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Interstitial Cystitis Network Blog

/Interstitial Cystitis Network Blog

Read the latest news about interstitial cystitis, bladder pain syndrome and related conditions in the ICN blog.

Remarkable Patients With IC – Louisa Joy Wise, Musician

Introducing Louisa Joy Wise - Musician, Artist, Mother The healing power of music is undeniable. Whether you love rock, rap, folk or classical, music often makes us feel very VERY good. Louisa Joy Wise's music inspires happiness! Take a moment and listen and you hear not only an accomplished international fiddle player but a voice equal to many [...]

By |June 24th, 2016|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Remarkable Patients With IC – Louisa Joy Wise, Musician

The DIPP Mystery – Why are IC patients deficient in some good bacteria?

Researchers have discovered that IC patients have significantly different levels and types of bacteria in our digestive tract (bowel) rather than our urinary tract (kidney, bladder). These distinct deficiencies (known as DIPP) hint that the lack of beneficial bacteria as well as an overabundance of pathogenic bacteria play a role in the cause and intensity of bladder and [...]

By |June 16th, 2016|Interstitial Cystitis Network Blog, Research|Comments Off on The DIPP Mystery – Why are IC patients deficient in some good bacteria?

Spring 2016 IC Optimist Released

In the Spring 2016 IC Optimist: (1) Editorial: Does "Big Pharma" control the IC movement? Jill Osborne tackles the misperception that big pharma controls the IC movement. In fact, they walked away from IC more than a decade ago. Learn about the history and two promising new companies that may be investing in the future [...]

By |June 2nd, 2016|Interstitial Cystitis Network Blog|Comments Off on Spring 2016 IC Optimist Released

IC & Bladder Friendly Sweet Tea

Are you a sweet tea addict? Whether you live in the southeast or the northwest, iced sweet teas are a staple for the hot, sometimes sweltering, days of summer. But, when you've got interstitial cystitis, overactive bladder or prostatitis, traditional black, oolong, green and chai teas are well known for triggering urinary frequency, urgency, pressure [...]

By |June 2nd, 2016|Diet & Food, Interstitial Cystitis Network Blog|Comments Off on IC & Bladder Friendly Sweet Tea

New ICN Video – Subtypes For IC Offer Hope and Clarity For Struggling Patients

Five Proposed Subtypes Help Patients Prioritize Treatments & Self-Care Did you know that there is tremendous variation in the IC patient population? Some patients have profoundly damaged bladders while others have normal bladders yet both struggle with symptoms of frequency, urgency and pain. Up to this point, both would be diagnosed with IC in in the USA [...]

By |May 26th, 2016|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on New ICN Video – Subtypes For IC Offer Hope and Clarity For Struggling Patients

Pelvic Pain Seminar Comes to Colorado Springs in July 2016

The Bridge For Pelvic Pain has announced their first annual pelvic pain seminar to be held this July in Colorado Springs. The seminar is an immersion in learning about chronic pelvic pain from diagnosis and treatment. Attendees will learn about chronic pelvic pain from one of the best pelvic pain clinicians in the world, Dr Robert Echenberg. [...]

By |May 18th, 2016|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Pelvic Pain Seminar Comes to Colorado Springs in July 2016

What’s the Worst Drink For IC/BPS Ever?

IC & IBS Patients Share Many Diet Restrictions Heather Van Vorous, author of First Year IBS, has written some fabulous articles for her website www.helpforibs.com. In one of her "Ask Heather" columns, she answered the question "What's the Worst Drink for IBS Ever?" Given the fact that IC and IBS are common in patients and [...]

By |May 13th, 2016|Diet & Food, Interstitial Cystitis Network Blog, Self-Help Tips for IC, Bladder & Pelvic Pain|Comments Off on What’s the Worst Drink For IC/BPS Ever?

Dr. Jeannette Potts – Pelvic Pain In Men is Not Prostatitis

"Real Men Get Real Pelvic Pain" Course Provided To Urologists At AUA 2016 - If you've been told that your pelvic pain is the result of chronic prostatitis, you are not alone. If you've spent hundreds if not thousands of dollars on various "prostate centric" antibiotics and other prescriptions, you're in the company of millions of [...]

By |May 4th, 2016|Interstitial Cystitis Network Blog, Research|Comments Off on Dr. Jeannette Potts – Pelvic Pain In Men is Not Prostatitis

Remarkable Patients With Pelvic Pain – Atara Schimmel

Introducing Atara Schimmel - Artist, Advocate, Pelvic Pain Patient (The purpose of the "Remarkable Patients" series is to highlight patients who have done remarkable things in spite of, or perhaps because of, their bladder and/or pelvic pain. We want to feature patients who are artisans, writers, athletes, small business owners to give them the opportunity [...]

By |April 28th, 2016|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Remarkable Patients With Pelvic Pain – Atara Schimmel

Northwestern Study Seeks Men & Women With IC/BPS or CP/CPPS

MAPP Research Network Study Seeks People with IC/BPS or CP/CPPS - Do you or someone you know suffer from Interstitial Cystitis/Bladder Pain Syndrome (IC/BPS) or Chronic Prostatitis/Chronic Pelvic Pain Syndrome (CPPS)? Northwestern University’s Feinberg School of Medicine is looking for men and women who have IC/BPS and men who have CPPS to participate in a [...]

By |April 27th, 2016|Clinical Trials, Interstitial Cystitis Network Blog, Research|Comments Off on Northwestern Study Seeks Men & Women With IC/BPS or CP/CPPS