Read the latest news about interstitial cystitis, bladder pain syndrome and related conditions in the ICN blog.
If a picture speaks a thousand words, then the art of Atara Schimmel speaks volumes about pelvic pain and pudendal neuralgia. She’s just won the ADA poster contest sponsored by the city of Boston for her entry “We Will Be Heard,” one of her Project Angel series which is dedicated to raising awareness for pelvic […]
Twenty five years ago this month, the American’s With Disabilities Act (ADA) was passed to stem the tide of layoffs and overt discrimination that occurred (and sadly still occurs) in workplaces across America. Earlier this month, I blogged about IC hero Bard Alan Finlan who spent years struggling with Verizon over his request for reasonable accommodation […]
For the past couple of weeks, the Interstitial Cystitis Association (ICA) has been soliciting applications for their Board of Directors. They announced, today, that they are extending the deadline through Sunday, July 20th. (See announcement here!) I want to encourage anyone who has passion for the IC movement to apply. They have a simple application process […]
When you struggle with IC and/or chronic pain and don’t have access to traditional pain relievers, using an OTC pain relief pill may feel like your only option. Right? I, like most patients, turned to Advil and Tylenol to help reduce my bladder pain when I was first diagnosed. Seriously, IC can hurt terribly and if it’s the […]
In the thousands of patients who have contacted the Interstitial Cystitis Network in the past twenty years, there are several who have created indelible memories. I met Bard more than a decade ago when he called for help with his disability discrimination claims against his employer, Verizon. Bard faced outrageous discrimination at his job, often by female superiors. […]
Seeking participants for research study, June 30 – July 6
1.5 hour phone interview
We are looking for people between the ages of 50 and 80 who meet the following criteria:
Have been diagnosed with Overactive Bladder by a physician
Have completed 12 weeks of PTNS therapy
Returned to their doctor for a follow up which included at least […]
How You Can Help Barbara Flanigan and Her Search For the Cause of IC
(Editors Note – I’ve wanted to share Barbara Flanigan’s story and theory about IC for many years. Barbara was the founder the first Interstitial Cystitis Association here in California in 1983. She has always had one key goal in her volunteer work, to […]
Have you tried an OTC pain relief product? They may help!
Topical treatments for pain relief have become quite popular. Sprayed or rubbed onto the skin over painful muscles and joints, they may have a modest effect at reducing pain. There are three basic types:
Counterirritants use ingredients such as menthol, methylsalicylate, and camphor to create a burning or cooling sensation that distracts the […]
Chronic Interstitial Cystitis Study – San Diego, CA
As part of a clinical research study, we are collecting blood and urine samples from female volunteers who have been diagnosed with chronic Interstitial Cystitis for atleast 4 months.
Procedures for this single, one hour study visit, will involve providing health/personal information, blood and urine sampling. Participants will receive […]