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CUA IC/BPS Guidelines Finally Adopted – Canadian Patients Get Much Needed Guidance

CUA IC/BPS Guidelines Adopted Why have so many interstitial cystitis patients in Canada come to the USA for care? Despite the glowing reviews about universal health care, there is a sad IC truth behind the scenes north of the border. There is no national IC organization to advocate on their behalf. Only a handful of physicians in [...]

By | 2017-01-20T16:34:08+00:00 December 7th, 2016|Awareness, Diagnosis, ICN Announcements, Industry News, Interstitial Cystitis Network Blog, News, Research, Treatments|Comments Off on CUA IC/BPS Guidelines Finally Adopted – Canadian Patients Get Much Needed Guidance

September is IC Awareness Month – 2015 Press Release Hits The Wires

Physical Therapy May Resolve Symptoms of Interstitial Cystitis and Chronic Prostatitis Released: 1-Sep-2015 2:05 PM EDT Newswise — (Santa Rosa, CA) For the millions of men and women struggling with recurring bladder and/or prostate pain, finding relief for their symptoms can be difficult. Many have taken antibiotics for years under the mistaken impression that they [...]

By | 2017-01-31T10:00:11+00:00 September 4th, 2015|Awareness, Interstitial Cystitis Network Blog, Pelvic Floor Dysfunction, Pelvic Pain|Comments Off on September is IC Awareness Month – 2015 Press Release Hits The Wires

Kicking Off IC Awareness Month 2015! How You Can Be Involved!

The most exciting time of the year for the IC community, IC Awareness Month, begins today, September 1st, as patients around the world unite to educate others about IC. We invite you to participate! Here's how you can help! 1. NOMINATE YOUR DOCTOR or PHYSICAL THERAPIST Do you have a doctor or physical therapist who treats [...]

By | 2017-01-31T10:03:43+00:00 September 1st, 2015|Awareness, Interstitial Cystitis Network Blog|Comments Off on Kicking Off IC Awareness Month 2015! How You Can Be Involved!

Atara Schimmel’s Stunning Angel Project Raises Awareness For Pelvic Pain

If a picture speaks a thousand words, then the art of Atara Schimmel speaks volumes about pelvic pain and pudendal neuralgia. She's just won the ADA poster contest sponsored by the city of Boston for her entry "We Will Be Heard," one of her Project Angel series which is dedicated to raising awareness for pelvic [...]

By | 2017-01-31T10:10:42+00:00 July 22nd, 2015|Awareness, Interstitial Cystitis Network Blog, Jill's Journal, Pelvic Pain, Self Care|Comments Off on Atara Schimmel’s Stunning Angel Project Raises Awareness For Pelvic Pain

Barbara Flanigan & Her Thirty Year Journey To Discover The Cause of IC

How You Can Help Barbara Flanigan and Her Search For the Cause of IC (Editors Note – I’ve wanted to share Barbara Flanigan’s story and theory about IC for many years. Barbara was the founder the first Interstitial Cystitis Association here in California in 1983. She has always had one key goal in her volunteer work, [...]

By | 2017-01-18T12:03:00+00:00 June 30th, 2015|Awareness, Interstitial Cystitis IC/BPS, Interstitial Cystitis Network Blog, Patient Stories, Research, Women's Health|Comments Off on Barbara Flanigan & Her Thirty Year Journey To Discover The Cause of IC

Men’s Health Month – Men With IC Deserve Our Support

One of the most powerful phone conversations I've had with an IC patient occurred about twelve years ago. The phone rang, I answered "IC Network. This is Jill. Can I help you?" All I heard on the other end was deep, heartbreaking sobs from someone so overcome with emotion that they were unable to speak. When the tears finally [...]

By | 2017-01-18T12:03:08+00:00 June 19th, 2015|Awareness, Interstitial Cystitis Network Blog|Comments Off on Men’s Health Month – Men With IC Deserve Our Support

The Best IC & Pelvic Pain Moments of 2014 – The Best Blog, Rant, Research, Book & Patient Projects

By Jill H. Osborne MA From Dr. Drew’s astonishing rant about IC and endometriosis last Spring to a patient fundraising project which raised over $4000 for IC research this Fall, we share the highlights and “best of” moments in 2014! Do you agree? Most Promising Treatment of 2014 - LiRIS I continue to believe that [...]

By | 2017-01-31T10:43:13+00:00 December 31st, 2014|Awareness, ICN Announcements, Interstitial Cystitis Network Blog, Jill's Journal, News|Comments Off on The Best IC & Pelvic Pain Moments of 2014 – The Best Blog, Rant, Research, Book & Patient Projects

Is Interstitial Cystitis Caused by Anger? No!

Allright, I'm angry right now. Yes, ANGRY. Thoroughly and completely pissed. Why? Because, in 2014, an IC patient in the South of the USA was told that the reason that she had IC was because she was angry about her ex-boyfriend. Yes, he really, REALLY said that. This was after she had been diagnosed by [...]

By | 2017-01-31T10:50:02+00:00 November 26th, 2014|Awareness, Interstitial Cystitis Network Blog, Jill's Journal, Self-Help Tips for IC, Bladder & Pelvic Pain|Comments Off on Is Interstitial Cystitis Caused by Anger? No!

Pin of the Day – It’s Okay To Tell People You’re Not Okay And That Your IC Is Flaring

Do you hide your IC from family and friends? Do you say "I'm fine" even when you're not? A man with IC was told by his urologist NOT to tell anyone that he was experiencing severe bladder pain. The attitude was "be a man" and, for a couple of years, this courageous IC patient suffered [...]

By | 2017-01-31T10:56:52+00:00 October 20th, 2014|Awareness, Inspirational Quotes, Interstitial Cystitis Network Blog, Jill's Journal|Comments Off on Pin of the Day – It’s Okay To Tell People You’re Not Okay And That Your IC Is Flaring

2014 IC Awareness Month Poster Contest Winners!

FIRST PLACE - CHRISTY KEYES - $100 gift certificate Christy Keyes wins first place this year for a gorgeous yet satirical poster that utilizes color and text powerfully. Using a carnival theme, she shares the frustration that patients face every day as they struggle with a variety of symptoms and frustrations. Brilliantly done…. and the [...]

By | 2017-01-31T10:59:06+00:00 October 4th, 2014|Awareness, Interstitial Cystitis Network Blog|Comments Off on 2014 IC Awareness Month Poster Contest Winners!