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Interstitial Cystitis Network Blog

/Interstitial Cystitis Network Blog

Read the latest news about interstitial cystitis, bladder pain syndrome and related conditions in the ICN blog.

Canada IC Guidelines Finally Adopted – Patients Get Much Needed Guidance

Why have so many interstitial cystitis patients in Canada come to the USA for care? Despite the glowing reviews about universal health care, there is a sad IC truth behind the scenes north of the border. There is no national IC organization to advocate on their behalf. Only a handful of physicians in the nation specialize in [...]

By |December 7th, 2016|Awareness, Diagnosis, Interstitial Cystitis Network Blog, Research, Treatments|Comments Off on Canada IC Guidelines Finally Adopted – Patients Get Much Needed Guidance

Fall 2016 IC Optimist Released

The Fall 2016 IC Optimist is now available for your viewing pleasure. Print subscribers should receive their printed copies next week. E-mail subscribers within the next 48 hours!! In this issue: (1) Editorial: Hunner's Lesions Should Be Considered A Separate Disease Our editorial suggests that Hunner’s lesions should be considered a separate and unique disease, [...]

By |November 26th, 2016|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Fall 2016 IC Optimist Released

Hunner’s Lesions Should Be Considered A Separate Disease

As we’ve discussed in earlier issues of the IC Optimist, many clinicians and researchers around the world now believe that there are distinct variations and/or subtypes in the IC patient population. While there is considerable debate of proposed subtyping systems, most agree that the roughly 10% of patients who struggle with Hunner’s lesions have a [...]

By |November 9th, 2016|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Hunner’s Lesions Should Be Considered A Separate Disease

November is Bladder Health Awareness Month

Urology Patients Of All Ages Benefit From New Bladder Health Awareness Campaign Anyone working in the trenches of urology know just how difficult it is to plan a public relations campaign. Almost every press release sent out that asks a newspaper to do a story on interstitial cystitis, incontinence or bladder cancer ends up in a trash [...]

By |November 4th, 2016|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on November is Bladder Health Awareness Month

Substantial Revision and Removal Rate for Interstim

Neuromodulation uses a mild electrical impulse on various nerves to help maintain appropriate nerve function in the bladder. Two different forms of neuromodulation are available: post-tibial nerve stimulation (Urgent PC® by Congentix Medical) and sacral or pudendal nerve stimulation (Interstim® by Medtronic). Both procedures are FDA and Medicare approved for urinary frequency, urgency, incontinence and overactive [...]

By |October 23rd, 2016|Interstitial Cystitis Network Blog, Latest Research, Research|Comments Off on Substantial Revision and Removal Rate for Interstim

Dr. Robert Evans Shares His Treatment Approach For Children and Teens with IC/BPS

A Proposed Four Step IC/BPS Treatment Protocol For The Youngest Patients - When Jill van Royen sought medical care for her young daughter with IC, she found little help among the physicians in Northern California. Out of desperation, she and her daughter flew across the country to see Dr. Robert Evans at Wake Forest University. It was [...]

By |October 23rd, 2016|Children & Teens, Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Dr. Robert Evans Shares His Treatment Approach For Children and Teens with IC/BPS

A New Chronic Pelvic Pain Terminology Guide Adds Clarity For IC

Earlier this year, the International Continence Society released new terminology standards to aid in the diagnosis of ALL chronic pelvic pain disorders, including those that affect the bladder(1). This is a powerful document that will help physicians and patients identify and classify potential sources of their pelvic pain. Consider the plight of a young patient with [...]

By |October 19th, 2016|Conference Reports, Interstitial Cystitis Network Blog, Latest Research, Research|Comments Off on A New Chronic Pelvic Pain Terminology Guide Adds Clarity For IC

European IC Treatment: A Holistic Approach Should Be Considered

Patients with IC/BPS (interstitial cystitis/bladder pain syndrome) are found all over the world. The majority of these patients suffers from symptoms like high urinary frequency and urgency, pain and pressure in the lower abdominal, urethral, or vaginal area (in women) or testicular, scrotal, and/or perineal area as well as a painful ejaculation (in men). The [...]

By |October 12th, 2016|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on European IC Treatment: A Holistic Approach Should Be Considered

New IC Treatments Currently in the IC Pipeline

New, Promising Treatments - AF 219, LiRIS, AQX-1125, GM-0111, LP-08 Patients constantly ask "Is there anything new?" Yes, Virginia, IC research is alive and well with teams from around the world exploring new treatments. Here's our review of the most promising projects in the IC Pipeline! Afferent Pharmaceuticals AF-219 Afferent Pharmaceuticals is developing a potential new [...]

By |October 7th, 2016|Interstitial Cystitis Network Blog, Latest Research, Research|Comments Off on New IC Treatments Currently in the IC Pipeline

My Fibroid Study

(Editors Note - You may be asking why we're posting a study about uterine fibroids on our website. Many women with IC have a history of not only fibroids but also ovarian cysts and endometriosis. The connection is still a mystery. If you struggle with uterine fibroids, the MyFibroidStudy is worth reviewing! -- Jill Osborne, MA) Do [...]

By |October 7th, 2016|Clinical Trials, Interstitial Cystitis Network Blog|Comments Off on My Fibroid Study