/Interstitial Cystitis Network Blog

Read the latest news about interstitial cystitis, bladder pain syndrome and related conditions in the ICN blog.

The Economic Toll of Elmiron

67% of Patients Struggle to Pay For the Only Oral Drug Approved for IC/BPS by the US FDA When the patent expired on Elmiron® in January 2010, the IC patient community expected the rapid release of a more affordable generic medication. Swati Spentose, a company located in India, has produced a generic pentosan polysulfate (Brand [...]

By | March 31st, 2017|Interstitial Cystitis Network Blog, Research|Comments Off on The Economic Toll of Elmiron

2016 PT of the Year – Sarah Conley PT, DPT & WCS

We are very pleased to announce that Sarah Conley PT, DPT & WCS (Conway Regional Health System) has been awarded the 2016 Physical Therapist of the Year. Votes were collected throughout Fall 2016 as part of the international IC Awareness Month campaign. We asked  patients to nominate both physical therapists and doctors who treated them with compassion, [...]

By | March 30th, 2017|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on 2016 PT of the Year – Sarah Conley PT, DPT & WCS

Calling All IC & Health Care Activists

Are you concerned that you will lose your health care services? Regardless of our often diverse political affiliations, there is one topic that unites us all - the state of health care in the USA. From rising costs to reduced access, IC patients are at the front line of an increasingly unsympathetic medical system. [...]

By | March 22nd, 2017|Interstitial Cystitis Network Blog|Comments Off on Calling All IC & Health Care Activists

2016 IC Doctor Of The Year – Dr. Robert Evans

We are pleased to announce that Dr. Robert Evans (Wake Forest Baptist Health) has, for a second year in a row, been voted the 2016 IC Doctor of the Year during our annual IC Awareness Month campaign.  Hundreds of patients nominated and voted for doctors who they believe had treated them with kindness, respect and with excellent knowledge [...]

By | March 20th, 2017|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on 2016 IC Doctor Of The Year – Dr. Robert Evans

IC & Pain – Have you been denied pain treatment?

A New ICN Survey (March 2017) The pain of interstitial cystitis has been rated equivalent to cancer pain using the McGill pain scale in various research studies. Yet, despite what can be very intense pain, many patients have been struggling to receive pain treatment or denied pain medication. With the 2016 release of the [...]

By | March 9th, 2017|Interstitial Cystitis Network Blog, Research|Comments Off on IC & Pain – Have you been denied pain treatment?

Is IC an Autoimmune Condition?

Behind the redness, swelling, heat and pain of any infection or injury, a biological war is occurring. Injured cells release chemicals that alert our immune system that something is wrong. One of these chemicals, chemokines, attract and direct white blood cells (i.e. macrophages, lymphocytes) to the injured area where they swarm and kill invading bacteria [...]

By | February 27th, 2017|Interstitial Cystitis Network Blog, Research|Comments Off on Is IC an Autoimmune Condition?

Eight Potential Causes of Bladder Injury

Perhaps the most important question that physicians and patients have asked is “how and why does the bladder wall break down in some patients with IC?” It’s the root question that we all want the answer to. Let’s consider eight possible causes of bladder injury. 1 - Chemical Exposure The first and most logical assumption [...]

By | February 27th, 2017|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Eight Potential Causes of Bladder Injury

IC Optimist Winter 2017 Released

We are happy to announce the release of the IC Optimist Winter 2017 edition. The IC Optimist is the quarterly magazine of the IC Network. Your subscription and/or purchase helps to underwrite our IC Support Services, advocacy efforts, Patient Support Line and IC Awareness Month! We thank you for your support! Our work could not [...]

By | February 24th, 2017|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on IC Optimist Winter 2017 Released

Chemotherapy and IC – Tips To Protect Your Bladder

Chemo Induced Cystitis Can Be Devastating For IC Patients - Joy*, a 73 year old woman, contacted our office in a dire situation. She had been diagnosed with IC last June. Just three months later, she received a second diagnosis of breast cancer (Stage 2B). After a mastectomy she began chemotherapy treatment. Of course, she [...]

By | February 21st, 2017|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Chemotherapy and IC – Tips To Protect Your Bladder

Cold & Flu Strategies For IC/BPS Patients

Flu season is in full force and particularly severe in North America leaving interstitial cystitis, bladder pain and prostatitis patients to wonder just what can they use to control and reduce their symptoms without aggravating their IC and bladder symptoms.  Remember that influenza is VIRAL, thus antibiotics will not help. An estimated 50,000,000 million antibiotic prescriptions [...]