hour study visit, will involve providing health/personal information, blood and urine sampling. Participants will receive […]
One of the most powerful phone conversations I’ve had with an IC patient occurred about twelve years ago. The phone rang, I answered “IC Network. This is Jill. Can I help you?” All I heard on the other end was deep, heartbreaking sobs from someone so overcome with emotion that they were unable to speak. When the tears finally […]
Why oh why would we even be talking about soda on an interstitial cystitis website? Yes, for the vast majority of patients, both sugar and artificially sweetened sugars are well known to trigger IC flares but some patients continue to drink them. It’s in our interest to educate you about why drinking sodas are bad.
For years […]
2015 IC Awareness Month Seeks Volunteers Who Want To Help
Each year, IC Awareness Month is developed by you, the IC patient. Yes, that’s right. We don’t use a high powered marketing firm. There are no expensive consultants who take charge. We’re salt of the earth, IC on the street kind of people. Why? Because IC […]
When Jamie Barkley discovered that her 9 year old daughter was hiding urine soaked underwear around the house, she was shocked to discover that her child had been “holding it” at school out of fear that she would get into trouble for asking to use the restroom. A week later, her daughter ended up in the ER with […]
We’ve just applied for a $100,000 grant from Chase to help develop our new pelvic pain and IC flare management app and, of course, some other IC projects as well. But, we need at least 250 votes! Can you imagine what we could do with this seed money especially at a time when pharmaceutical companies […]