Interstitial Cystitis Network Blog

Vulvar Pain Survey Seeks Participants

Female participants needed for an online questionnaire study on women’s health and genital pain. The purpose of this study is to develop a questionnaire (the Vulvar Pain Assessment Questionnaire)

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Canada Chronic Pelvic Pain Webinar – February 10, 2015

What are the causes and possible contributors to chronic pelvic pain? Dr. Allaire talks about the challenges in the assessment and diagnosis of pelvic pain and discusses therapies that can help

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Orange County IC Support Group Roundtable Meeting February 15, 2015

Orange County Interstitial Cystitis (IC) Support Group Roundtable Meeting! Sunday, February 15, 2015 2:00 to 4:00 pm Hoag Memorial Hospital Conference Center, “Lunch Room” on First Floor Hoag

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Why does my bladder hurt so much at night?

(Here’s part of an email I sent to an IC patient last night who was struggling with severe night time symptoms and bladder pain that describes the many factors that can be contributing to

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January 2015 ICN E-Newsletter Now Available

The January 2015 ICN E-Newsletter is now available! If you’re looking for the latest news, resources, blogs, videos on interstitial cystitis and its related conditions, you’ve come to

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Common IC Medications, Anticholinergics, May Pose Risk For Seniors

(Editors Note: Earlier this week, I received a phone call from an older IC patient who was suffering from severe side effects while using Amitryptiline. While it was helping reduce her pain, she

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Do you take Elmiron®? Take our survey of cost, side effects & effectiveness.

(January 2015) The only oral medication FDA approved for interstitial cystitis in the USA, Elmiron® (aka pentosan polysulfate), has received mixed results in research studies. But, for the

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Menopause and IC Research Survey – Please help!

(Winter 2015) For some women, it’s a breeze and barely noticeable. For others, perimenopause and menopause is a time of crazy mood swings, hot flashes and, to our great frustration, new

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Child With IC Needs Help – Doctors and Treatments

I write to you with a request for help on behalf of a ten year old with IC who is struggling to find a physician. Her mother is seeking the names of urologists or pediatricians who are

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The Best IC & Pelvic Pain Moments of 2014 – The Best Blog, Rant, Research, Book & Patient Projects

By Jill H. Osborne MA From Dr. Drew’s astonishing rant about IC and endometriosis last Spring to a patient fundraising project which raised over $4000 for IC research this Fall, we share the

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