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Interstitial Cystitis Network Blog

/Interstitial Cystitis Network Blog

Read the latest news about interstitial cystitis, bladder pain syndrome and related conditions in the ICN blog.

Popular Urology Drug, Hyoscyamine, Recalled

Hyoscyamine sulfate, a popular drug use for urology patients struggling with incontinence, has been recalled by Virtus Pharmaceuticals. This recall is the result of irregular medication levels in the medication which can give patients either too much (super potent) or too little (sub potent) medication. Taking a product that is superpotent could result in hot/dry [...]

By |September 20th, 2016|Consumer Alerts, Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Popular Urology Drug, Hyoscyamine, Recalled

Popular IC Treatment Price Drops While Another Now Under Mylan Pharma Control

Hep-Lido-A Price Drops Dramatically It's not every day that you get a message from a company announcing that a price for a vital IC therapy has gone down but, believe it or not, it happened! Hep-Lido-A, the most popular bladder instillation in use for the treatment of interstitial cystitis, now costs just $25 per treatment. It [...]

By |September 12th, 2016|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Popular IC Treatment Price Drops While Another Now Under Mylan Pharma Control

2016 IC Awareness Month Campaign Kicks Off

How Patients Can Be Involved In IC Awareness Month - Every September, IC patients around the world unite to raise awareness about interstitial cystitis, bladder pain syndrome, hypersensitive bladder syndrome and chronic pelvic pain. All IC patients, support group leaders and national organizations are invited to participate! Your voice counts! Here's how you can participate: [...]

By |September 1st, 2016|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on 2016 IC Awareness Month Campaign Kicks Off

Recurring Bladder Infections Are Often Linked to Menopause

This morning I took a phone call from Claire*, a 70 year old woman who was struggling with recurring, confirmed bladder infections. Diagnosed with IC two decades ago, her infections began only recently and occurred about every 4 to 6 weeks. After several rounds of antibiotic treatment, she was very frustrated. "Why were they happening? Does this happen to [...]

By |August 26th, 2016|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Recurring Bladder Infections Are Often Linked to Menopause

Should IC patients drink cranberry juice? No!

The Agony of Cranberry - For anyone who has struggled with urinary symptoms (frequency, urgency, pressure and/or pain), the first suggestion they often hear from well meaning family members and friends is to drink cranberry juice. And, perhaps for a patient struggling with recurring UTI's, cranberry may have some benefit (more on that later) but for the interstitial [...]

By |August 25th, 2016|Diet & Food, Interstitial Cystitis Network Blog|Comments Off on Should IC patients drink cranberry juice? No!

Lyme Disease and Interstitial Cystitis

If you are an IC patient not improving with treatment, it's time to be proactive and ask "Why am I getting worse?" and "Could something else be contributing to my pain? (i.e. pelvic floor dysfunction, UTI, candida, etc. etc)"  The AUA Guidelines for IC/BPS clearly state that if a patient is not responding to treatment and/or [...]

By |August 11th, 2016|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Lyme Disease and Interstitial Cystitis

Summer 2016 IC Optimist Released

In the Summer 2016 IC Optimist: The summer issue of our flagship magazine, the IC Optimist, is now being delivered to our subscribers around the world. In this issue: (1) Editorial: Eight Potential Causes of Bladder Injury If you've wondered what could have triggered your IC symptoms, editor Jill Osborne offers a new editorial covering eight [...]

By |August 9th, 2016|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Summer 2016 IC Optimist Released

IC Patient Develops Aortic Aneurysm After Using Cipro

New FDA Warning About Fluoroquinolone Antibiotics - When IC patient Naomi* was prescribed Cipro for a bladder infection several years ago, she had no idea that it would lead to a life threatening aortic aneurysm. She, and others, found both both answers and outrage in an FDA safety alert released in May which required a [...]

By |July 18th, 2016|Interstitial Cystitis Network Blog, Research|Comments Off on IC Patient Develops Aortic Aneurysm After Using Cipro

New ICN Video – 2016 IC Treatment Options

Do You Know The Six Steps of Treatment For IC/BPS? This new "Living With IC" video was inspired by an IC patient who phoned our office last week. Diagnosed in 2004, she had been remission for ten years when her symptoms suddenly returned last month. She was in a lot of pain, not sure what [...]

By |July 17th, 2016|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on New ICN Video – 2016 IC Treatment Options

You Don’t Have To Pay To Be An IC Angel

IC Angel Program Honors Legacy Of Diane Manhatten Lopresti For the past couple of months, we've noticed that the Interstitial Cystitis Association has launched a new donor program called the "ICA Angel Society." We are greatly disappointed that they would invoke a name very similar to a program created by the IC Network in 2003 to honor [...]

By |July 8th, 2016|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on You Don’t Have To Pay To Be An IC Angel